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Finally Fired my GP This Morning
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<blockquote data-quote="JoKalsbeek" data-source="post: 1957098" data-attributes="member: 401801"><p>Hey [USER=498395]@MEValentijn[/USER],</p><p></p><p>Ah, isn't it lovely when a GP is absolutely clueless? ME and diabetes are both issues that require specialist care, and a GP just isn't in the know enough, more often than not. But since GP's get 10 minutes per patient and have an incredible workload, I suppose it's too much to ask to keep up to date on developments. (Doesn't give one a licence to be an absolute ***** to you, though!) I hope the new doc'll treat you better, even if from the same practice.</p><p></p><p>I was misdiagnosed with ME as a teen. Turns out it was "just" vitamin d deficiency (resulting in a spine that's all over the place, thanks to the resulting osteamalacia), and it made me fatigued all the time, not to mention the brainfog, increased depression and all that... So I don't know how ME responds to certain foods, though I remember from the books I read back then that food can make it worse. Can I ask whether you <em>might</em> have experienced keto flu? If you reduce carbs drastically you may feel flu-ish for a week or two. Normally it's days, but when you're like us, as in, with an impaired metabolism, it lasts longer... Wonderful eh. Basically everything hurts, from head to muscles and joints, peeing like you're made exclusively out of water, fatigue factors in as well... Because if it WAS keto-flu, then it's a matter of just "uitzingen", with the aid of salt, bone broth and coconutmilk/water to replenish electrolytes. Once those few weeks are over your bloodsugars'd improve dramatically. <strong><em>IF you would choose that, and IF that was all it was to begin with.</em></strong> There's quite a bit online about how a ketogenic diet can resolve ME (and is happens to often put diabetes in remission), so maybe that's a worth a google? <a href="https://www.healthrising.org/blog/2017/06/13/loris-chronic-fatigue-syndrome-fibromyalgia-ketogenic-success-story/" target="_blank">https://www.healthrising.org/blog/2017/06/13/loris-chronic-fatigue-syndrome-fibromyalgia-ketogenic-success-story/</a> for instance... No idea if this is helpful or just stuff you already know/tried, but I just remember all too well what it was like not to function at all. It happened again when other stuff cropped up (rheumatism, hypothyroid, diabetes.... I crashed every time before diagnosis).</p><p></p><p>If you're interested in keto, check the dietdoctor.com website. If not, well... I hope your new doc'll be of more use to you, because the way things are now really isn't acceptable. Oh, and one more thing: if you do pick up a ketogenic diet (20 grams of carbs a day or less), keep an eye on your bloodsugars religiously, because I do think that with your meds you'd probably hypo. If you feel off, test. And test before a meal and 2 hours after the first bite, if it went up more than 2.0 mmol/l, it was carbier than your body could handle.</p><p>Veel succes er mee!</p><p>Jo</p><p></p><p>PS: I vaguely remember ME being an inflammatory disease...? I know I was diagnosed based mainly on the hightened blood sedimentation combined with my symptoms, even if it was the wrong diagnosis. Keto is an anti-inflammatory diet. Which is also why I can just have milk now without my rheumatism turning my hands into fire.</p></blockquote><p></p>
[QUOTE="JoKalsbeek, post: 1957098, member: 401801"] Hey [USER=498395]@MEValentijn[/USER], Ah, isn't it lovely when a GP is absolutely clueless? ME and diabetes are both issues that require specialist care, and a GP just isn't in the know enough, more often than not. But since GP's get 10 minutes per patient and have an incredible workload, I suppose it's too much to ask to keep up to date on developments. (Doesn't give one a licence to be an absolute ***** to you, though!) I hope the new doc'll treat you better, even if from the same practice. I was misdiagnosed with ME as a teen. Turns out it was "just" vitamin d deficiency (resulting in a spine that's all over the place, thanks to the resulting osteamalacia), and it made me fatigued all the time, not to mention the brainfog, increased depression and all that... So I don't know how ME responds to certain foods, though I remember from the books I read back then that food can make it worse. Can I ask whether you [I]might[/I] have experienced keto flu? If you reduce carbs drastically you may feel flu-ish for a week or two. Normally it's days, but when you're like us, as in, with an impaired metabolism, it lasts longer... Wonderful eh. Basically everything hurts, from head to muscles and joints, peeing like you're made exclusively out of water, fatigue factors in as well... Because if it WAS keto-flu, then it's a matter of just "uitzingen", with the aid of salt, bone broth and coconutmilk/water to replenish electrolytes. Once those few weeks are over your bloodsugars'd improve dramatically. [B][I]IF you would choose that, and IF that was all it was to begin with.[/I][/B] There's quite a bit online about how a ketogenic diet can resolve ME (and is happens to often put diabetes in remission), so maybe that's a worth a google? [URL]https://www.healthrising.org/blog/2017/06/13/loris-chronic-fatigue-syndrome-fibromyalgia-ketogenic-success-story/[/URL] for instance... No idea if this is helpful or just stuff you already know/tried, but I just remember all too well what it was like not to function at all. It happened again when other stuff cropped up (rheumatism, hypothyroid, diabetes.... I crashed every time before diagnosis). If you're interested in keto, check the dietdoctor.com website. If not, well... I hope your new doc'll be of more use to you, because the way things are now really isn't acceptable. Oh, and one more thing: if you do pick up a ketogenic diet (20 grams of carbs a day or less), keep an eye on your bloodsugars religiously, because I do think that with your meds you'd probably hypo. If you feel off, test. And test before a meal and 2 hours after the first bite, if it went up more than 2.0 mmol/l, it was carbier than your body could handle. Veel succes er mee! Jo PS: I vaguely remember ME being an inflammatory disease...? I know I was diagnosed based mainly on the hightened blood sedimentation combined with my symptoms, even if it was the wrong diagnosis. Keto is an anti-inflammatory diet. Which is also why I can just have milk now without my rheumatism turning my hands into fire. [/QUOTE]
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