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Eyes
- Thread starter ShyGirl
- Start Date
Robinredbreast
Oracle
Re: Eye Help Needed
I'm so sorry to hear of your eye problems. I go to the hospital tomorrow for more eye laser surgery :cry: When I have a bleed, on a few occassions the eye feels odd, heavy and I have had what looks likes a large reddish worm across my eye. Afterwards it dispurses and ( the way I can describe it as) a child has drawn lines on my eye with a black marker pen, also floaters. Your eye problem does sound different from mine, as you said it could be migraine related and I understand fully you not wanting to go to A&E.
You may not necessarily have laser treatment, so please try and not worry to much as stress and worry do affect us . Do you have an appointment soon to see a consultant eye doctor? I go every few months, but some people only attend once a year. If you are still feeling so worried then you must go and see your own doctor who should then refer you on. Best of luck :thumbup:
ShyGirl said:
I'm so sorry to hear of your eye problems. I go to the hospital tomorrow for more eye laser surgery :cry: When I have a bleed, on a few occassions the eye feels odd, heavy and I have had what looks likes a large reddish worm across my eye. Afterwards it dispurses and ( the way I can describe it as) a child has drawn lines on my eye with a black marker pen, also floaters. Your eye problem does sound different from mine, as you said it could be migraine related and I understand fully you not wanting to go to A&E.
You may not necessarily have laser treatment, so please try and not worry to much as stress and worry do affect us . Do you have an appointment soon to see a consultant eye doctor? I go every few months, but some people only attend once a year. If you are still feeling so worried then you must go and see your own doctor who should then refer you on. Best of luck :thumbup:
Unbeliever
Well-Known Member
Re: Eye Help Needed
I have had maculopathy for five years and am not blind yet. Both eyes. I am going to the hospital tomorrow too for laser
Robin. Good luck to you too.
Try not to anticipate problems ShyGirl. These things take ime to develop and treatment slows them down. Nurses and biometrists generally do the angiograms in my hospital too. I dont' think it is always a case of results as such. It will probably be considered ogeher wih other informaion o tall hem what is wrong. An angiogram is not necessary for a diagnosis of maculopahy.
I have had maculopathy for five years and am not blind yet. Both eyes. I am going to the hospital tomorrow too for laser
Robin. Good luck to you too.
Try not to anticipate problems ShyGirl. These things take ime to develop and treatment slows them down. Nurses and biometrists generally do the angiograms in my hospital too. I dont' think it is always a case of results as such. It will probably be considered ogeher wih other informaion o tall hem what is wrong. An angiogram is not necessary for a diagnosis of maculopahy.
Unbeliever
Well-Known Member
Re: Eye Help Needed
Hope all goes/went well at the clinic todaay shygirl and hat they managed to reassure you. Do let us know how it went when you can.
Hope all goes/went well at the clinic todaay shygirl and hat they managed to reassure you. Do let us know how it went when you can.
Unbeliever
Well-Known Member
Re: Eye Help Needed
ShyGirl said:
Unbeliever
Well-Known Member
Re: Eye Help Needed
Don't know what is happening with my computer . Sorry!
Maculopathy IS reversible but it depends on your control. You are obviously in the early stages and ther is everything o play for..
Bypass the nurse. Go to the Dr tell him about your eye problems . he will understand the urgency. If you don't get any proper help tell the people at the eye clinic. They can write to your GP and stress he urgency of reducing your levels.
You should finnd that the invovement of the hospital and the fac hat you have a complication of diabees will focus their minds.
My consultant actually arranged for me to see the diabetes consultant. They take me very seriously in the practice nowadays when I mention he hospital,
Don't despair . Your case soinds very hopeful. Your eye problems may turn out to have been the key o your geting he help you need with your diabetes and you may have a general improvement in your health/
I hope so.
Don't know what is happening with my computer . Sorry!
Maculopathy IS reversible but it depends on your control. You are obviously in the early stages and ther is everything o play for..
Bypass the nurse. Go to the Dr tell him about your eye problems . he will understand the urgency. If you don't get any proper help tell the people at the eye clinic. They can write to your GP and stress he urgency of reducing your levels.
You should finnd that the invovement of the hospital and the fac hat you have a complication of diabees will focus their minds.
My consultant actually arranged for me to see the diabetes consultant. They take me very seriously in the practice nowadays when I mention he hospital,
Don't despair . Your case soinds very hopeful. Your eye problems may turn out to have been the key o your geting he help you need with your diabetes and you may have a general improvement in your health/
I hope so.
Robinredbreast
Oracle
Re: Eye Help Needed
Hi unbeliever, I hope your eye laser surgery went well for you. This time, I didn't have laser because it's 'like murky waters in there', as I have had yet another bleed
so I was lucky!!!!!!!!! this time . I have to go back in 2 months, so I will see how things go on, my wonderful and funny consultant Mr K........... said my left eye is absolutley fine, so at least I have one good eye lol
I hope you have a lovely weekend in this glorious weather ( even though I worked all day from 9 to 5.30pm ) and I hope you have a lovely weekend too Shygirl. With best wishes.
Unbeliever said:
Hi unbeliever, I hope your eye laser surgery went well for you. This time, I didn't have laser because it's 'like murky waters in there', as I have had yet another bleed
so I was lucky!!!!!!!!! this time . I have to go back in 2 months, so I will see how things go on, my wonderful and funny consultant Mr K........... said my left eye is absolutley fine, so at least I have one good eye lolI hope you have a lovely weekend in this glorious weather ( even though I worked all day from 9 to 5.30pm
) and I hope you have a lovely weekend too Shygirl. With best wishes.Unbeliever
Well-Known Member
Re: Eye Help Needed
Hi Robin, I have had so many laser sessions i have los rackof the number. This time it was to fix " the seroid injections I had a couple of onths ago. Unlike you I always hope that they can do he laser as hat means it will be longer before he injections have to be repeated!
On this occasion I was a little concerned as we have being trying o get my left eye in a condition to be lasered for several months.
Two doctors my consultant showed it to were horrified and said hat they would not attempt it as they could see nowhere to laser.
I knew my consultant could do it bu though it might be a little fraugh. As you know laser ca someimes be sressful for patient and operative.
My consultant had no problem at all. The only time he warned me to keep perfectly still was when he was laserimg the other eye,
A iny bit sore and fuzzy still but my sigh wasn't affeced for long alhough it was quite intense in he left eye.
Too soon to judge the effect , if any on my sight.
I don't know what I should do if this consultant left. I would have o do he same.
Have a wonderful weekend too Robin and shygirl.
Hi Robin, I have had so many laser sessions i have los rackof the number. This time it was to fix " the seroid injections I had a couple of onths ago. Unlike you I always hope that they can do he laser as hat means it will be longer before he injections have to be repeated!
On this occasion I was a little concerned as we have being trying o get my left eye in a condition to be lasered for several months.
Two doctors my consultant showed it to were horrified and said hat they would not attempt it as they could see nowhere to laser.
I knew my consultant could do it bu though it might be a little fraugh. As you know laser ca someimes be sressful for patient and operative.
My consultant had no problem at all. The only time he warned me to keep perfectly still was when he was laserimg the other eye,
A iny bit sore and fuzzy still but my sigh wasn't affeced for long alhough it was quite intense in he left eye.
Too soon to judge the effect , if any on my sight.
I don't know what I should do if this consultant left. I would have o do he same.
Have a wonderful weekend too Robin and shygirl.
Unbeliever
Well-Known Member
Re: Eye Help Needed
I've probably said this before ShyGirl but you have to push them to get what you want. Otherwise they won't understand what is important to you- they will assume you don't mind who you see.
Do you have your eyes ested before seeing a dr? if so ask if you can be seen by DrX or if a note can be placed on your file saying that you would like to see Dr X if possible. It helps a great deal to see he same person and form some sort of a relaionship with them. If this is not possible ask someone abou the dedicated eye clinic. There may be reasons why they are not sending you there.
It took some ime for me to get the point across that I preferred to be seen by one paricular person . It is not possible to insist but
you can ask. In ime you will probably automaically be seen by this person without having to ask.
You could sart by thiking of some pretext for seeing a paricular Dr. You want to ask him/her to explain some comment they made last time or you have some information which they requested last time and which you have now fond for them.
When you see them tell them how important it is to you to see the same person. They are human after all and may be pleased
to find you have confidence in them Then you can build on that.
It is by no means an eact science and the more people you are seen by the more different opnios you are likely to get.
Regarding the field test I would give it a week or so and then call and enquire whether you can expect to get an appointment through the post or whether you ought to have made one separately.
Play the hapless confused patient [easy for most of us} and request help rather han accuse hem of inefficiency -however justified.
You really need to be pro-active in your own interests. Too many patiennts don't speak up and so it is assumed they are satisfied wih he status quo.
I've probably said this before ShyGirl but you have to push them to get what you want. Otherwise they won't understand what is important to you- they will assume you don't mind who you see.
Do you have your eyes ested before seeing a dr? if so ask if you can be seen by DrX or if a note can be placed on your file saying that you would like to see Dr X if possible. It helps a great deal to see he same person and form some sort of a relaionship with them. If this is not possible ask someone abou the dedicated eye clinic. There may be reasons why they are not sending you there.
It took some ime for me to get the point across that I preferred to be seen by one paricular person . It is not possible to insist but
you can ask. In ime you will probably automaically be seen by this person without having to ask.
You could sart by thiking of some pretext for seeing a paricular Dr. You want to ask him/her to explain some comment they made last time or you have some information which they requested last time and which you have now fond for them.
When you see them tell them how important it is to you to see the same person. They are human after all and may be pleased
to find you have confidence in them Then you can build on that.
It is by no means an eact science and the more people you are seen by the more different opnios you are likely to get.
Regarding the field test I would give it a week or so and then call and enquire whether you can expect to get an appointment through the post or whether you ought to have made one separately.
Play the hapless confused patient [easy for most of us} and request help rather han accuse hem of inefficiency -however justified.
You really need to be pro-active in your own interests. Too many patiennts don't speak up and so it is assumed they are satisfied wih he status quo.
SouthernGeneral6512
Well-Known Member
Re: Eye Help Needed
It's very hard to have any real confidence in them when there is no consistency :sick:ShyGirl said:
Robinredbreast
Oracle
Re: Eye Help Needed
Hi shygirl :wave: its a bit like wading through fog, trying to find a clear view with some clear answers at the end. I know the clinics say you need someone with you for eye laser surgery, but I have always gone on my own with no problems as I get the bus then a 15 minute walk. Having inconsiderate nasty people with you at such a anxious time is just not on why someone would do that is bewildering. At least you will be seeing the same person, which is much better. Keep us posted and I truly hope things start to get better for you. Take care RRB X
ShyGirl said:
Hi shygirl :wave: its a bit like wading through fog, trying to find a clear view with some clear answers at the end. I know the clinics say you need someone with you for eye laser surgery, but I have always gone on my own with no problems as I get the bus then a 15 minute walk. Having inconsiderate nasty people with you at such a anxious time is just not on
why someone would do that is bewildering. At least you will be seeing the same person, which is much better. Keep us posted and I truly hope things start to get better for you. Take care RRB XUnbeliever
Well-Known Member
Re: Eye Help Needed
I know what you mean shygirl. Ypou have put your finger on the worst aspect of all this. They just can't give you definite answers so you never know what the future has in store.
I see people who just accept whatever happens and don't ask questions and just obey instructions and accept that all will be well
waiting with me . If you can be like that themn perhaps you are lucky but if i had been like that i would probablly have beeen blind and on large doses of insulin by now so it would noyt have been a good atiude for me.
As you say, seeing the same person is a major help. Eventually you and his person will get used to each other and learn to trust each other.
Its a wo-way st but takes time. You will learn to trust the dr and he Dr will learn what the most upsetting aspects are o you, how well you understand the condition and just what they can tell you without causing you undue stress in the event that you might misunderstand.
Some people would rather not know , others would rather know everyhing. he Dr has to make he righ judgement..
I went through a few years of hell now I can be calmer about it all because i trust the Consultant . he know I am not going to have hysterics whatever he says and I dont waste his ime by asking questions he can't answer.
there is one thing about this disease, whatebver our age and situation a bad outcome is equally terrifying although in diffferent ways.
As with everything else we have to learn o take each day sas it comes.
Certainly ditch your companion as RRB suggests. The appointments are stressful enough. I find other people's companions annoyig enough. I don't want to make smalll talk with hem while they wait . It is very stressful. I usually don't know wheteher I am to have treatment or not as it depends on he scans ec on the day. I like o be left in peace o compose myself and o pput my houghts in order so hat I am prepared o ask and answer questions.
My husband always comes with me because there is no public transport available but he knows better than to try to chat.
You will be better on yur pwn or speaking o fellow sufferers. This is ften a good source of nfo - rather like his forum.
Hang on in there, you are getting there,
I know what you mean shygirl. Ypou have put your finger on the worst aspect of all this. They just can't give you definite answers so you never know what the future has in store.
I see people who just accept whatever happens and don't ask questions and just obey instructions and accept that all will be well
waiting with me . If you can be like that themn perhaps you are lucky but if i had been like that i would probablly have beeen blind and on large doses of insulin by now so it would noyt have been a good atiude for me.
As you say, seeing the same person is a major help. Eventually you and his person will get used to each other and learn to trust each other.
Its a wo-way st but takes time. You will learn to trust the dr and he Dr will learn what the most upsetting aspects are o you, how well you understand the condition and just what they can tell you without causing you undue stress in the event that you might misunderstand.
Some people would rather not know , others would rather know everyhing. he Dr has to make he righ judgement..
I went through a few years of hell now I can be calmer about it all because i trust the Consultant . he know I am not going to have hysterics whatever he says and I dont waste his ime by asking questions he can't answer.
there is one thing about this disease, whatebver our age and situation a bad outcome is equally terrifying although in diffferent ways.
As with everything else we have to learn o take each day sas it comes.
Certainly ditch your companion as RRB suggests. The appointments are stressful enough. I find other people's companions annoyig enough. I don't want to make smalll talk with hem while they wait . It is very stressful. I usually don't know wheteher I am to have treatment or not as it depends on he scans ec on the day. I like o be left in peace o compose myself and o pput my houghts in order so hat I am prepared o ask and answer questions.
My husband always comes with me because there is no public transport available but he knows better than to try to chat.
You will be better on yur pwn or speaking o fellow sufferers. This is ften a good source of nfo - rather like his forum.
Hang on in there, you are getting there,
Robinredbreast
Oracle
Re: Eye Help Needed
there is one thing about this disease, whatebver our age and situation a bad outcome is equally terrifying although in diffferent ways.
As with everything else we have to learn o take each day sas it comes
.Spot on :thumbup: unbeliever, well said. I hope all the' problem eye members' out there, are having a nice day, its beautiful out there today, sunglasses are definate must 8) Take care all with best wishes RRB
there is one thing about this disease, whatebver our age and situation a bad outcome is equally terrifying although in diffferent ways.
As with everything else we have to learn o take each day sas it comes
.Spot on :thumbup: unbeliever, well said. I hope all the' problem eye members' out there, are having a nice day, its beautiful out there today, sunglasses are definate must 8) Take care all with best wishes RRB
