In my around 5 years from being diagnosed, I see the diabetes nurse once a year and have never seen my GP for anything diabetes apart from when I was diagnosed at firstThanks for your replies. A wee update, I managed to see a GP and they took advice from diabetic clnic and I've been given Gliclazide 40mg tabs twice a day. Seeing GP again on tuesday. Also got Ketostix to test urine.
My BGs have been going up slightly over the last week but just went off scale last night. 29.7mmol then twice HI (over 30) and beeping. Suspect an ear infection may be the cause? Now have antibiotics "just in case" as this is recurrent.
The frustration when this happens is I have no tools to deal with it and fel quite helpless. Doesn't help you feel in control!
Can I ask a general question of you? Are you being treated/managed by your GPs or do you go direct to Diabetic clinics? I feel always at a distance from the experts and the delay in getting answers at times is not confidence building.
Really? So have you been very stable and just rely on once yearly check ups? I seemed to be fine for first few years then out of the blue I went off scale. This has happened 3 times now and it makes me feel like I have little control and takes time to get it back with GP checking with clinic for advice re changes. I would rather deal direct but doesn't seem possibleIn my 10+ years as a type 2 diabetic I have never been to a diabetic clinic. I haven't seen a GP for diabetes either. I see the diabetes nurse once a year.
This is interesting, your experience is same as another reponse.In my around 5 years from being diagnosed, I see the diabetes nurse once a year and have never seen my GP for anything diabetes apart from when I was diagnosed at first
This is a recurrent problem which this time really didn't seem too bad but is the only cause I can think of. The antibiotic I get does clear it up and I now have a spare in case.Infection can make our BG levels rise and pain can have the same effect all on its own. Keep testing and make sure you keep well-hydrated. If you have an ear infection that keeps coming back, this needs investigation. Have you been referred to a hospital over this ? My non-diabetic husband had a similar problem a couple of years ago and a change of antibiotic proved to be the answer after several trips to A & E. Hope you get this sorted soon.
It was as high as the monitor would go! I've posted an update below and feel a bit better and more in control thanksWhat do you mean by sky high? What are your numbers What is your diet like, what are you eating? - my best advice is call 111 or your GP surgery they will decide if you need medical attention. Hope you get it sorted soon
I dont have a choice, I only get offered annual check ups with the DN. Thats it.Really? So have you been very stable and just rely on once yearly check ups? I seemed to be fine for first few years then out of the blue I went off scale. This has happened 3 times now and it makes me feel like I have little control and takes time to get it back with GP checking with clinic for advice re changes. I would rather deal direct but doesn't seem possible
Hi phil16,Thanks for your replies. A wee update, I managed to see a GP and they took advice from diabetic clnic and I've been given Gliclazide 40mg tabs twice a day. Seeing GP again on tuesday. Also got Ketostix to test urine.
My BGs have been going up slightly over the last week but just went off scale last night. 29.7mmol then twice HI (over 30) and beeping. Suspect an ear infection may be the cause? Now have antibiotics "just in case" as this is recurrent.
The frustration when this happens is I have no tools to deal with it and fel quite helpless. Doesn't help you feel in control!
Can I ask a general question of you? Are you being treated/managed by your GPs or do you go direct to Diabetic clinics? I feel always at a distance from the experts and the delay in getting answers at times is not confidence building.
Hi sandlashahzaib,Gratitude for your answers. A small update, I figured out how to see a GP and they accepted guidance from diabetic clnic and I've been given Gliclazide 40mg tabs two times every day. Seeing GP again on tuesday. Likewise got Ketostix to test pee.
tbh once yearly check ups suit me fine and I still regularly test (self funded as my DN says I don't need to test but that's another topic ...) and if I noticed a huge increase then I would get in touch with DN for advice but again tbh I feel I know more about my condition than her because if I had relied on her advice I would not be in remission which was something I have achieved on my own ...This is interesting, your experience is same as another reponse.
So have you been very stable and just rely on once yearly check ups? I seemed to be fine for first few years then out of the blue I went off scale. This has happened 3 times now and it makes me feel like I have little control and takes time to get it back with GP checking with clinic for advice re changes. I would rather deal direct but doesn't seem possible
Thanks for your response. I'm quite amazed to find that people have so little support with their treatment. I'm profoundly deaf so calling surgery is not an option and face to face is still difficult which makes things harder. I feel I've missed out on essential info at some point as I have no idea what sick day rules mean etc.Hi phil16,
I haven't seen a GP for a few years now but have had a phone call from one about my numbers being too high (after HbA1c test), that was late last year. Since then I sometimes get a phone call from my DN after my HbA1c test which I have done at the surgery every 3 months. I'm told if I feel my numbers are too high to ring the surgery and someone will get back to me, like you I felt I had no control at all. Finally after many times asking they finally gave me a meter (I have to self fund the strips), since then I now feel much more in control as I can see what foods spike me. I have never been referred or asked to go to a Diabetic clinic.
I hope your ear infection clears up soon and that the new medication works
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