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Hi, all - Type 1

Scott-C

Well-Known Member
Messages
2,460
Type of diabetes
Type 1
Hi all, joined a couple of weeks ago but never got round to introducing myself till now. I'm Scott, type 1 for 28 years since age 21. Back then, pre-internet, it was just a case of getting a few books to mull over. Learned enough to manage and have always taken it pretty seriously - remember reading an article in Balance (they sent out printed copies back then - how quaint) about a person my age who'd gone blind a few years after dx, so that was a pretty big motivating factor. But I never wanted to let it play more than a bit part in my life. I think my mum spent more time reading newspaper articles about diabetes than I ever did. Anway, went on a DAFNE course last year, think the doctor wanted to cure a few bad habits I'd picked up over the years. Fascinating course, first time I'd ever sat down with a bunch of other diabetics. Interesting to watch how people dealt with it. Couple of youngsters on it, one was pretty spot on level wise, the other was wandering about quite happily at 15 to 20 most of the time and I'm thinking, sorry, hen, you're going to end up like that girl in the Balance article. I just thought it, but another guy was a bit blunter and told her fix it or you'll end up blind. We all met up 3 months later and she'd got herself a Libre. Turns out she'd been deliberately running high because she was terrified of hypos. Understandable, agree absolutely we should never be judgmental but that guy playing hard but fair probably got the message home better than any doctor would. Got a Libre too, love it for all the usual reasons. For the first time ever, have started reading about research. Some fascinating stuff going on. Diasome's HDV, modifies insulin so that it goes find the liver - never realised that a normal pancreas sends 80% of insulin straight to the liver to make it suck up glucose, whereas our jabs get hardly any insulin near the liver (any volunteers willing to try a six inch needle directly into the liver?!). And glucose responsive insulin sounds brilliant. Switches on and off depending on presence of glucose. A bit of googling brings up Tod Zion's SmartCells being bought up by Merck. If they can get that to work, I reckon it'd be as good as a cure: take a shot and just forget about it. We can but wish....
 
Hello @Scott-C and Welcome to the Forum . Other Type 1's will be along soon to Welcome You. Tagging @daisy1 who will provide you with some basic information that all new members receive.
 
Hi @Scott-C , good intro' welcome to the forums.
 
@Scott-C

Hello Scott and welcome to the forum Although you have been diabetic for years, perhaps this information (mentioned above) for new members will be useful and interesting. Ask as many questions as you want and someone will be able to help.


BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 147,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.

Take part in Diabetes.co.uk digital education programs and improve your understanding. They're all free.
  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why
  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
Hi @Scott-C

I agree theres lots of exciting research After 23 years with Type 1, I just wish they'd get on with it and find a cure though : D I live in hope
 
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