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<blockquote data-quote="donnellysdogs" data-source="post: 1258592" data-attributes="member: 17713"><p>[USER=334836]@Ellies-mum[/USER]</p><p></p><p>Your daughter sounds a lot like a friends daughter ([USER=26617]@martina[/USER]). They just want to be "normal" with friends.... And doing the same as others. </p><p></p><p>I so wish there was extra support available for children and their parents. It's tough nowadays. More so than 30+ years ago... We didn't have today's choices of foods etc.... Or activities. I had youth club and watching football match with a brother....</p><p></p><p>I think you parents have to lighten the load of children with T1 nowadays to enable them to feel normal with their friends...indoors would be brilliant if every child had a CGM and could be read by a parent and a remote bolus or jumping in with a nice treat for a hypo! But we have to run with the help we have... </p><p></p><p>Can I ask you and any other parents... Would it actually help your children to meet an "older T1" who has lived well and is happy? Would there be any benefit to hospitals to have volunteers like this for children struggling. Obviously volunteers would have their own stories and would be scrutinised to ensure we could give positives to struggling children.</p><p></p><p>I just wonder whether this is something that could be helpful? Or a buddy system perhaps with older T1's that can give encouragement? We all know the NHS is cash strapped.. But some people like me do things in the background trying to help others. Ie about 5 years ago I had a pancreatic cancer gentleman from this forum come and stay with us in Wales. It was a break for him and his family. He knew he would be safe with us as he could inject and eat and knew I was experienced with insulin, hypo's etc but could give him time to relax but to sort out his affairs... No cost to this gentleman and it was a honour to help.... </p><p></p><p>Would there be anything that could help your daughter more than the NHS offers? That perhaps charity's or individual oldies could help with as volunteers?</p><p></p><p>I'm glad that you are posting and that perhaps help can be two way... I would love to know a way to help children/parents more and you are giving me prompts in my thinking. </p><p></p><p>I hope you can perhaps use the sugar cube idea.. I know that three sugar ciphers are normally enough for me if I'm above 3.0. Of course it doesn't have to be sugar cubes. Could be jelly babies in a container. The container just needs... "I'm hypo" written on it and if like me I never told anybody, ever.... Include "tell somebody"..... It is the best help I've ever been given to make others aware.</p><p></p><p>Thinking of you...</p></blockquote><p></p>
[QUOTE="donnellysdogs, post: 1258592, member: 17713"] [USER=334836]@Ellies-mum[/USER] Your daughter sounds a lot like a friends daughter ([USER=26617]@martina[/USER]). They just want to be "normal" with friends.... And doing the same as others. I so wish there was extra support available for children and their parents. It's tough nowadays. More so than 30+ years ago... We didn't have today's choices of foods etc.... Or activities. I had youth club and watching football match with a brother.... I think you parents have to lighten the load of children with T1 nowadays to enable them to feel normal with their friends...indoors would be brilliant if every child had a CGM and could be read by a parent and a remote bolus or jumping in with a nice treat for a hypo! But we have to run with the help we have... Can I ask you and any other parents... Would it actually help your children to meet an "older T1" who has lived well and is happy? Would there be any benefit to hospitals to have volunteers like this for children struggling. Obviously volunteers would have their own stories and would be scrutinised to ensure we could give positives to struggling children. I just wonder whether this is something that could be helpful? Or a buddy system perhaps with older T1's that can give encouragement? We all know the NHS is cash strapped.. But some people like me do things in the background trying to help others. Ie about 5 years ago I had a pancreatic cancer gentleman from this forum come and stay with us in Wales. It was a break for him and his family. He knew he would be safe with us as he could inject and eat and knew I was experienced with insulin, hypo's etc but could give him time to relax but to sort out his affairs... No cost to this gentleman and it was a honour to help.... Would there be anything that could help your daughter more than the NHS offers? That perhaps charity's or individual oldies could help with as volunteers? I'm glad that you are posting and that perhaps help can be two way... I would love to know a way to help children/parents more and you are giving me prompts in my thinking. I hope you can perhaps use the sugar cube idea.. I know that three sugar ciphers are normally enough for me if I'm above 3.0. Of course it doesn't have to be sugar cubes. Could be jelly babies in a container. The container just needs... "I'm hypo" written on it and if like me I never told anybody, ever.... Include "tell somebody"..... It is the best help I've ever been given to make others aware. Thinking of you... [/QUOTE]
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