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Help with type 1 diabetes pleaseee

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1
I’m a type one diabetic, my hbac1 came back at 127 my blood pressure is low and my cholesterol is high I’ve begged the diabetes specialists to help yet I’m getting no response I’ve been asking for the insulin pump for 3 years! Baring in mind my sugars have been bad for the whole 3 years my specialist retired and decided not to put my referral through! So now I’m kinda hoping you guys can help, my sugar spend most the day running at about 22 mmol this is mostly my own fault I’m insulin sensitive and was having 3-6 hypos per day when I was controlled so bad I became terrified of hypos after losing my hypo awareness when my blood sugars drop under 15 mmol my body gives me symptoms of a hypo and I panic and drink sugar can you guys give me advice on things that stop the hypo symptoms without sugar?
 
Have you asked your DSN for help? Your fear of going hypo seems a relevant factor here. When your blood sugar has been running high for a long time and you then try to lower it, you can feel hypo when your blood sugar is running lower but nowhere near hypo level.

You say you panic when you feel hypo under 15. If you can control this panic and just test your blood to make sure you are above 4, things should improve. Testing is the answer. Maybe you could ask your DSN if you could have a trial of a Freestyle Libre. If she can't do this, ask what she can do to help.
 
Hi @Chelseacee1345, not as professional advice or opinion:
In addition to the excellent suggestions above I wonder whether an advocate could be found for you to help push your case for an insulin pump. Such people do exist and not being in the UK I ask others on site if they could help with suggesting organisations who could help you.
With a pump it might be easier to gradually lower your BSLs and take some of the fear out of your feelings of hypo. Mind you, not every one is suitable for a pump but your situation certainly sounds serious.
I think any doctor would agree that trying to keep BSLs as much in the accepted range as possible particularly in the first 7 to 10 years of diabetes is very important.
No doubt you have a new specialist - hopefully she/he may be more responsive.
As part of the way forward you may need counselling about your fears of hypos and maybe about diet and food intake, too.
I hope you might consider such counselling as a show of good faith in improving your situation.
Best Wishes.
 
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Hello and welcome to the forum @Chelseacee1345

Ok so you know the HbA1c at 127 is not going to be doing you any good at all, needless to say getting this down is an absolute priority to limit you from the damage this will be causing.

Sadly a pump isn't a magic wand, I know that some type 1's think it will solve a high HbA1c, but using a pump is useless unless your applying some really careful management already, also the NHS don't hand them out without you showing that you are doing everything in your power already to control your BG levels, it's like giving you a formula 1 car without an instruction manual, you'll never learn how to drive it properly and probably only use it at 30% output and become disillusioned with it quickly without realising it's true power. The NHS will give you a pump if you are demonstrating that you are doing all in your power to control your levels, otherwise it's a waste of money and this is why they are careful about who get's one and who doesn't. I got mine after showing my team I was doing my absolute best and still struggling, now I have one I am careful to monitor my ratios all the time and keep within target and have successfully lowered my HbA1c in doing so, for me it's worked but I know others who've had them and given up quickly as they haven't seen the results they wanted and become disillusioned with it. Have you done DAFNE ? As you'll need to do this first also in your application for a pump also.

My best advice is to start from the ground up, get educated do the online Bertie course https://www.bertieonline.org.uk/ get a copy of 'Think like a pancreas', from Amazon, written by a type 1. The better your control the easier it will be to avoid massive BG swings including hypos, you will have them but much milder and when your better controlled the easier hypos are and less impact they will have on you - none of us like them, trust me but the fear of avoiding long term and permanent complications from running high is far greater than the fear of a having a hypo which can be a temporary mild inconvenience.
 
Going from the experience of a teenager I know you have to show good carb counting and control before they will give you a pump - at least in our area. They have at least given her a libre so she can track her BG levels more closely.

Small steps. Start by setting yourself a minimum at which you won't panic even if you're having a false hypo. When I was first diagnosed they set 10 as my minimum for the 1st week. I'd been running in high 30s so was very dizzy at 10 but it soon passed. Once your body gets used to it you can drop your minimum lower.
 
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