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HI, i have addisons disease & any advice welcome on blood su

emf

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Hi, i was diagnosed with addisons disease about 7 years ago. i had been living with a blood sugar of 2 for around 15 years. my blood sugar fluctuates between 19 to 6. I eat slow release carbs and lots of veg. My fasting blood sugar test was 7 and that what it is most days. My feet hurt. I get pins and needles in my fingers and toes. I take prednisilone and fludrocortisone. Anybody else in my situation? im 40, and was misdiagnosed for 15 yrs. i have renal failure and a host of other things. i have looked and looked for help since diagnosis. im told i have diabetes then i'm borderline! I dont know where to get advice, gp isnt very forthcoming. ive purchased a blood sugar monitor machine myself and lanclets etc. Can you self refer to a dietician or diabetes nurse? Any advice welcome.

esther :?
 
Re: HI, i have addisons disease & any advice welcome on bloo

Hi emf and welcome to the forum :) I can't help you with your other problems, but I can help you to control your diabetes as well as possible. You would do well to cut down on the carbs you eat as your levels post meals are going too high. In the information below there is a guide to the levels you should try to get, or even lower is better. You have done a good thing getting yourself testing equipment. It is important to test before and 2 hours after meals then you can see what each food does to your levels. Then you can experiment with decreasing portion size or cutting out that particular food. Even though you are not newly diagnosed, I think this information for new members will be helpful to you. Ask as many questions as you like as there is always someone here to help.

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 30,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates
A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes ... rains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.
 
Re: HI, i have addisons disease & any advice welcome on bloo

Hi That is disgusting that it has taken 15 years to get diagnosed with the Addisons :shock: :evil: You really need to find a good ,skilled endocrinologist (not easy) who knows what they are doing. Living for 15 years with that must have been so difficult for you but I have read that a lot of people do find it hard to get a diagnoses, and yes it will damage your kidneys undiagnosed for that length of time, I'm so sorry to hear what you must be going through.

I honestly think you may have more than the Diabetes that can be controlled with diet alone and if you carry on with sugar fluctuations like this ,like you did with the undiagnosed Addisons you will end up with another host of problems. You must feel terrible with those fluctuations. I don't want to alarm you but I really feel you need to get fully checked out for Diabetes...if you have already then get checked again, as BG in those ranges are not good.

Corticosteroids will raise your BG but if they are set at the right level for your Addsions then they really should not raise them to that extent.
I was told that by my Endo that Type 1 Diabetes and Addisons are closely linked...also get checked for Thyroid disease as this also goes hand in hand for a group of people. If you get no joy from your Doctor please bang on some more doors ,ask for referrals and get the help you are entitled to.

Get as much info about your condition that you can and take it to appointments, it might get on their tit's but unless you get someone who is specialised in the field of Endocrinology it really is like flogging the proverbial dead horse...I know I have been there.

Are you under the hospital or GP for your ongoing care? How do you find them?

I can't believe that they are letting someone who already has kidney damage live with sugars going up to 19 :evil: :evil:
 
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