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hope I don't sound grumpy but DON"T END UP LIKE ME

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vaughan h

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Hi all my mane is Vaughan I am a 45 year old who has had type 1 diabetes for 38 years. I'm one of those people that you would have heard about that suffered from mosses syndrome. I was in de nile for the early part of my life. I felt I was invincible didn't take care of myself from when I left home in my teens to about 6 years ago. I told the doctor what was needed to get my script and not much more. This was near half my life to now that I could have been a lot happier and I wasn't because I always felt like ****. I never got round to testing because it took time I would spend time to clean my teeth but not test when testing only takes a third of the time. Go figure. I often felt that I was unsure if my bloods were in range or not and I didn't want to fail so I wouldn't test. But surely that would be the times I should have tested to find out. If I was worried and had the power to stop feeling worried why did I not use it. It's so much easier than when I was testing urine for sugar more accurate too. Any way the don't do this at home part is from me not taking charge of my own life now I am in a position to tell others they DO NOT want to end up like me if it can be avoided. I have retinopathy both eyes that have had extensive laser. Side affect cataracts not to bad but they are there like looking through a dirty windscreen. Night vision poor and sensitive to light. Had the vitreous fluid done in my left eye 2x and my right 1 from burst blood vessels and eye filling with blood. Frozen shoulder from dehydration drying out joints treated with quarterzone injections into the joint. Neuropathy legs and feet with makes me feel like I'm trying to stand on a water bed or trampoline when I'm still. I fall over in the dark because I over compensate and keep going. People often treat me like I'm drunk because I wobble. Have had 3x heart attacks because my high blood pressure wasn't treated and my heart is now 65% enlarged and the blood vessels had trouble supplying blood to the extra mussel. My bladder no longer contracts properly and doesn't always empty properly. My kidneys have improved and now are running about 38%.Thankfully I haven't been admitted into hospital for the last year or 2 where in the past it was each year 3x for pneumonia amongst other things. To have all these things wrong and still feel better than any stage in the past that I remember says a lot for what testing has done for my well being. I am not proud of the way I have treated my body and the toll it has taken but I am happy to say that these last few years I have taken some control back that is the good part of all this.

PLEASE DON'T END UP LIKE ME
Regards Vaughan a slow learner
 
Thanks Vaughan for sharing this and I hope your story helps other people to take control to help avoid getting the complications that you have had.
 
Thanks for sharing your story Vaughan.

Nigel
 
Hi Vaughan, After reading your story I can both sympathise and understand with some of the same complications it is a slow steady journey back to better health and good sense of wellbeing.
I too have the neuropathy and balance problems in my feet and heart/blood pressure issues ongoing.
Any bug,virus,illness knocks me sideways and it does feel a longhaul journey back to full recovery.
Your story will inspire and encourage others , it isnt always easy to overcome I know but it IS worth it when you get there!
Thank you for your positive and inspiring story.
Please keep in touch and let us all know how you are keeping.
Anna. :D
 
Thank you for your coments I lost my oldest sister 20 years ago who was also a type 1. She was a small lady who had a lot of complications unfortunatly for her she would have been very sick even without diabetes and the stuff that can come with it. She passed when she was 29 and I lost my best friend and person who not only new me but knew how I felt first hand. You know the sort of person no matter how hard they were finding it to do something they would be able to show you the way and make it look effortless when it was clearly not. Or light up the darkest night with a comment from the heart. I feel awkward trying to put it down on paper as such. If only you could see me it would be a laugh and a half as I've written everything I have posted at least 4x. It reminds me of writing my best man speach. Again I say thank you any feedback greatly appreciated. I'm not all doom and gloom honestly, I just need to get used to this way of talking to you guy's

My thoughts are with you all
Vaughan a greatful man
 
I always hope my son doesn't end up with complications of diabetes and am very vigilant about his levels. Khaleb is likely to have a shortened life but I don't want the time he has here filled with pain or any greater disability. Lovely to read you are on the path to better health.
 
Hi Vaughan, well done for getting it all out,took some guts, thats a step in the right direction, just do your best to keep climbing upwards mate, we all slip now and then, but its not the end, I just slap myself and try again , good luck
 
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