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Message: <blockquote data-quote="leahkian" data-source="post: 2015832" data-attributes="member: 32193"><p>Hi Grant i know there are not many of us who have had a SPK as it is a rare operation to have. The problem i have is in the run up to a transplant everything is explained up to when you go home, I know in the Freeman hospital an average of 5 SPK are done a year. So in 10 years 50 people and you look at all the transplants centres in the UK you may get 600 in 10 years. So even though it is a big operation the number is small this may change when the law changes with organ donation, we have the doctors who can do the operation and people who need it but the after care is something that also needs working on. People need to know it is not a cure, it will effect you and your families lives, mental health needs to be offered over a long period and also with the operation you may need to go back into hospital it could be overnight or a week. I suffered from mental health issues before the transplant but by having the operation it does hit you that a person has died for you to be here, i found this hard to cope with until i could reason that the person died not for me but was a organ donor and has give me his organs to live. You think about the family of the person who has died and will do, sometimes i can be in bed but cannot get any sleep as thoughts run through my mind and even though i am on a lot of mediation this may go on for 2 or 3 days. You think if only, why did i do that, how could i be that cruel and how could i put my children through this, to think of all the people i have hurt trying not to hurt them. I would like to think that over the years the doctors will be able to give a leaflet to people who have had a SPK and just to say you may feel like this but a lot of people do after their transplant, you may feel down and need to speak to the mental health team this happens in so many cases but you may not need to see them for long. It is my belief that people who have had diabetes for a long time and have suffered with the problems diabetes can bring can help the NHS the doctors and nurses who do a job that is very demanding under increased pressure could use us as informants telling people about how to cope when they first get diabetes as most diabetics get 24 hours and a follow up in 2 weeks if they are lucky. I am not saying we should be telling the to change insulin does but we could listen to their concerns and if they were having major problems get them to ring someone who can see them sooner.</p></blockquote><p></p>

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