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Type 1.5/LADA Diabetes
Help! Potential LADA, struggling to get a clear diagnosis…
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<blockquote data-quote="smidge" data-source="post: 300652" data-attributes="member: 29301"><p><strong>Re: Help! Potential LADA, struggling to get a clear diagnosi</strong></p><p></p><p>Hi again Vincent!</p><p></p><p>My progression was very sudden in the end. I was diagnosed as Type 2 on a random blood test for something else entirely. It came back at 11ish and I was told to have a Glucose Tolerance Test. My fasting BG was high 4s (so non diabetic levels), but the post glucose test was 11.8 so I was diagnosed Type 2. My HbA1c was taken and that was in the 5s. A few months later, I had another fasting test which was in the 4s and an HbA1c at 5.4%. I had insisted on seeing a consultant as I didn't believe the Type 2 diagnosis. The consultant offered to undiagnose me as he did not believe I was diabetic :roll: I was refused a testing kit and told I didn't need to test. I was then sent away to come back a year later. In the meantime I was given traditional advice on healthy eating. After about 9 months, I was feeling lousy, constantly tired and was losing weight without trying. My weight had dropped to less than 6.5 stone. I started feeling thirsty and was getting up twice a night for the loo. Finally, something twigged and I thought maybe this is the diabetes and something has gone wrong. I bought some urine test sticks and was really shocked that they were on the deepest colour and stayed there constantly showing that sugar in my urine was very high. After that, I had 3 months of arguing with doctors and nurses and as I lost more and more weight and got more and more ill. My HbA1c at that point was 11 something, so I had gone from 5.4% to over 11% in the space of 9 months. When i got back to see the consultant, he was shocked at the deterioration and the ketones and started me immediately on insulin. Within 3 months, my HbA1c was back in the 5s. I then tested positive for GAD antibodies and was reclassified as type 1 (LADA).</p><p></p><p>As soon as I started on insulin, my beta cells seemed to revive and kick out more insulin, so I had to backtrack and reduce doses very quickly. Even now, two years after starting on insulin, I have only just increased the injected basal dose back to where I started with it. I use very small amounts (7 units a day). I do still produce some basal of my own as i could manage without basal for around 3 days before my BG would be on the rise. Some days i think I produce more than others, but it is hard to say. The bolus for my meals is essential though otherwise my spikes are horrendous and my basal isn't strong enough to deal with that.</p><p></p><p>As for testing with the bread or biscuits, it depends how much insulin you are still producing as to how quickly you will return to normal. In the early stages, I was producing enough insulin to return to normal within about 3 hours hence my good HbA1cs and fasting levels. So I would say test at 1 hour and then again at 2 hours to see the difference (not always, just as a test).</p><p></p><p>Ask any other questions you want.</p><p></p><p>Smidge</p></blockquote><p></p>
[QUOTE="smidge, post: 300652, member: 29301"] [b]Re: Help! Potential LADA, struggling to get a clear diagnosi[/b] Hi again Vincent! My progression was very sudden in the end. I was diagnosed as Type 2 on a random blood test for something else entirely. It came back at 11ish and I was told to have a Glucose Tolerance Test. My fasting BG was high 4s (so non diabetic levels), but the post glucose test was 11.8 so I was diagnosed Type 2. My HbA1c was taken and that was in the 5s. A few months later, I had another fasting test which was in the 4s and an HbA1c at 5.4%. I had insisted on seeing a consultant as I didn't believe the Type 2 diagnosis. The consultant offered to undiagnose me as he did not believe I was diabetic :roll: I was refused a testing kit and told I didn't need to test. I was then sent away to come back a year later. In the meantime I was given traditional advice on healthy eating. After about 9 months, I was feeling lousy, constantly tired and was losing weight without trying. My weight had dropped to less than 6.5 stone. I started feeling thirsty and was getting up twice a night for the loo. Finally, something twigged and I thought maybe this is the diabetes and something has gone wrong. I bought some urine test sticks and was really shocked that they were on the deepest colour and stayed there constantly showing that sugar in my urine was very high. After that, I had 3 months of arguing with doctors and nurses and as I lost more and more weight and got more and more ill. My HbA1c at that point was 11 something, so I had gone from 5.4% to over 11% in the space of 9 months. When i got back to see the consultant, he was shocked at the deterioration and the ketones and started me immediately on insulin. Within 3 months, my HbA1c was back in the 5s. I then tested positive for GAD antibodies and was reclassified as type 1 (LADA). As soon as I started on insulin, my beta cells seemed to revive and kick out more insulin, so I had to backtrack and reduce doses very quickly. Even now, two years after starting on insulin, I have only just increased the injected basal dose back to where I started with it. I use very small amounts (7 units a day). I do still produce some basal of my own as i could manage without basal for around 3 days before my BG would be on the rise. Some days i think I produce more than others, but it is hard to say. The bolus for my meals is essential though otherwise my spikes are horrendous and my basal isn't strong enough to deal with that. As for testing with the bread or biscuits, it depends how much insulin you are still producing as to how quickly you will return to normal. In the early stages, I was producing enough insulin to return to normal within about 3 hours hence my good HbA1cs and fasting levels. So I would say test at 1 hour and then again at 2 hours to see the difference (not always, just as a test). Ask any other questions you want. Smidge [/QUOTE]
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