diagnosed wrong type

Hi there, you'll see from signature below the different types I was considered! Now I'm Type 1.5 (or T1 slow onset in adulthood).

Did you get any anti-body tests done or c-peptide test? If your c-pep is high this helps to indicate insulin resistance i.e T2 (Pancrease producing more and more as the cells are resistent and glucose is rising). However c-pep low, points to T1 (although in my case it was normal...) The anti-GAD test needs to be done too and if positive is definitely T1.5.

Sometimes some folk can have some insulin resistance as well as insulin deficiency (double Diabetes). Type 1 in adults can present in this way at the start, however over time the insulin producing cells in the Pancreas are destroyed by the immune system and therefore leads to insulin deficiency (no one truly knows what triggers this, genetics, environment, virus seem to be popular theories).

I was never given insulin (well, I will on the 12th Dec) I was put on Gliclazide which didn't make a difference at all. However Gliclazide may prove effective for some at the start and then start to become less so especially if you are Type 1.5. I was told to come off mine, and my A1cs as you'll see below show 2 clear jumps, I do wonder in hindsight if they were basically waiting for the next jump! Which I really did not want!

I've been getting trace Ketones here and there, typically T1s get ketones but so do low carbers as an indication of successful fat burning. However trace Ketones AND feeling ill should be attended to. And definitely moderate and above level ketones should be reported.

Ultimately only the doctors can decide but at least you can question them. I just asked for the anti-GAD test myself in the end and I'm glad I did.

Do be prepared, it may not be a clear cut diagnosis, Diabetes is complex and everyone's different. There are also other Diabetes types, google it and you'll see what I mean.

There is no need for anyone to worry abiut this, I will put you in tpoch with the diabetes nurse in my practice.
When I was first diagnosed I was told that it would be very difficult to test me for tyope for various reasons, There were some issues over my treatment a year or so ago and I mentioned to the nurse that some doubts had been expressed in the past.
She looked at me in amazement abd pronounced very definitely that I was type 2,
I asked her how she was able to be so sure hoping to hear some new definitive information.
" Because it says so on your file " was the reply.
So that's it then. Just think of all that money I saved not having to pay for tests etc.!

The main reason to be concerned is that your medication will (eventually) stop working as (hypothetical) misdiagnosed autoimmune diabetes progresses - which would puts you at risk of diabetic ketoacidosis, which you may not be watching out for since DKA is uncommon in type 2 patients. [Ignoring any psychological impact for the moment - failing control despite trying hard and doing everything " right" will, at least, be demotivating]
Also, I it might be advantageous to start insulin therapy early for autoimmune diabetes patients (I think studies suggest that it might preserve some pancreas function for longer)

Hi Mistee
I think I would try not to worry so, if things are working as they are,then stay aware, but leave things for the moment..Why fix what ain't broke!
The stress alone from worrying what category you fall into will not do your overall health any good. Obviously if you start to lose a lot of weight without trying ,and feel very poorly then certainly go and see your HCP this will be Type 1. I know there is LADA ect, but if the Glitz ect is working then look on this as a positive for now and hopefully that will carry on being the only treatment you need . I hope oral meds will keep you healthy without the hassle of insulin.
If you are Type 1 ,you will get very poorly, very quickly, if you are LADA ect it may take longer , but you are getting the knowledge to deal with things and are in "the system" hopefully and are being monitored, so give it a bit more time and if things obviously go down hill go ASAP.
Hope it all works out.

As others have said, if the tablets are having a useful effect you are more likely to be Type 2 than Type 1, but that is not an absolute position. If the tablets get to the point where they are having no effect and the BG keeps rising then you may have one of Type 1 variants (or your Type 2 has just progressed too far). I had to have a 3rd med added i.e. Sitagliptin to keep my BG under control which is one of the options before insulin. At the end of the day knowing the type you have isn't super-critical but keeping your BG measured and under control is. BTW I was diagnosed and classified by my surgery's DB expert GP through the use of a urine stick! I did, however, have the complete set of symptoms.