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<blockquote data-quote="ladybird64" data-source="post: 241852" data-attributes="member: 29023"><p>Hi Tracey and a big hi to Claire as well <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite8" alt=":D" title="Big Grin :D" loading="lazy" data-shortname=":D" /> </p><p></p><p>As Anna has said, there should be somebody with type 1 along to help you soon but I just thought I would mention something in the meantime.</p><p></p><p>I have a daughter with a rare syndrome, she is 21 and is a type 2 on insulin and oral meds. It is really sad that sad that your sis has been discharged without the family being given the info that you ned to help her but all too common. I'm not sure if Claire has any services from Social Services (if you see what I mean!) but our borough has a Learning Disbilities Health Team attached to Social Services and they were very good.</p><p></p><p>My daughter no longer lives at home but she had a learning disabilities nurse who used to visit every few weeks, check her weight, discuss her meds etc and acted as a very good and supportive liason between ourselves and the others medics such as GP, Endocrinology Dept etc. You and Claire would still be calling the shots but as you probably know, it isn't always easy to get productive appts with health professionals so maybe you could see if there is any support you could get for yourselves in this area.</p><p></p><p>I'm fairly sure that even with type 1, testing is done before and after meals, usually at 2 hours after eating so the ten minute test might not mean much. The ketones sound a bit worrying however so if you are nervous, maybe ring NHS for advice.</p><p></p><p>I hope one of the lovely type 1's answer your questions soon. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /></p></blockquote><p></p>
[QUOTE="ladybird64, post: 241852, member: 29023"] Hi Tracey and a big hi to Claire as well :D As Anna has said, there should be somebody with type 1 along to help you soon but I just thought I would mention something in the meantime. I have a daughter with a rare syndrome, she is 21 and is a type 2 on insulin and oral meds. It is really sad that sad that your sis has been discharged without the family being given the info that you ned to help her but all too common. I'm not sure if Claire has any services from Social Services (if you see what I mean!) but our borough has a Learning Disbilities Health Team attached to Social Services and they were very good. My daughter no longer lives at home but she had a learning disabilities nurse who used to visit every few weeks, check her weight, discuss her meds etc and acted as a very good and supportive liason between ourselves and the others medics such as GP, Endocrinology Dept etc. You and Claire would still be calling the shots but as you probably know, it isn't always easy to get productive appts with health professionals so maybe you could see if there is any support you could get for yourselves in this area. I'm fairly sure that even with type 1, testing is done before and after meals, usually at 2 hours after eating so the ten minute test might not mean much. The ketones sound a bit worrying however so if you are nervous, maybe ring NHS for advice. I hope one of the lovely type 1's answer your questions soon. :) [/QUOTE]
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