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Freestyle Libre sensor Serious inaccuracies- Help us improve this!
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<blockquote data-quote="TuviaDror" data-source="post: 1926433" data-attributes="member: 495267"><p>Tim,</p><p>Thank you very much. I was indeed missing a point and thanks for elaborating. I REALLY appreciate your comments and taking the time to share with me these pieces.! The last thing I, or anyone in this great community i hope, would like to do is deprive the so many successful Libre users of what was obtained. Why should we? I'm sure you and the rest of the community to, would be happy to increase the size of population benefiting from it (including us few, but not so few, who had "issues" with it). I really see it as a good pattern presenter. I'm just afraid that despite the handful of warnings, diabetics still use it not only as a pattern displayer but also deduce from it the bolus required. Wouldn't you if you were not that technically Savvy??- I mean if someone says to you you have 200, or 250 mg/dL in your blood, wouldn't you give a bolus? On the flip-side, if you have a display of 100 or 90 by the Libre and feel fine (with no physiological indications of a high sugar), would you even consider giving a bolus (or doing a finger blood test)? By missing that bolus, your avergae BG can go up (and obvioulsy teh HbA1c as well). Hence....I was just thinking that perhaps The libre could just present a graph, without actual numbers.</p><p></p><p>Or perhaps even if Libre would provide, instead of numbers, just HI LOW and MEDIUM and perhaps show a graph of what they are measuring (without displaying actual numbers), then it would be safer and no one would gauge of it for actual blouses (or missing on them). That's all i suggest (and Abbott aren't getting back to me, just totally ignoring me). Maybe you have a better suggestion? Can you perhaps discuss with them?</p><p></p><p>Incidentally, i am posting below a response i got on my USA thread in the ADA community. Seems like in the USA, issues i reported are occurring to... I truly hope sales of teh Libre will NOT fall but increase, together with <strong><u>solving/attending</u></strong> to the issues i reported....</p><p></p><p>Any advice of yours, as to solving this issue, is much appreciated.</p><p>Thx again!</p><p></p><p><span style="font-size: 15px"><strong><a href="https://community.diabetes.org/discuss/viewtopic/1/14762?post_id=156906#p156906" target="_blank">Re: Freestyle Libre sensor - Launched too early? Serious inaccuracies- Help us improve this!</a></strong></span></p><p>Posted by <a href="https://community.diabetes.org/profile/130" target="_blank">Caloh</a> on Nov 19, 2018 3:05 pm</p><p></p><p>Yes, I did have a similar problem with the Libre, in that it was reading way too low compared to a meter. At first I trusted it, and treated the false lows, not knowing that the info was false. So, I too had an increase in my A1C. I stopping using it, went back to my meter and my next A1C was back to my normal.</p><p></p><p> This past Nov. 10 there was a Diabetes Expo at our local medical school and I spoke to the representative from Libre. I told him about how it read low for me and how I wished one could calibrate it with a finger-stick like ordinary CGMs. He would hear non of my complaints, insisting that the Libre was just as accurate as a meter. </p><p></p><p>While the Libre is easy, even fun, to use, it is very misleading. I think when lots of us start getting higher A1Cs, sales will fall off and it is the company's fault. There are other products in the wind that will be coming out in the next year. I hope they will be more accurate.</p></blockquote><p></p>
[QUOTE="TuviaDror, post: 1926433, member: 495267"] Tim, Thank you very much. I was indeed missing a point and thanks for elaborating. I REALLY appreciate your comments and taking the time to share with me these pieces.! The last thing I, or anyone in this great community i hope, would like to do is deprive the so many successful Libre users of what was obtained. Why should we? I'm sure you and the rest of the community to, would be happy to increase the size of population benefiting from it (including us few, but not so few, who had "issues" with it). I really see it as a good pattern presenter. I'm just afraid that despite the handful of warnings, diabetics still use it not only as a pattern displayer but also deduce from it the bolus required. Wouldn't you if you were not that technically Savvy??- I mean if someone says to you you have 200, or 250 mg/dL in your blood, wouldn't you give a bolus? On the flip-side, if you have a display of 100 or 90 by the Libre and feel fine (with no physiological indications of a high sugar), would you even consider giving a bolus (or doing a finger blood test)? By missing that bolus, your avergae BG can go up (and obvioulsy teh HbA1c as well). Hence....I was just thinking that perhaps The libre could just present a graph, without actual numbers. Or perhaps even if Libre would provide, instead of numbers, just HI LOW and MEDIUM and perhaps show a graph of what they are measuring (without displaying actual numbers), then it would be safer and no one would gauge of it for actual blouses (or missing on them). That's all i suggest (and Abbott aren't getting back to me, just totally ignoring me). Maybe you have a better suggestion? Can you perhaps discuss with them? Incidentally, i am posting below a response i got on my USA thread in the ADA community. Seems like in the USA, issues i reported are occurring to... I truly hope sales of teh Libre will NOT fall but increase, together with [B][U]solving/attending[/U][/B] to the issues i reported.... Any advice of yours, as to solving this issue, is much appreciated. Thx again! [SIZE=4][B][URL='https://community.diabetes.org/discuss/viewtopic/1/14762?post_id=156906#p156906']Re: Freestyle Libre sensor - Launched too early? Serious inaccuracies- Help us improve this![/URL][/B][/SIZE] Posted by [URL='https://community.diabetes.org/profile/130']Caloh[/URL] on Nov 19, 2018 3:05 pm Yes, I did have a similar problem with the Libre, in that it was reading way too low compared to a meter. At first I trusted it, and treated the false lows, not knowing that the info was false. So, I too had an increase in my A1C. I stopping using it, went back to my meter and my next A1C was back to my normal. This past Nov. 10 there was a Diabetes Expo at our local medical school and I spoke to the representative from Libre. I told him about how it read low for me and how I wished one could calibrate it with a finger-stick like ordinary CGMs. He would hear non of my complaints, insisting that the Libre was just as accurate as a meter. While the Libre is easy, even fun, to use, it is very misleading. I think when lots of us start getting higher A1Cs, sales will fall off and it is the company's fault. There are other products in the wind that will be coming out in the next year. I hope they will be more accurate. [/QUOTE]
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