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Type 1 Diabetes
Feeling Ill & at the end of my tether!
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<blockquote data-quote="Juicyj" data-source="post: 412595" data-attributes="member: 53162"><p>Hello Rubyloo,</p><p></p><p>Sorry to hear you are feeling like this, it's easy to understand why with the care (or lack of) that you have and some very good advice given here.</p><p></p><p>I've only been T1 a year but struggled mentally with handling it and have seen a doctor 3-4 times now (each time a different one) to find out about how I can deal mentally with this, to be honest they have all sat there and nodded and not done anything, which has left me feeling even more down, but I would go so far as to say that i've felt that each time i've really had to explain type 1 to them and what it means to me and that's really what you have to do, at my last visit the doctor did help but only after a long discussion which stated with him looking at me as if I didnt have a clue (however thinking about it afterwards - I dont think he could really fully understand the condition and how it was affecting me). Write down a list of everything that you are struggling with and dont leave empty handed - make sure you speak about each point, if it's written down you wont forget anything. Physically I am ok with type 1, but mentally I find it so draining and i've just also been on DAFNE which was great for training you to look after yourself but not how to mentally adapt to the condition - to be fair I dont think it matters how long you've had it, problems can manifest themselves over time and if not dealt with it can have a pressure cooker effect, so please go and blow your steam at the NHS - they score points on managing their diabetes patients, so it's in their interest too in regards to funding that you are well and looking after yourself. </p><p></p><p>Think like a pancreas is a great book and so is Dr Bernsteins book - unfortunately with this condition you have to manage it - no one else can do it, so the more of an expert you become the better, study the condition and it will help you gain confidence in knowing more - also each trust has a set number of CGMs so your DSN will be able to allocate one to you - keep on at them for this.</p><p></p><p>Good luck and keep posting on here, helps to talk :thumbup:</p></blockquote><p></p>
[QUOTE="Juicyj, post: 412595, member: 53162"] Hello Rubyloo, Sorry to hear you are feeling like this, it's easy to understand why with the care (or lack of) that you have and some very good advice given here. I've only been T1 a year but struggled mentally with handling it and have seen a doctor 3-4 times now (each time a different one) to find out about how I can deal mentally with this, to be honest they have all sat there and nodded and not done anything, which has left me feeling even more down, but I would go so far as to say that i've felt that each time i've really had to explain type 1 to them and what it means to me and that's really what you have to do, at my last visit the doctor did help but only after a long discussion which stated with him looking at me as if I didnt have a clue (however thinking about it afterwards - I dont think he could really fully understand the condition and how it was affecting me). Write down a list of everything that you are struggling with and dont leave empty handed - make sure you speak about each point, if it's written down you wont forget anything. Physically I am ok with type 1, but mentally I find it so draining and i've just also been on DAFNE which was great for training you to look after yourself but not how to mentally adapt to the condition - to be fair I dont think it matters how long you've had it, problems can manifest themselves over time and if not dealt with it can have a pressure cooker effect, so please go and blow your steam at the NHS - they score points on managing their diabetes patients, so it's in their interest too in regards to funding that you are well and looking after yourself. Think like a pancreas is a great book and so is Dr Bernsteins book - unfortunately with this condition you have to manage it - no one else can do it, so the more of an expert you become the better, study the condition and it will help you gain confidence in knowing more - also each trust has a set number of CGMs so your DSN will be able to allocate one to you - keep on at them for this. Good luck and keep posting on here, helps to talk :thumbup: [/QUOTE]
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