• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

Diagnosed a few months ago.

Thomas16200

Newbie
Messages
4
Back in march i ended up in the ER in Dka.

Im 30 years old im not "fat" but im no marathon runner either. I used to eat what i wanted but also lift and cycle alot i have no real family history of diabetes but my sister has hajimotos disease which i belive is relevant

I dont really drink, maybe once a month.

A1c was 11.5, c peptide was .7, antibody test was negative
My endocronologist that they sent me to said i am type one i was given insulin meters dexcom and opted for injections over a pump.

So i had a few lows and highs but after watching this dexcom for a while there are days when at work i eat something..whatever it may be and BG goes up hits somewhere around 200-280 and then after 2-4 hours it drops back down around 100-80 without me really doing anything or even taking short acting insulin (sometimes work puts me in a spot where i cant take an injection when i want/need to because im busy)

Since being diagnosed i have had some lows which i assumed were from the insulin up until one day i went extremely low without having taken any and i had not exactly done anything but sit for the past 4 hours. Highs i have alot more of but never gone above 280

My most recent doctor visit in july yielded an a1c of 5.9 which she said was very good. I made diet changes to some degree. almond milk>regular Just things like that salad over potatoes etc etc.

Did i get diagnosed correctly? Is my body actually working? Was the stay in the ER just a fluke perhaps? Or am i in denial and should just accept things as they are?
 
It's difficult to know without appropriate tests.
However, one thing that comes to my mind is whether you have your basal levels correctly set. If they are too high, they could cause you to hypo without taking any bolus.
 
It's very uncommon for a type 2 diabetic to have DKA. You have a family history of autoimmune disease with your sisters hashimotos. You have some residual beta cell function but not a lot with your cpeptide level, that's pretty common in a newly diagnosed type 1. About 25% of type 1 diabetics test GAD negative (those are the antibodies). A negative antibody test doesn't mean you aren't type 1, it just means you aren't ever going to get a definitive answer.

It doesn't sound like you've been misdiagnosed. It sounds like you need to do a basal test - 50 units is a fairly robust basal doasge for anyone, let alone someone who is likely honeymooning.

So yes, I'm afraid I think you are just in denial. It wasn't a fluke, you have type 1 diabetes.

Here's some info on how to basal test - https://mysugr.com/basal-rate-testing/
 
Back
Top