• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

HEADACHE- PLEASE READ!

Messages
1
Type of diabetes
Type 1
Treatment type
Insulin
Hello, im Dave. I was diagnosed November 5th 2004. i live in north London. type 1 Insulin/ novo rapid Glargine

Last year i developed a very bad headache that got progressively worse over time. I didnt want to walk, speak or even move that the pain was so bad in the front of my head. I was admitted to the Royal Free Hospital (Hampstead London) and spent 7 weeks there. My Sugar levels were very High and control had been lost. I was tested for everything. After weeks of lumbar punch's, Pet scans, Gallium Scans, MRI sCANS, CT scans, blood tests urine samples skin examinations, pretty much everything known to man, they could not tell me what was wrong. Only that they had found an area on the lining of my Brain that wasnt right. I had what was called a sixth nerve palsey, meaning that nerves from my brain werent responding to my right eye. everything was blurry. couldent see. Biopseys were an option but it was too dangerous to do it.

I was treated for Viral meningitis which after 3 weeks, i was told i did not have. i was told it could of been anything from inflamation to a tumour/ bleed...they didnt know is the honest answer! but were amazingly helpful.

I am now on steroids and have been for the last year, They are inflammatory controlling steroids which are proven to attack diabetes (sugar levels). Aldo th 4 months on Morphine wasnt helpful. But my headaches have now gone and i have 2 months left on a variety of different pills.

That is the shortest version of the story and the simplest, but my basic reason for posting something is to find out if anyone else has heard or had anything similar to this.

I still dont believe that its as simple as giving me steroids, there must be an alternative answer as to what is still happening on the lining of my Brain.

Thanks for reading.

Dave
 
Hi Dave,

I'm sure there will be a Type 1 member along soon but you may want to repost your question on the Type 1 thread and hopefully more Type 1's can respond. Sometimes I miss posts related to me (Type 2) because of all the web traffic. Hope you get the situation sorted and welcome to the site.
STH
 
Not sure on the lining, but, did know of someone who has very severe headaches which took a long time to diagnose and treat. Apparently was very difficult to diagnose. Outcome was narrowing of the arteries in the head, also affected vision. Treatment was a course of steroids which widened the arteries and within a fe months all better. Steroids continued for 12 months and then slowly reduced until nil. Still all ok, but this person was not diabetic. Hope you get sorted.

Sent from the Diabetes Forum App
 
Oh what a terrible ordeal for you ... I'd also ask a Brain expert, just in case. There will be a doctor somewhere that has seen a similar thing before. When my son went into hospital the doctors were taking photos but no=one knew what it was, except this one older, wiser doc who had seen one case years prior. Phew!! Those people are like gold dust....
 
Back
Top