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Type 1 Diabetes
How long was I diabetic before I was diagnosed?
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<blockquote data-quote="Flakey Bake" data-source="post: 1007222" data-attributes="member: 71327"><p>My type 1 journey took about 4 years. I had one high BG reading late in pregnancy and following the birth of my daughter I probably had about 1.5 years of feeling ill. Lots of infections, heart arrythmia, fatigue, weight loss, muscle wasting (the list goes on) I put it down to to having a baby, going back to work, sleepless nights etc. But I was really dying on my feet. I was too fatigued to realise how ill I was. My hubby dragged me to the doctors. They did the tests and I was called back the same day B=29.8 and told definately type 2. I initially improved with type 2 meds, but after a year of reasonable control, things got worse, much much worse. I fought with the doctors for about 1.5 years. My BG was consistently high teen/20s and I was taking the max doses of metformin, glipicide and sitaglipin, low carb diet, all to no effect. The GPs would not believe I could be type 1 because I was 39 years old and overweight - therefore I must be type 2 and stuffing my face with too much sugar! I saw a different GP and told him, if I didn't get insulin I was going to die. That worked, but it still took nearly 2 months to get referred. At the hospital they did the GAD tests and the result were through the roof. All hell broke loose, frantic phone calls to get me in as an emergancy. The nurse said 'you have to come back in now, you are TYPE 1, you need insulin NOW'! I was like 'well I have been for the last 4 years, but nobody would listen to me'. I have good care now, but I worry about how much damage occurred to those uncontrolled years when misdiagnosed. EVERYONE should be tested for type 1 upon first diagnosis of diabetes and again a year later just in case the anti-GAD titre were too low to detect during the early phase diabetes. So many older type 1's are misdiagnosed. A simple cheap test may save a lot of heartache. The effect of 4 years misdiagnosis effected me in other ways, confidence, blame and self esteem. I was trying so hard to control my blood sugar and failing for years whilst the GPs basically indicated that they thought I wasn't trying hard enough.</p></blockquote><p></p>
[QUOTE="Flakey Bake, post: 1007222, member: 71327"] My type 1 journey took about 4 years. I had one high BG reading late in pregnancy and following the birth of my daughter I probably had about 1.5 years of feeling ill. Lots of infections, heart arrythmia, fatigue, weight loss, muscle wasting (the list goes on) I put it down to to having a baby, going back to work, sleepless nights etc. But I was really dying on my feet. I was too fatigued to realise how ill I was. My hubby dragged me to the doctors. They did the tests and I was called back the same day B=29.8 and told definately type 2. I initially improved with type 2 meds, but after a year of reasonable control, things got worse, much much worse. I fought with the doctors for about 1.5 years. My BG was consistently high teen/20s and I was taking the max doses of metformin, glipicide and sitaglipin, low carb diet, all to no effect. The GPs would not believe I could be type 1 because I was 39 years old and overweight - therefore I must be type 2 and stuffing my face with too much sugar! I saw a different GP and told him, if I didn't get insulin I was going to die. That worked, but it still took nearly 2 months to get referred. At the hospital they did the GAD tests and the result were through the roof. All hell broke loose, frantic phone calls to get me in as an emergancy. The nurse said 'you have to come back in now, you are TYPE 1, you need insulin NOW'! I was like 'well I have been for the last 4 years, but nobody would listen to me'. I have good care now, but I worry about how much damage occurred to those uncontrolled years when misdiagnosed. EVERYONE should be tested for type 1 upon first diagnosis of diabetes and again a year later just in case the anti-GAD titre were too low to detect during the early phase diabetes. So many older type 1's are misdiagnosed. A simple cheap test may save a lot of heartache. The effect of 4 years misdiagnosis effected me in other ways, confidence, blame and self esteem. I was trying so hard to control my blood sugar and failing for years whilst the GPs basically indicated that they thought I wasn't trying hard enough. [/QUOTE]
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