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<blockquote data-quote="Jen&amp;Khaleb" data-source="post: 241855" data-attributes="member: 13077"><p>Hi, my son has Down syndrome and T1 diabetes. Apparently the rate of T1 diabetes in people with Down syndrome is 1 in 50 and I know of 3 other cases (now 4).</p><p></p><p>Your sister may well be in the honeymoon stage of diabetes. She may still be able to produce some of her own insulin at the moment but this may change in time. Any blood test taken shortly after food could be a bit high and most people using insulin take a before meal test and then a 2 hours after food test. I also test before I go to bed at night.</p><p></p><p>Ketones are produced when there is not enough insulin for the body to use glucose as an energy source and fat is burnt instead. The by-product of burning fat is ketones and they are acidic in the blood. This is what happened at diagnosis (DKA). I use a blood ketone measure but you need an Optimum Exceed meter to get this result. I'd think having 5 of the 6 levels on a urine strip showing ketones the level would be very high and DKA may already be in issue. You need to contact health services.</p><p></p><p>Diabetes is a balance between food/exercise and insulin. Other factors like hormones, stress and illness also have big effects on levels. Mostly it is trial and error to find the right balance but it would be worthwhile to have access to short acting insulin for times when levels are too high. </p><p></p><p>My son also has some eating issues. He does eat adequate amounts but quite soft food and a little bit limited in variety. He doesn't really drink either but his food is quite liquid so I suppose he doesn't get very thirsty.</p><p></p><p>Well, I'm happy to help as will many other's here on the forum.</p></blockquote><p></p>
[QUOTE="Jen&Khaleb, post: 241855, member: 13077"] Hi, my son has Down syndrome and T1 diabetes. Apparently the rate of T1 diabetes in people with Down syndrome is 1 in 50 and I know of 3 other cases (now 4). Your sister may well be in the honeymoon stage of diabetes. She may still be able to produce some of her own insulin at the moment but this may change in time. Any blood test taken shortly after food could be a bit high and most people using insulin take a before meal test and then a 2 hours after food test. I also test before I go to bed at night. Ketones are produced when there is not enough insulin for the body to use glucose as an energy source and fat is burnt instead. The by-product of burning fat is ketones and they are acidic in the blood. This is what happened at diagnosis (DKA). I use a blood ketone measure but you need an Optimum Exceed meter to get this result. I'd think having 5 of the 6 levels on a urine strip showing ketones the level would be very high and DKA may already be in issue. You need to contact health services. Diabetes is a balance between food/exercise and insulin. Other factors like hormones, stress and illness also have big effects on levels. Mostly it is trial and error to find the right balance but it would be worthwhile to have access to short acting insulin for times when levels are too high. My son also has some eating issues. He does eat adequate amounts but quite soft food and a little bit limited in variety. He doesn't really drink either but his food is quite liquid so I suppose he doesn't get very thirsty. Well, I'm happy to help as will many other's here on the forum. [/QUOTE]
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