hanadr
Expert
- Messages
- 8,157
- Dislikes
- soaps on telly and people talking about the characters as if they were real.
T1 husband has chronic kidney disease, among his diabetic complications. He's been attending a pre-dialysis clinic at the hospital. The CKD caused anaemia, which was so severe,he couldn't gteet upstairs without stopping half way for breath. He had to have an iron infusion a few months back and was prescribed EPO, which has to be delivered to the house by refridgerated van and kept in the fridge and which costs megabucks per dose.
The EPO came last week( in 6 pre loaded pens) and T1 dropped in to the pre-dialysis nurses this morning on his way to the podiatry department( another little complication is Charcot feet)
He asked about taking the EPO and the nurse said she needs to make him an appointment to learn how to inject himself. T1 pointed out he's been doing that several times a day for 35 years. Nurse then went to check his notes about something else and said he no longer needs the EPO. His Haemoglobin is well into the target range, from the latest blood tests. Now the 3rd lot since the infusion. So it's staying up.
T1 has been Fairly good about BG control, since the kidney problem began to raise its head. Carbs and insulin reduced significantly, control now much less of a roller coaster than formerly. Last kidney appointment said the CKD is stable.
T1 thinks they won't admit he's improving, but he thinks he is and why didn't I now what I know now all those years ago. He agrees my help has been more use than the diabetes clinic.
I'm just relieved that dialysis and kidney transplants have take a step further away.
The EPO came last week( in 6 pre loaded pens) and T1 dropped in to the pre-dialysis nurses this morning on his way to the podiatry department( another little complication is Charcot feet)
He asked about taking the EPO and the nurse said she needs to make him an appointment to learn how to inject himself. T1 pointed out he's been doing that several times a day for 35 years. Nurse then went to check his notes about something else and said he no longer needs the EPO. His Haemoglobin is well into the target range, from the latest blood tests. Now the 3rd lot since the infusion. So it's staying up.
T1 has been Fairly good about BG control, since the kidney problem began to raise its head. Carbs and insulin reduced significantly, control now much less of a roller coaster than formerly. Last kidney appointment said the CKD is stable.
T1 thinks they won't admit he's improving, but he thinks he is and why didn't I now what I know now all those years ago. He agrees my help has been more use than the diabetes clinic.
I'm just relieved that dialysis and kidney transplants have take a step further away.
