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Fed up

Amyb83

Newbie
Messages
4
Type of diabetes
Treatment type
Other
Hi all, I was told I was borderline diabetic last year and recently told it had progressed and I'm now a full blown type 2!! Test results were at 57?? As I'm new to this its all so confusing and I'm feeling ill a lot of the time nausea, sickness,dizziness, and feeling spaced out?? My nurse has referred me to hospital diabetic team as I'm as she says not a "normal" type 2 eg normally fit and healthy not overweight and still relatively young! Only problem is I haven't got an appointment at hospital until the end of May! I cant carry on like this until May and the nurse has said she won't start medicating me until she knows what she's dealing with?! So I'm pretty much fed up right now. I've swapped my diet to a low carb one hoping that will help but hasn't as yet any advice/help would be much appreciated thanks
 
Hi Amy, welcome

Well done for starting low carb, that's the way to manage this. My advice, especially if you have until May, is to get yourself a test meter if you haven't already, and blow your DN away with the improvements you will show when you see her. You will have the ammo to resist the inevitable 'eat more carbs' rubbish that she will almost certainly promote.

Meanwhile have a good read around, including the item linked first in my sig below (and the others!). Trudi Deakin's book is a worthwhile starting reference.

Good luck and ask any questions.
 
@Amyb83

Hello Amy and welcome to the forum

Here is the basic information we give to new members and I hope you will find it useful. Ask as many questions as you need to and someone will come and help.



BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 140,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
Hi Amy, sorry you're feeling off colour. Good avice from @sanguine there and @daisy1 will be along in a mo with more stuff to read*. It's confusing at the start but hope you can focus on the main message, which is many of us have been able to get a grip on our diabetes and control it very well. Best of luck and stick around.
*Oops, too late
 
Thank you, would I be best to buy a tester or should I get one from my nurse? I'll have a good read around the information and see where I get! Your right it's so confusing but I'm sure I'll slowly get used to it.
 
Hi Amy, your nurses actions are unacceptable. If she is saying you do not fit a typical type 2 then you have a good chance o being type 1 or type 1.5, so an urgent apt at the hospital should have been given.
I would suggest you ring the apts line of said hospital and see if an earlier apt can be given. Another option is to look on the hospital website where it will have diabetes services with telephone number for the nurses. Give them a ring and ask for advice.
 
Thank you, would I be best to buy a tester or should I get one from my nurse? I'll have a good read around the information and see where I get! Your right it's so confusing but I'm sure I'll slowly get used to it.

If you are T2 then you are better buying your own (eg SD Codefree, the strips are cheapest) but if you are LADA (T1.5) you should get them prescribed - T2s don't normally. Your HbA1c of 57 is not spectacularly high though, and you don't have to be overweight or 'older' to get T2. Your nurse sounds pretty clueless actually if that is the only reason she referred you.

But for peace of mind and an earlier appointment I would start making some noise.
 
Thanks for the advice. I have been in touch with my gp surgery and there are going to get in touch with the hospital and try to get me an earlier appointment. I just want to know what I'm dealing with then maybe I can manage it!
 
Hello and welcome to the forum.
Stick with the forum and you will get good advice.
All the best x
 
Hi. Your DN probably suspects Late onset T1 (LADA) and it's good that she has this possibility in mind rather than just assuming T2 as a lot of GPs do. LADA is more likely if you are young and slim. The treatment approach is similar i.e. a low-carb diet and possibly some medication. The optimum tablets for each type are slightly different. If you are diagnosed as a LADA it can progress at wildly varying rates. Insulin can be needed eventually but don't panic as it can take years to reach that point and insulin isn't a problem anyway. The low-carb diet is the most important thing to do at this time and get hold of a meter. Many manufacturers supply them free if asked or the SD Codefree is very low cost.
 
Thanks daibell, that actually makes sense as nurse said there are different branches of the two types so it sounds as if that's what she's thinking. Going to invest in a meter tomorrow to give me a little piece of mind,all the advice/comments have helped so much already think I've given myself information overload though!!
 
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