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Had a SPK transplant and have to pay for prescriptions
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<blockquote data-quote="leahkian" data-source="post: 1604853" data-attributes="member: 32193"><p>I had a pancreas and kidney transplant in April of 2015, the transplant went well but what the diabetes had damaged in side was then found out. I will not bore you with the details as i could be on for a day or two. When i was ready to leave hospital i had all my tablets and a sheet of when to take them and was told to reorder off my local GP but a year a go the leaders off our country said that only the hospital could give you them. I had a medical excemption card which ran out last year. So i asked when my new one would arrive which i got a reply that i would not get one as anti-rejection were not classed as a life saving drug, so i phoned my transplant nurses to ask her if this was right and she said yes. So i said what if i could not afford to pay for them my transplant would fail and i would have to start dialysis and then go on the transplant list for another transplant, she said i know that but the cons do not.I then got told that people who are on dialysis get free medication, so i looked further into the cost of the tablets i need to stop rejection and the cost of the transplant and if i needed dialysis and another transplant. A transplant like the one i had costs around £2000,000 from starting to leaving the hospital. The tablets would cost around £8k a year, i not a wiz with money but it does seem to me that making sure i get the tablets i need is the cheapest option. The Kidney Foundation are trying to get the law changed but are worried that the tories will cut off the people who need dialysis. To me this is Mr Hunt trying to sell the NHS off and Mrs May is helping him on the way. If i moved to Scotland all medication is free so no problem there but the amount of consultants, doctors and nurses who are trying to get the medication free as one person said you come in and give you new organs but by charging you for your tablets you are paying them back. A fellowship doctor who i got on with really well said i want to give people the chance of a better life and not to say if you cannot afford the medication there is no point having a transplant. That is my rant over</p></blockquote><p></p>
[QUOTE="leahkian, post: 1604853, member: 32193"] I had a pancreas and kidney transplant in April of 2015, the transplant went well but what the diabetes had damaged in side was then found out. I will not bore you with the details as i could be on for a day or two. When i was ready to leave hospital i had all my tablets and a sheet of when to take them and was told to reorder off my local GP but a year a go the leaders off our country said that only the hospital could give you them. I had a medical excemption card which ran out last year. So i asked when my new one would arrive which i got a reply that i would not get one as anti-rejection were not classed as a life saving drug, so i phoned my transplant nurses to ask her if this was right and she said yes. So i said what if i could not afford to pay for them my transplant would fail and i would have to start dialysis and then go on the transplant list for another transplant, she said i know that but the cons do not.I then got told that people who are on dialysis get free medication, so i looked further into the cost of the tablets i need to stop rejection and the cost of the transplant and if i needed dialysis and another transplant. A transplant like the one i had costs around £2000,000 from starting to leaving the hospital. The tablets would cost around £8k a year, i not a wiz with money but it does seem to me that making sure i get the tablets i need is the cheapest option. The Kidney Foundation are trying to get the law changed but are worried that the tories will cut off the people who need dialysis. To me this is Mr Hunt trying to sell the NHS off and Mrs May is helping him on the way. If i moved to Scotland all medication is free so no problem there but the amount of consultants, doctors and nurses who are trying to get the medication free as one person said you come in and give you new organs but by charging you for your tablets you are paying them back. A fellowship doctor who i got on with really well said i want to give people the chance of a better life and not to say if you cannot afford the medication there is no point having a transplant. That is my rant over [/QUOTE]
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