Thank you for your advice. It’s all so much to take in and to try to understand so I’ll,need to read through it a few times. It doesn’t help when I have so called professionals...those who you really trust...telling you to eat as many complex carbs as possible for slow release energy, a dietitian telling me to eat porridge every morning and potato’s and pasta through the day.
All these things I’ve tried and one day I’ll be fine and the next I’ll have hypo after hypo and I don’t know what the hell I’m doing and I can’t function and feel permanently exhausted and drained from living with them day in and day out. I went to watch my daughter play in a rugby match today and fell asleep on the floor in a hypo propped up against the clubhouse and was woken by some man asking if I’m ok. I have no idea if I’m ok all I know is I want to sleep.
It’s ridiculous that even walking upstairs to the bathroom can trigger a hypo. Or even ironing??
My window of feeling desperately hungry is far smaller now and I get to a point where actually I can’t be bothered to eat or treat it. I’d prefer to sleep. Or sometimes I don’t actually recognise I’m having a hypo and it’s only when I get really aggy or confused or falling all over the place I take my sugars and they’re low. (Around 2.0)
I don’t even know the correct way of treating a hypo? In hospital they either give me fresh orange juice or glucogel/glucotabs and it works fast so that’s what I do at home but I have less of it at home so it’s just enough to lift it to around 4.5
Sometimes I wish it would just take me as I’m too tired to cope with this now. Having this forum is giving me a small ray of hope that maybe I can work out exactly what all the triggers are (which seems impossible due to inconsistencies) and maybe even claim my life back. Thank you
Hi, again.
I can empathise and sympathise, that is where I was seven years ago.
It is the carbs, I was told to eat porridge as a healthy slow release complex carb for breakfast, I would spike very high, the trigger being the oats, because i am lactose intolerant, I only ate the porridge with water. I was accused of having milk or sugars with it to achieve such a spike, but I realised it was grains, carbs!
I would have a sandwich for my lunch, again the trigger was wheat, whole grain bread, still went hyper/hypo.
Then of course a jacket potato for dinner!
By that time I had had three hypers, three hypos and feeling awful and ill, very similar to yourself, the symptoms were really bad. The roller coaster ride of blood sugar levels was literally making me so ill, I wasn't aware how bad, and I was really lucky to find an endocrinologist who understood what was going on.. or........
My health was poor, my weight gain was really concerning me! And like you didn't know what to do and trusted my health care!
I can only advise to read the forum, how many have had success with avoiding the carbs, I always say that I'm carb intolerant, it's easier to describe it that way, it is really hard to understand, that so called healthy foods, basic foodstuff, what you were continually told to eat because it is nutritious and healthy.
Well, not for me!
It is definitely the carbs that makes me ill!
How I treat a hypo if you want to avoid the rebound effect. I would not have glucose tablets, too quick and a trigger for the rebound effect. Glucose is probably the worst treatment for a hypo, you are not diabetic, you are not on insulin, you do not want or need quick glucose/sugar/carbs! It is food that causes the trigger and if you go hypo it is because of the carbs, quick glucose and anything with sugar in it!
Others have similar advice, because it involves a small amount of carbs, say like me, a plain biscuit or a piece of cheese, something that will nudge your blood sugar levels up a little, to not cause a trigger, just to get back to normal levels. Once there, eat a small very low carb meal, check your blood levels every fifteen minutes until you are in normal levels. If you have as you have been advised, it is far too much, too quick and will push your blood sugar levels up until you trigger again.
The best advice I can give you is to avoid the triggers, by avoiding those foods that trigger the hyper, and of course the insulin overshoot that drives you back down into hypo episodes. No hypers, no hypos!
It is that order, carbs, hyper, overshoot, hypo., too high the hypo treatment, the trigger, hyper, overshoot, hypo and again.
You wake up in normal levels and the longer you are in normal levels, your body will adjust to being there, your body will like being in continuous good levels, your health improves being in normal levels. The symptoms will eventually recede, the more you are in normal levels.
It really does work.
Do try doing without carbs for a couple of weeks, just to see what happens.
I took that advice when I arrived here on this forum and have not looked back.
I got my life back, I work full time, and really healthy.
I did it, have the belief that some of the so called experts in the medical community, have not got the understanding or training in Hypoglycaemia, that my experience has shown me. I had to test, trial, experiment, use my food diary and use it to convince my endocrinologist that for me, carbs are bad for me, he has backed my reasoning, I have a science paper on using a drug to help control my RH, it helps with initial insulin response but doesn't prevent the hypos.
I have RH, I avoid carbs! It is now nearly six years since I was diagnosed, because I avoid carbs, I had my last hypo over five years ago on my last eOGTT.
No hypos at all. I have had a couple of hypers, but not gone hypo because of using a small very low carb meal, to be in control of my body.
I would read up on a Keto diet, it is based on protein and fats!
Also a website called dietdoctor.
I'll tag
@Brunneria to give you a link.
It is not easy, it takes a lot of will power, but worth it.
My best wishes, hope you are feeling better soon.