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Discussion in 'Greetings and Introductions' started by Kilted Ginger, Oct 25, 2012.

  1. Kilted Ginger

    Kilted Ginger Type 1 · Newbie

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    Hi, just joined the forum, seems to be a lot of good info here.
    I replied to the intro thread with all the questions.
    I'm type 1, I had an infection in my pancreas that was mis diagnosed for 2 years until it exploded. So after 2 months in a coma and 4 months in ICU I went from being a fit active normal person to an unfit angry depressed diabetic. No pancreas, and less liver and intestines than I went in with.
    Honestly I struggle to deal with the diabetes and other effects of my hospitalisation. I feel I am constantly at doctors asking for help and getting none.
    I don't check my sugars as regularly as I should, however I have managed to get my 6 month check down from 12 to 9.2.
    I am a long way from accepting my current situation and dealing with it properly.
    Think that's the first time I've ever said / written that.
    Hoping to learn from others on here.
  2. Anonymous

    Anonymous · Guest

    hi and welcome to the forum.

    it is hard to live with but you need to take it day be day and make the most of each day as it come ,that i have learnt though the yrs of being diabetic,no 2 days will be the same.

    im 41 yrs old have had type 1 since i was 4,now use a pump.

    it is alot less scarey now as it was 37 yrs again ,

    hope you will get on ok. :thumbup:
  3. rtee

    rtee · Well-Known Member

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    Welcome to the site,Kilted Ginger (love the name!!)
    I can quite understand your anger over how you arrived as a diabetic.

    Please, please, take it seriously and get those Bg's down. I nursed my husband for several years through some very debilitating complications, including amputation, due to bad management. He died aged 60.

    That may seem harsh for me to greet you in such a way, but it's real and I don't want any one to go down that path if I can help it. You can have a good active life -- check out some of the marathon runners on here-- BUT to avoid complications in the future you really do need to manage your diabetes NOW. Don't let it manage you!

    There's lots of helpful advice on the site, written by people who are managing their diabetes well. Ask any question and someone will have an answer!!

    Hoping you get those Bgs under control soon :)
  4. daisy1

    daisy1 Type 2 · Legend

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    Hi Kilted Ginger and welcome to the forum :)

    Here is the information we give to new members which I think you will find helpful. You have done well so far getting your levels down considerably. Ask all the questions you like as there is always someone who is able to help.


    Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

    A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 30,000 people who are demonstrating this.

    On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

    The role of carbohydrate

    Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

    If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

    The bad news

    Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

    The good news

    People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

    Controlling your carbs

    The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
    There are two approaches to controlling your carbs:

    • Reduce your carbohydrate intake
    • Choose ‘better’ carbohydrates

    Reduce your carbohydrates

    A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

    The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

    Choosing better carbohydrates

    Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
    http://www.diabetes.co.uk/food/diabetes ... rains.html

    The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

    Read more on carbohydrates and diabetes

    Eating what works for you

    Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

    To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

    The blood sugar ranges recommended by NICE are as follows:

    Blood glucose ranges for type 2 diabetes
    • Before meals: 4 to 7 mmol/l
    • 2 hours after meals: under 8.5 mmol/l
    Blood glucose ranges for type 1 diabetes (adults)
    • Before meals: 4 to 7 mmol/l
    • 2 hours after meals: under 9 mmol/l
    Blood glucose ranges for type 1 diabetes (children)
    • Before meals: 4 to 8 mmol/l
    • 2 hours after meals: under 10 mmol/l
    However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

    Access to blood glucose test strips
    The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

    • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
    • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

    Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

    You may also be interested to read questions to ask at a diabetic clinic

    Note: This post has been edited from Sue/Ken's post to include up to date information.

    Please sign our e-petition for free testing for all type 2's; here's the link:

    Do get your friends and colleagues to sign as well.
  5. noblehead

    noblehead Type 1 · Guru
    Retired Moderator

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    Welcome on board KG :)
  6. phoenix

    phoenix Type 1 · Expert

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    I'm not sure that we have any other people with pancreatic diabetes on this forum.
    I'ts early days for you yet, it's good that you are achieving some improvement already,
  7. Kilted Ginger

    Kilted Ginger Type 1 · Newbie

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    Thanks for the welcome folks. Looking forward to learning a lot and hopefully contributing a little.
    Phoenix, not surprised there's not many folk on here "sans pancreas" its not a high survival rate.
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