Hello

Hi. My name is Debbie and I'm Andy's mum

Andrew is 20 with complex needs . He's been ill since he was a baby and the main chronic health issue has been his kidneys. After an acute illness 8 weeks ago involving 10 days in ICU and the following 6 weeks in hospital (still an inpatient now) we are preparing for surgery to have his fistula made to commence dialysis .

The most bizarre thing to come from the tests during this recent stay are his blood sugars which we have never been told have been a problem (however during his illness as a baby in the acute stage his pancreas was affected and he had a spell on peritoneal dialysis where insulin was added to the fluids used)

Andrew is really confusing the three consultants and not fitting to T1 or T2. He cannot have Metformin which they say would be there usual treatment due to his kidney failure. He is currently having Levemir & Novarapid and this week was supplied with a Dexcom 4 Platinium for CGM .

This is a whole new world to us as we have spent the past 20 years with a host of other medical problems which we have learned about

I've joined to try and learn as much as I can about diabetes and look forward to chatting with you all.

Thanks for the welcome . Andrew is only 46kgs so very slim for his age . The consultants seem to be tweaking his insulin doses daily as still getting up to 15-19 by bed time and then plummets overnight , at times hypo but thankfully not for the past week .
Andrew does not eat food , having the same amounts of liquid feed at exactly the same times daily . The renal dietician has provided the diabetic consultants with the nutritional information of the liquid feed.
It's just another thing on the growing list of health problems . Diabetic consultant says once we start dialysis we will have 2 regimes ... Alternating when its dialysis day and when it isn't .
So much to take on board at the minute that my head is spinning