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Type 1 Diabetes
Feeling Ill & at the end of my tether!
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<blockquote data-quote="ivinghoe" data-source="post: 412574" data-attributes="member: 47243"><p>Hello Ruby </p><p>I'm 49 and have been T1 for about 36 years. I`m on a MDI regime like you but use lantus as I became allergic to levemir.</p><p>You should be seeing a diabetes specialist every 6 months or so. Your hba1c should also be checked at least twice a year too.</p><p>See your GP and ask him to be reffered to your local hospital clinic asap.</p><p>I self fund a cgm now (I was loaned a medtronic guardian but I decided to hand it in and buy my own Dexcom G4) </p><p> It is quite expensive but I've found mine really helpful.</p><p></p><p>I dont know if you have read "Think Like a Pancreas" by Gary Scheiner but if you havent I would suggest you do as it will help you understand your control problems and how to solve them...plus you`ll probably end up being better informed than your gp in regards to your own diabetes.</p><p></p><p>If you suspect you're having hypos then the best thing you can do is test through the night and see whats happening. Its tough to do but well worth the effort. I was feeling exactly the same as you, totally exhausted and running on empty day in day out.</p><p> I read a few posts on here about how to test my basal doses properly and read the book above. I feel way better now.. not 100% but a lot better. A lot of hypos and apparently random ones at that seem to be caused by too high a basal rate so in my case I would make sure its right by doing some proper tests through a couple of different nights.</p><p>I thought my doctors and nurses knew best... but they dont.. they dont live your life and can only advise you on whatever data you can provide them.</p><p>In my case I found my team could only help me if I made sure I kept a proper hand written daily diary, imho meter data is useless without it. So if you do get to see a DSN make sure you bring as much info as you can.. the more you bring the better the advice they will be able to give you.</p><p>Alan</p></blockquote><p></p>
[QUOTE="ivinghoe, post: 412574, member: 47243"] Hello Ruby I'm 49 and have been T1 for about 36 years. I`m on a MDI regime like you but use lantus as I became allergic to levemir. You should be seeing a diabetes specialist every 6 months or so. Your hba1c should also be checked at least twice a year too. See your GP and ask him to be reffered to your local hospital clinic asap. I self fund a cgm now (I was loaned a medtronic guardian but I decided to hand it in and buy my own Dexcom G4) It is quite expensive but I've found mine really helpful. I dont know if you have read "Think Like a Pancreas" by Gary Scheiner but if you havent I would suggest you do as it will help you understand your control problems and how to solve them...plus you`ll probably end up being better informed than your gp in regards to your own diabetes. If you suspect you're having hypos then the best thing you can do is test through the night and see whats happening. Its tough to do but well worth the effort. I was feeling exactly the same as you, totally exhausted and running on empty day in day out. I read a few posts on here about how to test my basal doses properly and read the book above. I feel way better now.. not 100% but a lot better. A lot of hypos and apparently random ones at that seem to be caused by too high a basal rate so in my case I would make sure its right by doing some proper tests through a couple of different nights. I thought my doctors and nurses knew best... but they dont.. they dont live your life and can only advise you on whatever data you can provide them. In my case I found my team could only help me if I made sure I kept a proper hand written daily diary, imho meter data is useless without it. So if you do get to see a DSN make sure you bring as much info as you can.. the more you bring the better the advice they will be able to give you. Alan [/QUOTE]
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