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landmarc

landmarc

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New to this forum. My husband it a type1 diabetic,has been for about 33 years, since 15 yrs old. Is there any support out there for partners? We are going through a tough time and wanted to know how partners cope.
 
Hi, Welcome :)

Sure, there are many partners here :) be great to hear your side of things as a partner too from this side of the fence :)
 
hi i to am married to a type 1 hubby diagnosed 3yrs ago i have done all i can to try and understand the condition and what it may be like living with it even injecting (without insulin ) finger pricking and when my hubby got his pump wore his spear one for 24 hrs canuler and all i(not nice ) but even now i think i will never understand what day to day life is like for him
feel helpless worried stressed on a daily basis
and even when he thanks me for my support (which he needn't do) i sometimes think im being selfish as Im always asking how u feel hun how's ur bs today have u insulated so on and so on (think i prob ask to much lol but its only cause i care ) but no one asks me no one knows how hard it is every day to see the love of ur life go through every thing that comes with the condition its bloody hard
and the times i have tried to confide in family and friends i just get a dull stare or stupid comment like yeh he's ok though he just can't have sweets and has a injection init drives me nuts so just don't bother anymore i only talk to him bout it know but its hard trying to talk to a type 1 about how it affects u makes u feel very stupid and selfish
it is hard the hardest thing we have had to deal with but other than a cure i wouldn't have it any other way i would rather live with the moods highs and lows and all the struggles inbetween than not have him around the good defo out weighs the bad and during a bad time u remember that instead of wanting to bang his head against a wall lol hope this helps ur not alone Im free to chat anytime :D


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lacey1 said:
hi i to am married to a type 1 hubby diagnosed 3yrs ago i have done all i can to try and understand the condition and what it may be like living with it even injecting (without insulin ) finger pricking and when my hubby got his pump wore his spear one for 24 hrs canuler and all i(not nice ) but even now i think i will never understand what day to day life is like for him
feel helpless worried stressed on a daily basis
and even when he thanks me for my support (which he needn't do) i sometimes think im being selfish as Im always asking how u feel hun how's ur bs today have u insulated so on and so on (think i prob ask to much lol but its only cause i care ) but no one asks me no one knows how hard it is every day to see the love of ur life go through every thing that comes with the condition its bloody hard
and the times i have tried to confide in family and friends i just get a dull stare or stupid comment like yeh he's ok though he just can't have sweets and has a injection init drives me nuts so just don't bother anymore i only talk to him bout it know but its hard trying to talk to a type 1 about how it affects u makes u feel very stupid and selfish
it is hard the hardest thing we have had to deal with but other than a cure i wouldn't have it any other way i would rather live with the moods highs and lows and all the struggles inbetween than not have him around the good defo out weighs the bad and during a bad time u remember that instead of wanting to bang his head against a wall lol hope this helps ur not alone Im free to chat anytime :D


Sent from the Diabetes Forum App
Click to expand...
Hi it's like you read my mind. Been married 20 years hubby been a diabetic since we met. Hubby has lost the ability to know when he's low. His long term is great his consultant says he's his best patient. That's fab but it comes at a cost. I am his blood sugar monitor he can be 1.7 and still standing. Booked dream holiday in Mexico had major hypo 1 st night, took 2 glucagon injections to get him conscious never been so scared but survived but changed things I'm so worried about the lows now that it just consumes our lives. Ended up being taken to the drs by a colleague at work prescribed loads of tablets - didn't take them. Both now been to counselling. Not because of our marriage but how this horrible disease effects us both. Yes i can only agree it is just soo hard no one sees it but we live with it. My hubby hates having high bs so incredible moods and spends most of the time listening to me saying " do your thing". Because I really know him I'm always right and he's always low. You are right ..wouldn't change him but I really don't think anyone understands what it's like to live with some one with diabetes. Thanks soo much for you response this is the first time in 23 years I have spoken to someone who really knows how I feel. Thanks
 
landmarc said:
Hi it's like you read my mind. Been married 20 years hubby been a diabetic since we met. Hubby has lost the ability to know when he's low. His long term is great his consultant says he's his best patient. That's fab but it comes at a cost. I am his blood sugar monitor he can be 1.7 and still standing. Booked dream holiday in Mexico had major hypo 1 st night, took 2 glucagon injections to get him conscious never been so scared but survived but changed things I'm so worried about the lows now that it just consumes our lives. Ended up being taken to the drs by a colleague at work prescribed loads of tablets - didn't take them. Both now been to counselling. Not because of our marriage but how this horrible disease effects us both. Yes i can only agree it is just soo hard no one sees it but we live with it. My hubby hates having high bs so incredible moods and spends most of the time listening to me saying " do your thing". Because I really know him I'm always right and he's always low. You are right ..wouldn't change him but I really don't think anyone understands what it's like to live with some one with diabetes. Thanks soo much for you response this is the first time in 23 years I have spoken to someone who really knows how I feel. Thanks
Click to expand...
o bless u hun please don't thank me its been a relief to also know Im not the only one living like this (a crazy lady lol)
Im sure things will improve for u as u know in time from what u said i can only liken it to the shock and horror of my hubbys diagnoses sound dramatic but my world fell apart not only was he sicker than i have ever seen him but this wasn't going to go away soooooooo may crazy things went on in my head for months and now and again still do ( at a bad patch ) u have both had a really hard time away when u were both prob expecting to have a great time what a huge horrible shock and bang ur back to the reality of type 1 ruling ur lives and dictating what u can and can't do and influencing ur hubbys moods which has a knock on affect on yours its a vicious circle trust me i know and understand so sorry i have no great words of wisdom for u and if anyone else does please send them my way lol hang in there on the bright side u sound like me and my man very close and supportive of each other and as long as u got that times will test u but im sure all will work out and what doesn't kill ya makes ya stronger (so Im told ) keep in touch :)

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