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Help 28yo single mum type 1 diabetic out of control

Emibee87

Member
Messages
10
Type of diabetes
Type 1
Treatment type
Insulin
Hi I'm a type 1 diabetic and have been for 17years. Never really had control properly apart from when I was pregnant due to bad control I'm never w getting issues with my eyes. I've put on weight and just feel bad in myself which isn't good in front of my daughter please can anyone give me some help and advise on how to start over again
 
I would suggest making an appt with the dr to get a referal to Diabetic Clinic, explain your situation to them and hopefully they will be able to help you.

I have been t1 for 2tyrs and was out of control with it but thanks to my dr and clinic (& in all honesty, mostly people on here) I have my sugars under control, know where I am doing wrong and am figuring out how to sort it out.

As for the weight, I just got a 2 wk membership at gym near me, could maybe take your daughter swimming once or twice a week, be fun for her and help for you.

Where about are you from?
 
hi Emibee87
welcome to the forum
your opening statements say it all for me-- i am sure you want to be around for a long long time for your daughter and the best way is to get good control ( easier said than done i hear you say )
it is true but first thing is to try your best to take 1 day at a time -- diabetes is a marathon -- so little steps forward along with some setbacks are the way to get to grips with this.

are you testing regularly and eating and injecting properly ??

I know you have been D for a long time but I am going to tag @daisy1 to post her great starter pack -- this will be worth a read to revisit the basics and to take ownership of your diabetes. lots of great people will be along to offer support too.

by the way you both look cheeky and fantastic in the avatar -- keep posting !!!!
 
@Emibee87

Here is the information we give to new members which will be a good place to start again. Ask as many questions as you want and someone will be able to help.


BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 150,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
thanks @daisy1 for the quick post

I would like to follow up @Emibee87 by saying that early changes to your eyes can definitely be halted , reversed or at least slowed down by getting control of your bloods.

you are in the right place here and amongst friends
 
I am with a diabetic clinic already but I never see the same people when I go so I always get told different things. The past couple of months I've been trying really hard to test more regular as well as eat and inject properly but can sometimes be hard when my daughter doesn't understand mummy canT have cake and sweets and she forces them in your mouth. Also I'm at a confident battle between diabetic clinic and eye clinic as due to me trying to control my diabetes has now caused a bleed in my eye as I've apparently done it too quickly also my works hours don't always help.
#mammamia2006 I'm from Norwich in Norfolk
 
Also I seem to always have hypos in the night I drop to about2.1 if not lower all the time
 
Hi @Emibee87 sorry to hear your story but I think you've took a good step forward to making a change, this forum is unbelievably helpful!

Have the issues with your eyes just developed? Have you had a retino appt? I had some probs with my eyes but managed to reverse it with good control so don't panic.

What kinds of things are you eating on a daily basis? Some of us go with LCHF diet as it stops spikes but helps you feel full and you can lose weight (I know this sounds totally made up but it's true!)

When you say bad control is that not injecting properly? Or just bad bg's?

Hope you stick around & ask as many questions as you need too

Abbie xx
 
yeah -- the never ending cycle of seeing different peeps at clinic is not helpful-- my first real bit of advice is to phone the DSN at hospital and mither her till you get proper help.

she will be able to talk you through some possible dose adjustments ( although we get good at this too but unofficially )

as for the eating things with your daughter -- do remember she is a child and believe it or not you will not cause lasting psychological damage by not eating the sweet stuff or "saving" it for later -- children do not process information in that sort of way at that age.
 
Bad control as in high sugar levels but also I went threw a bad patch before my little girl and we'd forget to take my insulin or eat the wrong thing and not really worry about testing. I've had my eye problem since I was 20weeks pregnant it developed due to gettin control of my diabetes within a matter of weeks and has just been on going for 3years now. I've had injections laser treatment and now I've had to have intensive laser treatment to stop a bleed at the back of my eye so I can get my vision back. I want do this for me and my little girl so I am around and can see her grow up.
I feel like people don't always understand me and how I feel or what I have to go threw as I am the only one in my family that is diabetic. So when I have a hypo in the night sometimes my mum doesn't understand why I feel so tired and useless esp if it's a night as well where my little girl has a bad night it's hard being a full time single mum as well as work and try to control this. Just feel like doctors don't seem to want to listen to what you have to say.

Also I'm kind of a bit different as I've also had hypoarathroidism which is the parathyroid glands causing high calcium only problem was I had 1 gland behind my heart and not 4 in my neck so it has made my life a it harder
 
Like now I know I'm having a hypo yet an hour ago my sugar level was 11.2 yet I took my fast acting insulin at 4.30 and haven't even had my lantus yet
 
thanks for the great post with more info----I've had laser and lucentis injections and they are cr*p.
are you able to see out of both eyes or only 1 right now ?

agree that non D's don't understand us -- but you do have some support here now from people that live with this and so do understand

hypo's are not a lot of fun either and afterwards feeling like death is a bit*h.

we aren't going to sort things for you and your daughter all in a day or 2 but if you stick with us we can be the support to help you manage and hopefully grow in confidence to get your D totally under control.
 
ok hun -- if having a hypo -- just get some lucozade or jelly babies or summat sweet in now
i
 
fast acting can easily last 5 hours and the last hour after taking is often a vulnerable time for hypo's
 
It sounds like you really tried your very best when pregnant because you knew you wanted the best for you and your baby so I've no doubt you will get your self back on track - and stay there this time around, one step at a time and you can do it

have you tried lowering your insulin doses on an evening?

What have you ate tonight? That's a very fast drop!
 
At the moment it is just 1 eye I can see out of which isn't great what with my job and having my little girl need eyes up me bum as it is with her at moment haha
Thanks for all the advise so far it's great to see have a lot of support
 
Well I take my lantus twice a day now I know it's a 24hr insulin so I can't quite understand y they get me doing it twice and I only have very small doses of it. The hospital always said have 60gr of carbs for my tea but I find that way to much. I've had pork and apple sausages with pasta sweet corn and carrots and then strawberries with sweetener.
 
Hey if your having regular night time hypos you need to check your basal dose and decrease your dose, stopping these is a priority hun. Have you split your lantus ?

Right place for support, I too have a little girl and want to be around for a long time without complications so low carb and exercise, I don't want this to rule my life and be healthy, it definitely helps to have an incentive

Hope your feeling ok after your hypo, try doing some basal checks and I said before you need to stop these night time hypos and it sounds like it's your basal that needs adjusting.
 
Yea one min some1 is saying it's fast acting next someone saying it's my long acting Ms feel like I have no clue which way to go and the doctor put it so I did lantus twice a day I have no idea why
 
ok hun -- we all need to back off a bit and try and help but give you a bit of time to digest all the help being offered here------

it sounds as though you may be on fixed doses from your posts -- 60 grams as a carb amount is an indication---

lets try for now and get you to test a lot and write your results down and we will be here for you over the next few days as you try ans stabilize and lower your bloods

maybe you could tell us what 2 insulins you take and the doses ??
 
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