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Holiday & new pump user

weeezer

Well-Known Member
Messages
272
Location
bristol
What would you do...

My mum has been t1 almost 39 years, after seeing my success with the pump she asked about getting one. because she isnt able to achieve an hba1c in range she qualified for one. Her control is fairly erratic, she uses v high doses of insulin (120 total units a day), so hopefully it will help.

She is getting it today, but is going to Mauritius on Sunday. She asked her dsn if she could have the appointment after she got back, but was told this wasnt possible, the date was immovable (others getting it today also, and pump rep there). Her dsn said she'd be fine and able to go on holiday with it, no problem. My mum was happy with that, but I wasn't!

Knowing how much work it is at the start, and how much you need to talk over readings with dsn so they can help with adjustments in the early days, I think it's a bad idea to be on an island, where English is not the first language, and a hospital isn't nearby.

Am I being too 'namby pamby'? My mum's dsn has every confidence in my mum so why don't I? My mum tends to do what she's told with regards to doses etc, shes not much of a tester/adjuster! I'm just worried that she'll have no lifeline if something goes wrong, or readings out of control etc.

I suggested she goes along and gets the pump today, but removes it when she gets home, and puts it all to one side til she returns...then starts using it, I can help and she'll be able to be in touch with dsn. She is probably going to do this, unless the dsn convinces her otherwise today! (Told her about how quickly things can go wrong with no background insulin, and how quickly ketones could appear if there was a problem/interruption with insulin delivery)

I'm a bit cross with the dsn really, it would be on her conscience if something went wrong :/ perhaps I'm being too overprotective?

Would be grateful to hear any opinions on this?

(I think I should go to Mauritius in her place and she should stay behind and get to grips with pump hehe!)


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Re: Holiday & new pump user

Certainly not Weeezer.

Your mum will be better off going on holiday using bolus/basal pen style, enjoying it and not have to worry about going low/high, occlusions, infusion sets failing etc which happens with pumps in the early days.

Far better to leave pump at home and then remember what dsn/pump rep has said, read the manual if she cant remember, talk to you and then start herself off.
 
Totally agree with iHs, enjoy the holiday and get to grips with it on her return. Don't bother starting before she goes, she'd only have to adjust the insulin requirements before and after. It's easy once you get going but it will take a couple of months to get used to it.


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Thank you for your opinions, which I completely agree with. She has come away attached to the pump and is full of the joys of spring after her first bolus for lunch (while at the hosp) was half the amount of insulin she'd usually have had, and a few hours after her bgl was 8.4, so she's well & truly sold!

The dsn & pump rep said it was ultimately her decision, but they both felt she'd be fine. (They also said not to tell me if she decided to wear it, coz I'm such a worrier. *grumpy face).

Spose it is her decision. I hope she sees over the next few days that it is quite intensive at first, and that she's better off waiting til she returns to deal with all the shenanigans!


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Well you've done your bit and as you said it's her decision and I'm sure she'll be fine. I rather like mothers rebelling rather than the other way round, it's against nature though!


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Re: Holiday & new pump user

I too hope that she will be ok. I had about 3 days of not too bad daytime bg levels but probably because of the linger on effect of basal insulin Levemir.. Dsn said that Lantus and Levemir can linger on for a few days even after stopping them which I was surprised at but was probably true cos bg levels definately started to change.
 
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