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Message: <blockquote data-quote="RAH79" data-source="post: 1074288" data-attributes="member: 186173">Hi Mindy, I completely know where you are coming from! I have questioned myself over the last few days going from feeling like I'm messing people around to people generally just don't care if it;s not written in some text book or proven by research approved by NHS, then I get the symptoms back and I'm like "No I'm definitely not making this up!"I went to A&E last Thursday evening because my shortness of breath and chest tightness was really bad and I'd had enough, my BG was 15.8 mmol.  I went into A&E and told them I was a Type 1 with breathing problems, so I got seen by triage within 10 minutes (There was a massive queue in the waiting room so I felt really bad jumping the queue, but knew I had to get something sorted).  I had an ECG and bloods taken.  I went in at 9.30 pm and by 6.30 am the following morning (yup 9 hours later) I was seen by an A&E Dr for the results.  All ECG and X-ray results came back clear (which is a relief!), I explained symptoms and told him that I felt it was related to BGs he said he had never heard of this symptoms that was linked to high or low BG (apart from DKA which was ruled out given that I had a Hb1Ac of 57 and ketones was 0.2), however he did admit that he was only an A&E Dr that specialised in life threatening situations i.e Heart attacks, broken bones, stitches (I felt very guilty at this point for wasting his time), He said that there wasn't anything else he could do apart from suggest I see a diabetic consultant.  I saw a registrar later that day who said that it could be a symptom but reiterated the need to get BGs under control, I told him how I have been trying to do this for over 3 weeks now but Diabetic DSN and dietician have no answers I had a CGM fitted for a week and all they told me following the results was "Ooh yea it is all over the place, but we can't figure out why" << NOT HELPFUL!  So he said he would make recommendation to my consultant that I go on pump.  I've also tried to rule out other possible reasons such as acid reflux (symptoms do not go after taking rennies or any other products), asthma (x-ray clear and although inhaler helps when symptoms are bad, does not stop it from returning).  The only link I have is that the breathing and chest tightness starts when BGs are below 3.0mmol or above 15mmol.I called DSN today to ask for timescales on pump, she said it first has to be recommended by Consultant so I would need to see him first (even though DSN has been talking about putting me on a pump for the last three weeks, she has only now told me I need to see consultant first) My six monthly review was due this month anyway so called booking office to make appointment.  14th April 2016 is the earliest I can be seen!!! Arrrgghh this is soooooo frustrating!!! No answers, no help, no support I am completely on my own, no one understands me, I get the feeling they think I'm making this up!! I know this is diabetic related I can almost tell without doing a test what my BG is just by the state of my breathing / chest tightness....*** why is the NHS so reactive instead of proactive, I've never in my lifetime been admitted to hosptial due to DKA I've tried everything to sort this out and get things under control, I am absolutely exhausted!! Do you really have to go DKA before they listen to you!!?....sorry rant over, I've just had a gutsful and feeling at a complete loss... <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite3" alt=":(" title="Frown    :(" loading="lazy" data-shortname=":(" /></blockquote>

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