jingyd36
Well-Known Member
- Messages
- 135
- Type of diabetes
- Don't have diabetes
I have increased to 75mg this weekend, I expect to need nearer 100mg or more until I feel well. That's why I am confused my GP wants to do even more tests.
I have increased to 75mg this weekend, I expect to need nearer 100mg or more until I feel well. That's why I am confused my GP wants to do even more tests.if ones thyroid gland does not work at all 50 micrograms of levothyroxine is also far too little..., a more relevant endingdose would be like 100 - 150 micrograms of levothyroxine...
http://www.globalrph.com/thyroid_calc.htm
I have increased to 75mg this weekend, I expect to need nearer 100mg or more until I feel well. That's why I am confused my GP wants to do even more tests.
My TSH was 9.28 last May, it had climbed from 6 in the January and by May at 9.28 and FT4 around 15 (range 12-22) my GP trialed 25mg of levothyroxine. I stayed at that and in July the TSH had come down to 6 ish and my FT4 was around 16. GP was happy. He suggested an increase but I was afraid at the time so refused it, big mistake. September and TSH was 8, FT4 15 ish. He said I had to go to 50mg. I did and November bloods showed TSH was 2.6 and FT4 19. Happy so we stayed at 50mg for 10 weeks. I tested last week and TSH had risen again to 5.7 and FT4 dipped to 17. GP has now suggested 75mg which I have started.Yes But GPs wants to raise it very slowly because it is best for other parts of the body to change levels more slowly and also easier to see when one reaches the right level , sometimes one only knows that after maybe 3 month on the same level or so . To older persons it can be hard for the heart to take a fast rise in levels and the more adding diseases the riskier . But What I would fear is that the GP is satisfied with a too low level ...
The ideal level is of TSH = T S H ideal 0.9- 1.0 so if he or she wants you on a much higher level than that I would not be satisfied myself unless having a heart condition or other servere healt problems , too High TSH is equal to too low levels of thyroid hormons and that in it self can cause depressions and Brain Fog and other mentally conditions of feeling bad well the opposit can also lead to mental problems as stress and fatigue
My TSH was 9.28 last May, it had climbed from 6 in the January and by May at 9.28 and FT4 around 15 (range 12-22) my GP trialed 25mg of levothyroxine. I stayed at that and in July the TSH had come down to 6 ish and my FT4 was around 16. GP was happy. He suggested an increase but I was afraid at the time so refused it, big mistake. September and TSH was 8, FT4 15 ish. He said I had to go to 50mg. I did and November bloods showed TSH was 2.6 and FT4 19. Happy so we stayed at 50mg for 10 weeks. I tested last week and TSH had risen again to 5.7 and FT4 dipped to 17. GP has now suggested 75mg which I have started.
Do be guided by your test results on the thyroxine levels - you will find that the thyroid stimulating hormone is a very good indication of your requirements, and when it rises accepting a higher level of replacement is wise.
Hi,
Have you considered it might not just been the thyroid? You said you had been depressed this can also cause chronic fatigue. Maybe the combination of the thyroid and depression may be the solution. As its been said a raised sugar level after eating a naked bar is probably nothing to worry about. I know diabetes causes tiredness but it's worth asking your GP whether it could just be the depression - I can sleep for up to 20 hours some days just with that blackened beast beside me. Give it some thought. Only if your agoraphobic and not enjoying life you may just need some antidepressant or if your already on one then having it tweaked or changed.
Good luck
Maggie
Hi Carol@jingyd36 Do you have your results - TSH, T4 and T3? If you are not converting T4 to T3 you will feel very tired and walk around like a zombie.
To be honest Maggie I am wondering if you're right. I think I am very depressed at the moment, the last year has turned my world upside down. Well the last 4 years haven't been easy since my grandmother passed in 2012 and my brother attacked me 3 months later and I lost my mother and sisters because of his behaviour and me not willing to forgive him again for hurting me and my family. I was resented and cut out. It's been awful and it led to severe anxiety and agoraphobia. I had therapy and went on Mirtzapine for anxiety, insomnia and i couldn't eat, I was painfully thin at 84lbs. I only went on 15mg but it helped and by summer 2014 I was out and about again feeling well. Then in the summer of 2016 I felt very fatigued, i couldn't work out why. That's when they ran tests and my thyroid was underactive (i posted my results above to Carol) but GP said it was fine. I continued to feel tired but I could push through just about. Then in November 2015 my son planted a bombshell that he wanted to give up, he was being badly bullied and crippled with panic attacks. He was 11. I was heartbroken to discover the bulling from primary school had continued. He became too afraid to got to school due to chronic panic attacks, school couldn't cope with it and were sending him home daily. During this time my daughter was ill for 3 months with infections and had 2 stays in hospital and during a blood test I had to have I had a severe panic attack in the nurses room. My GP referred my son to teh childrens mental health team who said I would be best to help him as I had experience of anxiety and they put him on a long waiting list. I was told to hide ties, knives etc... Horrific. I collapsed and was bed ridden with severe stress for 3 weeks. My GP came out and diagnosed stress, ran bloods (all normal) and told I needed rest and some support. I had none as my hubby was in a new job, he worked long hours and I had no family. Stupidly i went to my mother and called her, I asked her to support me and my son, she rejected me. I was heartbroken all over again. It was during all of this that I became VERY unwell with chronic fatigue and diagnosed with depression which they believed was situational.Hi,
Have you considered it might not just been the thyroid? You said you had been depressed this can also cause chronic fatigue. Maybe the combination of the thyroid and depression may be the solution. As its been said a raised sugar level after eating a naked bar is probably nothing to worry about. I know diabetes causes tiredness but it's worth asking your GP whether it could just be the depression - I can sleep for up to 20 hours some days just with that blackened beast beside me. Give it some thought. Only if your agoraphobic and not enjoying life you may just need some antidepressant or if your already on one then having it tweaked or changed.
Good luck
Maggie
Thank you.Do be guided by your test results on the thyroxine levels - you will find that the thyroid stimulating hormone is a very good indication of your requirements, and when it rises accepting a higher level of replacement is wise.
To be honest Maggie I am wondering if you're right. I think I am very depressed at the moment, the last year has turned my world upside down. Well the last 4 years haven't been easy since my grandmother passed in 2012 and my brother attacked me 3 months later and I lost my mother and sisters because of his behaviour and me not willing to forgive him again for hurting me and my family. I was resented and cut out. It's been awful and it led to severe anxiety and agoraphobia. I had therapy and went on Mirtzapine for anxiety, insomnia and i couldn't eat, I was painfully thin at 84lbs. I only went on 15mg but it helped and by summer 2014 I was out and about again feeling well. Then in the summer of 2016 I felt very fatigued, i couldn't work out why. That's when they ran tests and my thyroid was underactive (i posted my results above to Carol) but GP said it was fine. I continued to feel tired but I could push through just about. Then in November 2015 my son planted a bombshell that he wanted to give up, he was being badly bullied and crippled with panic attacks. He was 11. I was heartbroken to discover the bulling from primary school had continued. He became too afraid to got to school due to chronic panic attacks, school couldn't cope with it and were sending him home daily. During this time my daughter was ill for 3 months with infections and had 2 stays in hospital and during a blood test I had to have I had a severe panic attack in the nurses room. My GP referred my son to teh childrens mental health team who said I would be best to help him as I had experience of anxiety and they put him on a long waiting list. I was told to hide ties, knives etc... Horrific. I collapsed and was bed ridden with severe stress for 3 weeks. My GP came out and diagnosed stress, ran bloods (all normal) and told I needed rest and some support. I had none as my hubby was in a new job, he worked long hours and I had no family. Stupidly i went to my mother and called her, I asked her to support me and my son, she rejected me. I was heartbroken all over again. It was during all of this that I became VERY unwell with chronic fatigue and diagnosed with depression which they believed was situational.
I was having major energy crashes just doing housework, or if we did a family day out I'd be so weak on the way home and in bed for a day or 2 recovering. My GP said that was all anxiety related or I had chronic fatigue. It was these energy crashes that plagued me all year but my GP never ever took them seriously. I'd have 1 a week and on a day to day basis had chronic fatigue which I could manage by pacing myself. Then if I had a day of doing way too much housework, or we went out for too long I'd feel so weak and fatigued I'd have to rest. My mother still insisted on visiting the children once every 6 weeks or so, I'd allow it as the children missed her. I'd be polite and nice during her visits but once she left I'd be bed ridden for a day or 2. This still puzzles me why just seeing my mother or siblings lands me in bed with weak legs and fatigue? GP says emotional/anxiety come down.
I am depressed I can feel it. I laugh with my hubby and children. I smile alot but inside the level of faitgue makes me very low and I often take nothing in that my children say. I am listening but the brain fog doesn't let me take a word in, I am that exhausted and brain fogged. I cry alot when I am alone, I cry about how weak my legs are, I cry about the fatigue, I cry and feel fear about my GP constantly wanting to test more things. He last year even said I had depression and mood effects our energy. We then discovered I was underactive and put on thyroxine and now suddenly he wants to poke and prod and do more tests. In November he did a list of bloods as long as my body, he did loads and all ok. So I don't know what else he wants to test in just 2 weeks on an increase of thyroxine. I have just increased to 75mg 3 days ago.\
All of that causes me anxiety. I am anxious daily worried about why I feel so tired, why i have energy crashes if I go out, see my mother or overdo housework,. I worry what is wrong with me, is it something serious? is my high random sugar a worry? What if I never overcome this agoraphobia and can't attend my childrens graduations and weddings in the future. You name it i worry about it. All my anxiety and agoraphobia returned a year ago when my health isssues flared up and since then due to my health causing fatigue or maybe even the depression causing it, I am anxious and afraid to go out alone> I was back doing shops, walks, drives... now the most I can do is pick my kids up from school and even some days I can't do that if my faitgue is severe :-(
Can depression make you this tired do you think? I need to do an up to date depression test and speak to my GP. I don't feel suicidal or anyting like that, just very anxious, low and afraid of this fatigue and the constant worries about my health and future :-(
Sorry this got long, my heart just poured it all out.
Julie x
To be honest Maggie I am wondering if you're right. I think I am very depressed at the moment, the last year has turned my world upside down. Well the last 4 years haven't been easy since my grandmother passed in 2012 and my brother attacked me 3 months later and I lost my mother and sisters because of his behaviour and me not willing to forgive him again for hurting me and my family. I was resented and cut out. It's been awful and it led to severe anxiety and agoraphobia. I had therapy and went on Mirtzapine for anxiety, insomnia and i couldn't eat, I was painfully thin at 84lbs. I only went on 15mg but it helped and by summer 2014 I was out and about again feeling well. Then in the summer of 2016 I felt very fatigued, i couldn't work out why. That's when they ran tests and my thyroid was underactive (i posted my results above to Carol) but GP said it was fine. I continued to feel tired but I could push through just about. Then in November 2015 my son planted a bombshell that he wanted to give up, he was being badly bullied and crippled with panic attacks. He was 11. I was heartbroken to discover the bulling from primary school had continued. He became too afraid to got to school due to chronic panic attacks, school couldn't cope with it and were sending him home daily. During this time my daughter was ill for 3 months with infections and had 2 stays in hospital and during a blood test I had to have I had a severe panic attack in the nurses room. My GP referred my son to teh childrens mental health team who said I would be best to help him as I had experience of anxiety and they put him on a long waiting list. I was told to hide ties, knives etc... Horrific. I collapsed and was bed ridden with severe stress for 3 weeks. My GP came out and diagnosed stress, ran bloods (all normal) and told I needed rest and some support. I had none as my hubby was in a new job, he worked long hours and I had no family. Stupidly i went to my mother and called her, I asked her to support me and my son, she rejected me. I was heartbroken all over again. It was during all of this that I became VERY unwell with chronic fatigue and diagnosed with depression which they believed was situational.
I was having major energy crashes just doing housework, or if we did a family day out I'd be so weak on the way home and in bed for a day or 2 recovering. My GP said that was all anxiety related or I had chronic fatigue. It was these energy crashes that plagued me all year but my GP never ever took them seriously. I'd have 1 a week and on a day to day basis had chronic fatigue which I could manage by pacing myself. Then if I had a day of doing way too much housework, or we went out for too long I'd feel so weak and fatigued I'd have to rest. My mother still insisted on visiting the children once every 6 weeks or so, I'd allow it as the children missed her. I'd be polite and nice during her visits but once she left I'd be bed ridden for a day or 2. This still puzzles me why just seeing my mother or siblings lands me in bed with weak legs and fatigue? GP says emotional/anxiety come down.
I am depressed I can feel it. I laugh with my hubby and children. I smile alot but inside the level of faitgue makes me very low and I often take nothing in that my children say. I am listening but the brain fog doesn't let me take a word in, I am that exhausted and brain fogged. I cry alot when I am alone, I cry about how weak my legs are, I cry about the fatigue, I cry and feel fear about my GP constantly wanting to test more things. He last year even said I had depression and mood effects our energy. We then discovered I was underactive and put on thyroxine and now suddenly he wants to poke and prod and do more tests. In November he did a list of bloods as long as my body, he did loads and all ok. So I don't know what else he wants to test in just 2 weeks on an increase of thyroxine. I have just increased to 75mg 3 days ago.\
All of that causes me anxiety. I am anxious daily worried about why I feel so tired, why i have energy crashes if I go out, see my mother or overdo housework,. I worry what is wrong with me, is it something serious? is my high random sugar a worry? What if I never overcome this agoraphobia and can't attend my childrens graduations and weddings in the future. You name it i worry about it. All my anxiety and agoraphobia returned a year ago when my health isssues flared up and since then due to my health causing fatigue or maybe even the depression causing it, I am anxious and afraid to go out alone> I was back doing shops, walks, drives... now the most I can do is pick my kids up from school and even some days I can't do that if my faitgue is severe :-(
Can depression make you this tired do you think? I need to do an up to date depression test and speak to my GP. I don't feel suicidal or anyting like that, just very anxious, low and afraid of this fatigue and the constant worries about my health and future :-(
Sorry this got long, my heart just poured it all out.
Julie x
Thank you Carol.@jingyd36 - it looks like you are not converting T4 to T3, no wonder you feel so bad. If you go to HealthUnlocked forum website (they are very helpful) they will give you a list of Endocrinologists who are willing to treat you privately. The NHS will NOT treat you. I am seeing a private Endocrinologist at the moment.
Hi Julie,
You've had such a tough four years it's no wonder you are feeling so low. I think it could well be depression or at least a combination of Chronic fatigue and depression but I'm no Doctor.
You said you weren't suicidal which is good, but you can still be depressed with out suicidal thoughts. There are various degrees of depression, I'm a severe depressive, but if you have CFS as well you might not be so bad but it's the combination of the two that is making everything so difficult for you. I react to things and problems around me but my main primary issues evolves around my children and the fear of rejection by them, that all stems from events that occurred twelve years ago and continues to plague me (but I wont go into that here), knowing that doesn't make it any easier to deal with because I believe I've been a depressive since I was eight. Like you I'm a worrier so I know how difficult it can be, I think its something your either prone to or your not.
Please don't worry too much about the children's graduation and things like that, you will go because you won't like to disappoint them or miss the proceedings no matter what it does to you personally afterwards. You will find the strength to do it because you have to and because if I can do it so can you. I'm convinced, to have gone through so much and still come out the other side you must be a strong willed caring person like me. I've been told many times that there is a trait with depression that it tends to affect those who are caring, gentle, creative people, whether their just telling me that to make me feel better I don't know but I cling on to that some times, it's a comfort some how, maybe you could do the same.
Have a look on the NHS or MIND websites about depression to find out the symptoms etc to see if it fit's how you feel now. If it does have a discussion with your Doctor, ask the question of him and see if he agree's with you being depressed. Maybe going back onto an antidepressant for a while may help. Also ask him about trying one of the talking therapies that's available like cognitive behavioral therapy, it work's for some. Or try some mindfulness, it may distract your thought's and mind for a while if nothing else.
See the test's your GP wants to perform as a good thing, for often by ruling things out it high light's the true issues. It's a process of elimination some times, if you work out what it isn't then what your left with is inevitably what you have, if that makes sense? So please see it as him helping and not sending you for some form of torture.
I hope some of this rambling makes sence.
Let us know how you get on. Good Luck.
Maggie
Thank youso sad you have so much to fight with and need to be a nursing and giving mother at the same time where you needed yourself to get time for rest and get a lot of love and support from your morther and siblings.. but it seems you come from a very dysfunctional Family yourself, so where should you get any supoort from then..
Don´t worry so much of what your GP does, he obviously wants to help you and there is no harm done in being thoroughly and rather do too many tests than too few..
Now concentrate on getting your metabolism up to the best level, and you´ll get at least a little more energy.
no Wonder if you also have a depression...with all what you have been and still are strugling with..
but it is NOT a problem to have a thorough GP... see that as a plus in your life instead of another worry..
it is not like your GP inventing diseases rather he excludes diseases..
try to get some support in here when you have adding worries... there are so many sweet people in here
wish you all the best ... ps. I used to be totally overwhelmed by all the housework and caring too when being depressed... that is unfortunately normal when being depressed , but don´t be hard on yourself on top of that... be kind to yourself and also to your closest ... ad give yourself time to get better sometimes it takes more than half a year to get up from a very depressed state
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