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How do I get PUMP
- Thread starter NICNAK68
- Start Date
Riri
Well-Known Member
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- 1,174
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- Mid Wales
- Type of diabetes
- Type 1
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- Pump
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His there, I've been diabetic for 12 years and I've been offered a pump this year because I lost hypo awareness, fell unconscious and it has since affected my quality I life terribly. My diabetes is also very hard to control and my last HBA1C was 9.2 (used t manage low 7s) hence the decision to try me on a pump - you have to get your consultants approval along with the local health board and meet he NICE criteria for pump. As far as my LHB area is concerned, if you're well controlled they don't normally consider there's a need for a pump. Hope this helps explain.
- Messages
- 4,789
- Location
- Preston Lancashire
- Type of diabetes
- Type 2
- Treatment type
- Insulin
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- Cruelty to Animals/Children
Liars/Manipulators/Bullying
Hi, What meds you on ? dosage ?
I am heading towards 80 units of insulin , my pancreas is insulin deficient .
My DSN is keeping a tight eye on my insulin dosages if have to go over 100 it could be consider a pump time she suggested. [ we would be self funding it tho !]
Am luckily able to do this, others have had to wait a while for their pumps. [NHS assessed and funded]
I know there are people out here that take more insulin than I am, but have been told its the pancreas deficiency that is problematic with not responding well to the insulin shots.
Apparantley when you go pumping it delivers the insulin steadily over time continuous when needed .
My body tells me when my BG's are running high I go so tired and ache all over , need my bed , rest and sleep. Unable to keep going.
Hopefully some pumpers will be along soon and point you and myself in the right direction.
Anna.x
I am heading towards 80 units of insulin , my pancreas is insulin deficient .
My DSN is keeping a tight eye on my insulin dosages if have to go over 100 it could be consider a pump time she suggested. [ we would be self funding it tho !]
Am luckily able to do this, others have had to wait a while for their pumps. [NHS assessed and funded]
I know there are people out here that take more insulin than I am, but have been told its the pancreas deficiency that is problematic with not responding well to the insulin shots.
Apparantley when you go pumping it delivers the insulin steadily over time continuous when needed .
My body tells me when my BG's are running high I go so tired and ache all over , need my bed , rest and sleep. Unable to keep going.
Hopefully some pumpers will be along soon and point you and myself in the right direction.
Anna.x
phoenix
Expert
- Messages
- 5,671
- Type of diabetes
- Type 1
- Treatment type
- Pump
This website has a lot of info on getting a pump in the UK
http://www.input.me.uk/
I have one but I live in France so didn't have to go through the NHS hoops
Anna
The pump delivers continuous amounts of rapid insulin but doesn't react to your needs, you have to programme it. People on pumps have very varied total insulin needs.
I got mine (albeit in France) because I find it very difficult to avoid hypos. I need very tiny doses whenever I do any form of exercise, the pump helps me to vary the insulin when needed. (ie some gardening this afternoon and I didn't change the basal as it was only gentle weeding, it was more strenuous than I thought and in less than an hour I was down to 2.7mmol/l)
http://www.input.me.uk/
I have one but I live in France so didn't have to go through the NHS hoops
Anna
The pump delivers continuous amounts of rapid insulin but doesn't react to your needs, you have to programme it. People on pumps have very varied total insulin needs.
I got mine (albeit in France) because I find it very difficult to avoid hypos. I need very tiny doses whenever I do any form of exercise, the pump helps me to vary the insulin when needed. (ie some gardening this afternoon and I didn't change the basal as it was only gentle weeding, it was more strenuous than I thought and in less than an hour I was down to 2.7mmol/l)
- Messages
- 4,789
- Location
- Preston Lancashire
- Type of diabetes
- Type 2
- Treatment type
- Insulin
- Dislikes
- Cruelty to Animals/Children
Liars/Manipulators/Bullying
Hi Pheonix.
Is this why my DSN thought with my insulin deficiency I would benefit from a pump?
It can be programmed to my specific needs...?
Am up to 3 sometimes 4 shots now to keep my levels consistant .
Still higher than they really want me to be !
Thanks for your example with your gardening it helped me understand it more.
Anna.x
Is this why my DSN thought with my insulin deficiency I would benefit from a pump?
It can be programmed to my specific needs...?
Am up to 3 sometimes 4 shots now to keep my levels consistant .
Still higher than they really want me to be !
Thanks for your example with your gardening it helped me understand it more.
Anna.x
It seems more likely that this is a lie-to-children; absolute insulin deficit is the definition of T1, and can - in theory - be treated with MDI; here multiple daily injections are used to mimic the normal pancreas activity. An insulin pump has many advantages* but is not fundamentally different from MDI (it's a continuous approximation to the true insulin needs vs discrete MDI)
* e.g. variable basal rate mentioned above: For exercise (where I need to literally drink a litre of Lucozade per hour), dawn phenomenon or if your basal requirements vary during the day.
* e.g. variable basal rate mentioned above: For exercise (where I need to literally drink a litre of Lucozade per hour), dawn phenomenon or if your basal requirements vary during the day.
NICNAK68 said:
Hi,
It really depends, you may surprised at the amount of those who have insulin pumps aren't offered one, they ask for one.
I asked for mine, and i worked hard for mine too. I had to jump through many hoops too. My control was very dire on injections too.
Some people are offered them due to loss of hypo awareness, more and more children are getting them now which is really beneficial when a child is very insulin sensitive as you can bolus with as low as 0.025 of a unit of insulin.
If you think you would benefit from an insulin pump then ask, It's as simple as that. mind you.. asking is the easy part! I recommend anyone to thoroughly research insulin pumps before you commit to one. It's not an easy fix and it's alot of hard work. But if your willing they can be life changers as it has been for me.
