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Hello/New Member

soaringchris

Newbie
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2
Hello all,

I was diagnosed with type 1 a few days ago and was discharged from the hospital yesterday and thought I would sign up and say hi :)

I'm 19, (20 next week) and have just started my own injections and tests. I was told by my specialist nurse and doctor that the levels would be high for the first stage until the dosage is right, going up to 15's, but after taking all of my insulin yesterday and eating well, it still rose to 27!!

I phoned the hospital back and spoke to my doctor and she said to take another dosage of 6 units which slowly reduced it, but today it is back in the low 20's. My doctor wasn't alarmed by this, but as much as I feel well, I can't shake the worry that my blood sugar is that high all of the time?

I guess i'm hoping for someone to say it will stay this way until the dose is right, aha, as at the moment i'm kind of stuck in panic mode 24/7 due to it being so high.

thanks to anyone who replies or can help :)
 
Hi there soaringchris, and welcome.

what have they told you so far, have they just given you insulin and told you to inject a certain amount? Have they told you about carbohydrates and matching insulin to them? What insulins are you using and have they explained what they do (eg the difference between background insulin and quick acting?) And have they explained about hypos (hypoglycaemia - very low blood sugar)?

sorry for all the questions!

You are right that you need your blood sugar to come down from being in the 20s. And you are quite right that when the dosage is right, it will come down. But the dosage needs to match what you eat, so it may well change from day to day.
If you've been high for a while, eg pre diagnosis, it's probably best to bring your blood sugar down slowly anyway.

Anyway you've come to the right place, we will help if we can. I was diagnosed at 19 too and remember very well how it felt for me. Confusing, scary, emotional - it does get easier though. Honest.
 
Hi Chris and welcome to the forum :) Here is some information that was written for newly diagnosed members which should be useful to you. If you have any more questions, please ask as someone will probably know the answer.

BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 30,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates
A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes ... rains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips
The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
hey again, sorry for the late reply i've just got back on my computer.

Thank you for the replies and help post :) I feel a lot better now as my specialist nurse phoned me yesterday and increased my dose from 4-4-4 to 6-10-10 for breakfast, lunch and dinner, and since then my sugars have reduced to an average of 13 which i'm a lot happier with as I was told this was the average starting amount.

i'm starting to understand how different sugars and carbs effect it and i'm making notes of what I eat, when, and how it effects it. Yeah I have one background I take at night which is a lantis and a humalog i take three times a day with the doses above. I think I was worried as I read people talking a lot about hypo's and being low, (main concern) and i was sky high in the 20's and naturally worried!!

and thankyou Snodger, as silly as it sounds I feel better already after one day of my dose being changed, it's just a huge change as there's no history in my family so i'm the first, hence us all being clueless :)

and thankyou daisy1 for the information, i'm going to continue researching it all to try and get to grips as soon as possible :)
 
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