Search
Search titles only
By:
Search titles only
By:
Home
Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
Search
Search titles only
By:
Search titles only
By:
New posts
Search forums
Menu
Install the app
Install
Reply to Thread
Guest, we'd love to know what you think about the forum! Take the
Diabetes Forum Survey 2025 »
Home
Forums
Diabetes Discussion
Reactive Hypoglycemia
Do I have reactive hypoglycaemia?
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Message
<blockquote data-quote="Cazzy76" data-source="post: 2764563" data-attributes="member: 598812"><p>Hi Lamont !</p><p></p><p></p><p></p><p>Thank you so much for your reply and please, don’t apologise! Honestly, I am so grateful !!!!</p><p></p><p>I had a mixed meal test - a drink ! And I don’t think I’ve had any of the other tests that you have mentioned ! What are the tests I should ask for ? Fasting blood tests usually come back between 3.7 - 5.0, depending on whether I have eaten oat cakes the night before ( if I eat oat cakes, they seem to steady my blood through the night) Anyway doctors didn’t seem worried about the results. It was after at least eight hours fasting!</p><p></p><p>While I was in hospital I had a body CT scan, which didn’t show anything remarkable, apparently.</p><p></p><p>The seizures did literally hit me like a ton of bricks - literally!!! Before I had the seizures I was living very independently, going out every day to do my shopping, swimming 500 m twice a week - which made me feel amazing! Also dancing a lot and yoga, I was always doing exercise for maintenance, and I still try to - but the exercise is just draining me now now and it also sends my blood sugars either high or low and I get very dizzy.</p><p></p><p>I was getting gradually weaker to be honest, a few months leading up to the seizures, but doctors put that down to MS (my actual neurologist is positive the seizures and decline Is not MS related - I had more MRIs after the seizures! They were focal seizures.) </p><p></p><p>All of my hormone blood results are off the charts - hormonal blood test results being off are always put down to menopause, which is frustrating as I have many deficiency symptoms - like the severe weakness and fatigue! </p><p></p><p>I have had MS for over 20 years and I have not felt the weakness and fatigue like I do now! </p><p></p><p>I have always felt worse after eating - a numbness and weakness washes over me after eating, but no doctors were ever interested in this. I have many MS friends affected differently by MS, but not any of them are affected by food like me! </p><p></p><p>Now my son (grown up son) is doing all the shopping, all the cooking (I was doing my own cooking before) , most things around the house, because I am just so tired and weak!</p><p></p><p>I think GPs have suspected adrenal problems but my cortisol levels are normal, I was told I would have a ACTH blood test in hospital but that didn’t happen! </p><p></p><p>Liver and kidney blood tests are all normal.</p><p></p><p>I have lost a huge amount of weight. I was a healthy 8 1/2 - 9 stone before the seizures, now I am 7.4 - it is awful !</p><p></p><p></p><p></p><p>My MMT bloods - </p><p></p><p></p><p></p><p>8:25 am - 5.6 - This is higher than usual, I think due to the activity getting to the hospital - Drink -</p><p></p><p></p><p></p><p>8:40 am - 5.1</p><p></p><p>9:10 am - 6.3</p><p></p><p>9:25 am - 6.8</p><p></p><p>9:40 am - 7.2</p><p></p><p>9:55 am - 5.8</p><p></p><p>10:25 am - 4.2</p><p></p><p>10:55 am - 2.4</p><p></p><p>11:25 am - 3.2</p><p></p><p>11:55 am - 3.7</p><p></p><p>12:25 pm - 4.6</p><p></p><p>12:55 pm - 4.3</p><p></p><p>1:25 pm - 3.8</p><p></p><p>1:55 pm - 4.0</p><p></p><p></p><p></p><p>Through the test I was extremely dizzy and lightheaded and blurry vision and shaking and burning up… I must have got up to pee about 20 times!</p><p></p><p></p><p></p><p></p><p></p><p>And so far today - I woke up and bloods 4.7. When I sit down, it goes down to 4.0. I got up and danced ( ha - I say dancing but it is more like shuffling to music! ) it went up to 5.5 I feel absolutely exhausted after, before the seizures I would never feel this exhaustion, but I knew when I needed to stop, if you know what I mean….</p><p></p><p></p><p></p><p>I won’t eat until around midday, because as soon as I eat I feel too ill to do anything but I will update all my foods and blood numbers today!</p><p></p><p></p><p></p><p>Oh and I haven’t eaten gluten or dairy since I was diagnosed! The only milk I have had is what is in the mixed test drink ! </p><p></p><p></p><p></p><p>POTS has been suspected by a doctor, I just don’t have a +30 heart rate every time I stand up, sometimes I do but not all the time and my blood pressure generally drops when I stand up but I think this will be put down to MS… blood pressure is generally low …. </p><p></p><p></p><p></p><p>I feel like my whole body is failing me….. maybe it is - I just feel glucose and foods are such a big issue and I need answers from our failing NHS ……</p><p></p><p></p><p></p><p>Thank you thank you thank you <img class="smilie smilie--emoji" loading="lazy" alt="❤️" title="Red heart :heart:" src="https://cdn.jsdelivr.net/joypixels/assets/6.6/png/unicode/64/2764.png" data-shortname=":heart:" /><img class="smilie smilie--emoji" loading="lazy" alt="❤️" title="Red heart :heart:" src="https://cdn.jsdelivr.net/joypixels/assets/6.6/png/unicode/64/2764.png" data-shortname=":heart:" /><img class="smilie smilie--emoji" loading="lazy" alt="❤️" title="Red heart :heart:" src="https://cdn.jsdelivr.net/joypixels/assets/6.6/png/unicode/64/2764.png" data-shortname=":heart:" /><img class="smilie smilie--emoji" loading="lazy" alt="❤️" title="Red heart :heart:" src="https://cdn.jsdelivr.net/joypixels/assets/6.6/png/unicode/64/2764.png" data-shortname=":heart:" /><img class="smilie smilie--emoji" loading="lazy" alt="❤️" title="Red heart :heart:" src="https://cdn.jsdelivr.net/joypixels/assets/6.6/png/unicode/64/2764.png" data-shortname=":heart:" />!!!</p></blockquote><p></p>
[QUOTE="Cazzy76, post: 2764563, member: 598812"] Hi Lamont ! Thank you so much for your reply and please, don’t apologise! Honestly, I am so grateful !!!! I had a mixed meal test - a drink ! And I don’t think I’ve had any of the other tests that you have mentioned ! What are the tests I should ask for ? Fasting blood tests usually come back between 3.7 - 5.0, depending on whether I have eaten oat cakes the night before ( if I eat oat cakes, they seem to steady my blood through the night) Anyway doctors didn’t seem worried about the results. It was after at least eight hours fasting! While I was in hospital I had a body CT scan, which didn’t show anything remarkable, apparently. The seizures did literally hit me like a ton of bricks - literally!!! Before I had the seizures I was living very independently, going out every day to do my shopping, swimming 500 m twice a week - which made me feel amazing! Also dancing a lot and yoga, I was always doing exercise for maintenance, and I still try to - but the exercise is just draining me now now and it also sends my blood sugars either high or low and I get very dizzy. I was getting gradually weaker to be honest, a few months leading up to the seizures, but doctors put that down to MS (my actual neurologist is positive the seizures and decline Is not MS related - I had more MRIs after the seizures! They were focal seizures.) All of my hormone blood results are off the charts - hormonal blood test results being off are always put down to menopause, which is frustrating as I have many deficiency symptoms - like the severe weakness and fatigue! I have had MS for over 20 years and I have not felt the weakness and fatigue like I do now! I have always felt worse after eating - a numbness and weakness washes over me after eating, but no doctors were ever interested in this. I have many MS friends affected differently by MS, but not any of them are affected by food like me! Now my son (grown up son) is doing all the shopping, all the cooking (I was doing my own cooking before) , most things around the house, because I am just so tired and weak! I think GPs have suspected adrenal problems but my cortisol levels are normal, I was told I would have a ACTH blood test in hospital but that didn’t happen! Liver and kidney blood tests are all normal. I have lost a huge amount of weight. I was a healthy 8 1/2 - 9 stone before the seizures, now I am 7.4 - it is awful ! My MMT bloods - 8:25 am - 5.6 - This is higher than usual, I think due to the activity getting to the hospital - Drink - 8:40 am - 5.1 9:10 am - 6.3 9:25 am - 6.8 9:40 am - 7.2 9:55 am - 5.8 10:25 am - 4.2 10:55 am - 2.4 11:25 am - 3.2 11:55 am - 3.7 12:25 pm - 4.6 12:55 pm - 4.3 1:25 pm - 3.8 1:55 pm - 4.0 Through the test I was extremely dizzy and lightheaded and blurry vision and shaking and burning up… I must have got up to pee about 20 times! And so far today - I woke up and bloods 4.7. When I sit down, it goes down to 4.0. I got up and danced ( ha - I say dancing but it is more like shuffling to music! ) it went up to 5.5 I feel absolutely exhausted after, before the seizures I would never feel this exhaustion, but I knew when I needed to stop, if you know what I mean…. I won’t eat until around midday, because as soon as I eat I feel too ill to do anything but I will update all my foods and blood numbers today! Oh and I haven’t eaten gluten or dairy since I was diagnosed! The only milk I have had is what is in the mixed test drink ! POTS has been suspected by a doctor, I just don’t have a +30 heart rate every time I stand up, sometimes I do but not all the time and my blood pressure generally drops when I stand up but I think this will be put down to MS… blood pressure is generally low …. I feel like my whole body is failing me….. maybe it is - I just feel glucose and foods are such a big issue and I need answers from our failing NHS …… Thank you thank you thank you ❤️❤️❤️❤️❤️!!! [/QUOTE]
Verification
Post Reply
Home
Forums
Diabetes Discussion
Reactive Hypoglycemia
Do I have reactive hypoglycaemia?
Top
Bottom
Find support, ask questions and share your experiences. Ad free.
Join the community »
This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies.
Accept
Learn More.…
