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Type 1 Diabetes
Freestyle Libre cost/funding?
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<blockquote data-quote="MDJ" data-source="post: 2035437" data-attributes="member: 503559"><p>Unfortunately, the post code lottery is still very much in force with most CCG's. Many CCG's (including mine which is East & North Herts) have not yet updated their guidance to reflect the new NHS England criteria for the prescribing of Libre. As of the end of April my CCG are still utilising the guidance they created at the beginning of 2018 which is very strict and only allows Libre for a very limited range or T1's. In an email to me when I complained that they were not following the NHS England guidance they wrote back to me and told me that they will look to "possibly" update their guidance for prescribing Libre until sometime towards the end of Q1 2018/19 and even then that I must "remember that the NHS England guidance is not a requirement or mandatory that that they will look to prescribe the Libre only under circumstances where the CCG determines that the clinical benefits outweigh the cost of provision".</p><p></p><p>I also know of some CCG's (such as mid -Essex CCG) who have updated their guidance but are still not supporting the the NHS England guidance in full. Specifically, while the NHS England guidance says that Libre should be prescribed to T1's who test greater than 8 time per day as one of the criteria, mid-Essex CCG have rewritten that particular criteria element to say that Libre should be prescribed to T1's who test over 9.5 time per day AND have an HbA1c greater than 8.5. This is not an element that is included in the NHS England guidance.</p><p></p><p>There are people working to deal with these problems with CCG and their implementation of the NHS England guidance (in particular Partha Kar of NHS England) but we still have a fight on our hands before some VVG's are going to play ball and follow the NHS England guidance.</p><p></p><p>The fight is not over yet in some part of the country.</p></blockquote><p></p>
[QUOTE="MDJ, post: 2035437, member: 503559"] Unfortunately, the post code lottery is still very much in force with most CCG's. Many CCG's (including mine which is East & North Herts) have not yet updated their guidance to reflect the new NHS England criteria for the prescribing of Libre. As of the end of April my CCG are still utilising the guidance they created at the beginning of 2018 which is very strict and only allows Libre for a very limited range or T1's. In an email to me when I complained that they were not following the NHS England guidance they wrote back to me and told me that they will look to "possibly" update their guidance for prescribing Libre until sometime towards the end of Q1 2018/19 and even then that I must "remember that the NHS England guidance is not a requirement or mandatory that that they will look to prescribe the Libre only under circumstances where the CCG determines that the clinical benefits outweigh the cost of provision". I also know of some CCG's (such as mid -Essex CCG) who have updated their guidance but are still not supporting the the NHS England guidance in full. Specifically, while the NHS England guidance says that Libre should be prescribed to T1's who test greater than 8 time per day as one of the criteria, mid-Essex CCG have rewritten that particular criteria element to say that Libre should be prescribed to T1's who test over 9.5 time per day AND have an HbA1c greater than 8.5. This is not an element that is included in the NHS England guidance. There are people working to deal with these problems with CCG and their implementation of the NHS England guidance (in particular Partha Kar of NHS England) but we still have a fight on our hands before some VVG's are going to play ball and follow the NHS England guidance. The fight is not over yet in some part of the country. [/QUOTE]
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