Doctor wants to stop my mounjaro - what are the official guidelines?

[ch.83]

Hello. I lodged a formal complaint with my surgery. They also gave me the option of lodging a complaint with the NHS but that would take longer. The two consultant endocrinologists who my surgery contacted were at my local hospital but separate from the surgery. It seems the decision to stop my mounjaro was a local decision between my surgery and the diabetes clinic, but they were not following correct guidelines.

 

[Bogs]

So I complained to the GP. I was then sent a referral to a diabetologist in a special clinic in my area. That was so worth doing! The diabetologist has kept me on 5mg Mounjaro, also put me back on Metformin (as the GP had also taken me off that) and also kept me on Dapaglifozin. She said that in someone diagnosed so young (42) with T2, I needed this and really explained why. She was really scathing of the GP surgery and wrote to them suggesting further diabetes training!! No apology from GP, but they are prescribing the Mounjaro until the end of this month when they want another set of bloods. Will see if I'm back to pointing them back to the diabetologist recommendations after that. She did say that 36mmol was a bit low, so hoping the MJ reduction + Metformin reduction + Christmas eating, puts the reading above 40mmol or she said would need to drop the MJ to 2.5mg.

 

[jennyj69]

Hi

Ive been on Mounjaro 2.5mg for about 5 months, I started out with Hba1c of 77 and weight of 20 stone 10, I am now 18 stone 7 and my Hba1c is 40.
My nurse has just made an appointment for the end of January to bring me off Mounjaro.

I understand the correlation between my weight, which I struggle with badly and have done for many years, and my Hba1c, and after trying several different drugs, Semaglutide tablets never worked for me and Canigliflozin gave me terrible side effects, Mounjaro has changed my life, I am able to eat better and my glucose control is very good.

Ive just seen this on the BBC, so how this will affect things i have no idea

People coming off weight-loss injections risk fast weight gain

Overweight people shed large amounts on jabs but gain 0.8 kg a month on average once off them, study shows.

www.bbc.co.uk

 

[lovinglife]

Hi

Ive been on Mounjaro 2.5mg for about 5 months, I started out with Hba1c of 77 and weight of 20 stone 10, I am now 18 stone 7 and my Hba1c is 40.
My nurse has just made an appointment for the end of January to bring me off Mounjaro.

I understand the correlation between my weight, which I struggle with badly and have done for many years, and my Hba1c, and after trying several different drugs, Semaglutide tablets never worked for me and Canigliflozin gave me terrible side effects, Mounjaro has changed my life, I am able to eat better and my glucose control is very good.

Ive just seen this on the BBC, so how this will affect things i have no idea

People coming off weight-loss injections risk fast weight gain

Overweight people shed large amounts on jabs but gain 0.8 kg a month on average once off them, study shows.

www.bbc.co.uk

I know quite a few people both diabetic & non diabetic that have had Mounjaro on the NHS & privately, every single one of those who stopped it gained weight back even though they kept to their eating habits that they had in the Mounjaro. A couple of them now fund a maintenance dose themselves

I’ve always understood it’s a lifetime drug once you’re on it.