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How do these readings sound?

L

LittleWolf

Well-Known Member
Messages
677
Honestly? The GP surgery won't run tests. I phoned for the umpteenth time and argued with the receptionist until she had a doctor call me back 4 hours later. I told him my concerns (feeling weird around meals, PCOS, acanthosis nigricans and family history of Type2 etc) and he said best to do some bloods to be safe but he thought the only possibility would be T1. So I went to my appointment he booked me with a different doctor who immediately looked at my height, weight and age and told me there is no way I could be diabetic and I am depressed.

I could not get antidepressants when I was suicidal, do not fob off my symptoms when I am NOT trying to kill myself as depression. Is that a polite way of saying its all in your head? Absolutely refuse to even look at me whilst I was talking. Said in the end she would 'request' blood tests but no one has contacted me in two weeks.

Honestly am I being paranoid with 2 hour post meal readings of up 12.6 and 15.2?

Fasting levels of 6.9?

Puzzlingly, what seems to be reactive hypoglycaemic readings of 3.1 on occasion?

Is that normal??!

I'm 5ft and 107-110lbs. I don't want to get obese or lose my 22inch waist from insulin resistance and all the symptoms of PCOS like hair loss and facial hair :(

I know it sounds like im thinking of superficial fears but the doctor doesn't think my chronic skin infections/rashes, or nerve pain etc has anything to do with blood sugar and I had an eating disorder, how I look is really important to me :(


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You're certainly not being paranoid, those readings are not 'non diabetic' blood glucose levels. Esp the post meal ones. You need some professional, medical advice & support, your doc is being ridiculous! Can you ask then to refer you to a diabetes specialist nurse, either at surgery or hospital? Someone with an expert eye needs to assess your readings etc.

Don't give up! You are right to push & keep on til someone listens & helps!


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...and, before my diagnosis (with t1 13 yrs ago) I was a regular at the docs with recurrent infections, boils, cystitis and no one once thought to look into diabetes. Took months, and only came to light after a health check with my employers health insurance.




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I had a talk with my mother and she reminded me how much money it costs the national health service taking me to hospital every time I have a 'funny turn' and to just call them and ask for a glucose tolerance test or whatever.

The receptionist asked me which doctor told me to request it and I said its my mother and I's belief that the same dozen or so symptoms I've been going back and forth endlessly with for 7 years might be down to diabetes. She wasnt having any of it, then I got that woman doctor who wouldn't look at me.

Honestly it's less hassle for them to look at disorders that encompass my range of symptoms so they can all be halted or fixed at once instead if months stuck in the referral process only for someone to shrug their shoulders and say 'you are 20 and skinny, you should be fine'

I hold my hands up and say I did eat a lot of sugar as an anorexic :/

But I eat properly now. Used to do horse riding,ballet, gymnastics, badminton etc before tiredness started. Now I feel tired if I don't eat of like I've been given a stupid dose of Nytol after a meal.

Sorry people. I really have just being using this site to ***** and moan.

I don't understand why they won't just test diagnose me, treat accordingly and then I will leave them alone and can get better. I'm young enough to fix/reverse stuff NOW rather than later.

My great uncle lost his leg before he died from diabetic complications :/ I don't want to be fat and watch a vicious cycle get worse. I already wish I was as thin as I was before.

I never had any PCOS symptoms as an anorexic


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I think when I had monthly blood tests to make sure I wasn't deficient in anything as an anorexic no one thought my readings were high because they didn't take into account I likely hadnt eaten for 12 + hours. The confusing thing is I get both these numbers and occasional hypos. I was always told my mood swings were caused by hypoglycaemia. Maybe it was then and I'm trending more towards hyperglycemia now and my pancreas occasionally overshoots...

Thanks for putting up with me.

I just wanted to know whether I should shut up and stop bothering people or if I am just being paranoid and unreasonable.

RantRantRantRant


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Thankyou so much for your response by the way.

I need to stop being so wrapped up in myself I know you guys have got it hard and I'm coming DEMANDING answers an being angry forgetting you're giving up your good time to talk to me.


I could do with some friends too...x

Thankyou guys..


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Id keep on at the dr, you know your own body and if there's a famiky history it shouldn't hurt ti give you a blood test for ruling out purposes, keep us upto date with how you get on.

Kelly =)

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Thankyou so much for your response by the way.

I need to stop being so wrapped up in myself I know you guys have got it hard and I'm coming DEMANDING answers an being angry forgetting you're giving up your good time to talk to me.


I could do with some friends too...x

Thankyou guys..


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LittleWolf said:
Ok just had another 2 hour postprandial of 10.2 :/

Chicken kiev, homecooked fries and did have a cookie after...


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Click to expand...

Anyone would have a postprandial of 10.2 or higher after that meal. I tested some chicken kievs bought from a leading supermarket by comparing them to ones I cooked myself and I came to the conclusion that the shop bought ones were made of mechanically recovered chicken and rusk baked into a cake. This explained how they were all the same shape and how they got the filling into them.

So your meal consisted of kiev (flour), fries (potato) and a cookie (flour). I am surprised your reading was as low as 10.2.
 
But 12.6 & 15.2 are MOST DEFINITELY NOT 'normal' postprandial readings. Unfortunately diabetes has a lot of grey areas and it doesn't sound like you have had proper testing for it??? Perhaps you could ask for a glucose tolerance test? To see how your body reacts to sugar, this would throw up any abnormal readings?

Insist! Quote the numbers above...

Just a thought, you could do an experiment of your own!? Presume you have a blood glucose meter to be able to test with (otherwise how did you know your numbers?) your fasting number looks normal but just check it again, then check 2 hours after eating. Perhaps throw in a carb heavy meal to see how your body reacts? Or a can of full sugar coke...test 2 hours after to get a feel for what's going on. Worth a go?




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Ive been doing that because my grandma use to watch my numbers (shes diabetic, my ma is hypoglycaemic) and didn't like them. Plus I have PCOS.

I have been doing pre and post, fasting etc with different kinds of foods.

It's not so much that Im panicking now but seeing as I'm creeping up in the morning and it's only in the last couple weeks I suddenly got quite a few over the 200/ 11 mark and waking up in the middle of the night being sick, carted off to hospital several times a month and things at a skinny 20 years old well... What'll things be like in 10 years time? I already have a lot of problems with skin, recurring infections, muscle and nerve pain, don't want more.

Today's after grilled chicken and salad with mayo was 10.8... Which is better I guess.

Really don't know what to do because the receptionist made me feel like a dumb sh*t for requesting blood tests.

Plus Im having surgery in June and I hear surgery and blood sugar don't add up well.

Thanks for advice guys. I need to request a repeat prescription got my BC pill so maybe I'll try mentioning again... Or just bring the meter but they'll think I've gone overboard...


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Hi Littlewolf, your readings don't sound at all 'normal' to me. I disagree with the suggestion that your meal produced a normal result. Someone who is normal would definitely not have gone that high. Fasting of 6.9 is not normal - it might be normal for many diabetics but not for a non-diabetic. I am getting highish 2 hour postprandial readings and anything even remotely near double figures makes me feel really ill, but have probably spent most of my life in the 4-5 range, so 9 is high for me. My fasting is still really low at 3.3 (no danger of hypos as not on meds and quite frankly I am fine with those levels). Your doctor is being an a**. If you can, take extensive readings throughout the day for a couple of days and keep track on exactly what you have eaten. Take a test before and at +2 hours. Take all this to your surgery and show your doctor, if he is still not willing to help, demand to be referred to a specialist, ask for a c-peptide and a GAD test too. If he is not willing to help, dare I say it - demand it, or threaten to sue if it turns out that you are diabetic and may be exposing yourself to unnecessary risks, also remind him that the government gives the practice a very nice bonus for every diabetic on their lists. Your are dear girl (I guess you are female) being fobbed off.

Have a look at http://www.bloodsugar101.com//url] ...go back to quack armed with info. Good luck.
 
It seems to me that half the problem is that you seem to be dealing with the doctors receptionist! They are not medically qualified! They do answering the phone and admin work. Yes, you've dealt with a dodgy doctor as well, who appears to have the miraculous skill of ruling out diabetes by looking at someone (think of all the money the NHS could save on blood tests! Lol).

So, get another doctor either from the same practice or change practice, tell them your post prandial bloods, which are absolutely NOT normal. And hopefully they will sort you from there.


Type 2 on Metformin, diagnosed Jan 2013, ultra low carber, Hba1C at diagnosis 8% (11mmol), now between 5 and 6 mmol. 13kg lost so far :)
 
Similar story to mine. Years going to doctors with various things, fatigue, feeling sick when eating, not sleeping etc, as I was normal weight and height told nothing wrong with me. Ran all blood tests.except one for sugar levels. When they did get round to it admitted to a and e with blood and ketone levels through the roof. Three days later in hospital diagnosed type 1.

Your levels are not normal non diabetic levels. My wife has eaten a carb heavy meal and not been above 7 two hours later. Might be worth getting some.ketone sticks from pharmacy and if positive go straight to a and e and bypass the docs. if negative see.a different doc at surgery and not tell receptionist why you need the appointment. You do not have to tell them!

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I AM a type 2 diabetic, diagnosed a year and a half. I've never had a reading of more then 9 2 hours after a meal and woukd be very upset if I got a 15. I think it would be helpful to have a further test.

I think that a panicky older male doctor has seen you, seen your notes about being depressed or the things you were saying and panicked and so just gone 'blurgh a hysterical girl get her out'.

Perhaps I'm misunderstsnding but I even if you WERE making a false set of readings and getting upset when theres nothing physical there that still sounds to me like something that they should look at. So I don't personally see how this approach has helped over just testing you and reassuring you if nothing is physicslly wrong.

I hope you get some assurance soon :-)
 
Oh dear, horrible to hear that, brett :/

I've been carted to hospital enough times (often because someone found me on the floor. I hate the idea of costing the ambulance service money :( ) but every time just ended up going home even if I'm vomiting in the doorway after discharge from A and E... but there can't have been ketones in my urine because the one test they did do was a urine sample. They saw nothing and told me just to go home.

I'm a little confused in the sense I can't gauge what is 'normal' I keep hearing up to 10mmol is perfectly normal as well as the exact opposite.

That being said my levels are not crazy high like I've heard from T1s. If I were in trouble anytime soon I'm sure I'd know... My long distance partner is T1- apparently you don't have issues with ketones until you get to silly high levels?

I don't know what I'm doing sort of hovering in the middle. I'm only 20, no idea if things will just level out as I get older or what.

I feel guilty seeking help because he went into DKA again a few days ago and here I am fretting over a bedtime reading of 12.6.

Not sure If I should wait for things to get worse so no one thinks I'm a time-waster/hypochondriac. I told paramedic and later the A and E doctor I wasn't a diagnosed diabetic but self-testing he rolled his eyes and immediately must have thought 'what a nut'.

Do any of you experience a 'delayed reaction' in rises? Like I checked my BG about 40 minutes after a naughty piece of Turkish delight brought back for me from Cypress and it had barely budged from 7 at 5pm, so I had dinner at 6:30pm and that 12.6 was at 10:30pm. Usually if anything happens a few hours after eating it's a hypo at about the 4-5 hour mark. ***

Ugh anyway, I will try the ketone sticks. What worries me is I'm a recovered anorexic. The thought of burning fat/ketosis is appealing. I'm 107 lbs, but I could happily lose a couple, still :/ I don't want to get back into unhealthy patterns >_< --------------

Sorry, I am trying to take the advice on board.. I know I'm difficult. Under alot of stress at home and university :(

ps. i don't get it either. Seeing as I've had the same set of persistent symptoms for a long time, the recently diagnosis PCOS (which took ALOT of nagging) it would do them a huge favor to a) get to the bottom of the problem or b) give me the assurance and to **** off, go home and stop bothering them.
 
Suzie... wait what?

Never had a post meal reading over 9??! That's after medication, right?

What were the circumstances of your diagnosis if I may ask? How would anyone have noticed? Did you notice something was up yourself and do of alot of nagging?
 
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