Feeling down

Hello Lilybella, sorry you have joined us with such sad news and just choked up thinking of your baby. I am an old Type 2 but I remember the fear and sorrow when my son was very ill more than 30 years ago but you don't forget. Lots of people here will support you and give good advice. Best wishes from Old Gramps.

Sorry to hear that your daughter has joined the T1 exclusive club.
It is an awful time for the parents as well so my thoughts are with you too. It can also affect siblings as they are caught in the middle of having to adjust themselves.
Many parents have shed many tears over diabetes. However, I will say this... It makes the family stronger in some ways... More so as you look at packaging on foods and realise what a load of sugar junkies the world has become. It will stand you all in better health with your food choices. Diabetic diets are healthier than the vast majority of non diabetics...
They'll be tears and frustrations a long the way but personally from my experience as a T1 I know that diabetes has made me a lot more aware of health and a better person than I would have been.
Sorry, Lilybella to hear of another child joining our exclusive club...best wishes to you and the whole of your family....

HI Lillybella

My daughter was also diagnosed when she was 2, it has been almost 2 years now since her diagnosis. I felt exactly the same as you but after doing much research I have come to terms that it was not my fault or anybody elses fault. Type 1 diabetes is unfortunately carried over in our genes and just needs some trigger to be activated. My husband and I have taken a positive approach to our daughters condition and have managed to get her glucose under control with A1C's ranging from 6.5 - 6.8, sure you will experience the highs and lows especially because your daughter is still growing, this alone triggers glucose levels to rise for no reason. When my daughter was diagnosed all I could think of was research, research and research, that would be my advice to you, get to know what you have & your daughter will have to deal with in the future, this helped me so much and put my mind to ease. But don't believe everything you come across, if I wasn't sure I asked our doctor or educator for more advice.

You and your family will be just fine, your daughter will soon adapt to her condition and will turn out to be a little trooper, they are so resilient and as a mother it will come naturally to you to provide the best possible care for your daughter.

Read your labels of your products that you buy and cut down on the carb intake, its the carbs that cause major spikes more than anything else.

My thoughts are with you and your family, be strong, the light is at the end of your tunnel and not to far either!!

Hello and welcome to the club, that no parent wants to belong too. My granddaughter was diagnosed with Type 1 at 2 1/2 years, her parents coped much better than me, I was blaming myself for not picking it up ( she was in the terrible two's) and I felt so guilty because I have type 1 too. But she is now 6 years old and a happy and a healthy child and enjoying school, her friends and her life. Honestly it will get a bit easier in time , it can be such a shock and also upsetting, it may take a little time for you and your family to adjust, but in time it won't seem so bad.
Take care and best wishes RRB

@Lilybella, some great advice so far and there isn't any more I could add.

The JDRF is a charity that helps support research into diabetes and also offers support for parents of type 1 children, here is a link to their website where you will find their contact details:

https://www.jdrf.org.uk/life-with-type-1-diabetes/for-parents

Best wishes.

That is great news that your daughter is taking it all in her stride, you must be so proud of her

Definitely do the course as it will expand your knowledge on carb counting and adjusting insulin doses, also there's a book that often gets mentioned on the net that is meant to be an excellent read, its called Type 1 Diabetes in Children, Adolescents and Young Adults and the author is Ragnar Hanas.

noblehead said:

That is great news that your daughter is taking it all in her stride, you must be so proud of her

Definitely do the course as it will expand your knowledge on carb counting and adjusting insulin doses, also there's a book that often gets mentioned on the net that is meant to be an excellent read, its called Type 1 Diabetes in Children, Adolescents and Young Adults and the author is Ragnar Hanas.

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Yes noble head great advice this book is my bible! Taught me so much.

Gemmablower said:

Yes noble head great advice this book is my bible! Taught me so much.

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That's good to know, its nice to get some feedback on the books that are recommended on the forum

Just keep thinking of the things you have... it sounds like all you need. So maybe there are other things missing or you may not be happy with them. Try laughter therapy if you are stressed. It should help your levels back to happiness.

How are you coping now, any better ?

RRB