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I diagnosed myself in 1964. My problem has recently been recognized. Am I alone?

Y

yetta2mymom

Well-Known Member
Messages
337
Location
Winchester Massachusetts
Type of diabetes
Don't have diabetes
Treatment type
Diet only
Dislikes
?
In 1957 I started having symptoms which a smart doctor realized (my educated guess) in late 1963 sounded like low sugar episodes. When my glucose tolerance test rose for 2 hours before dropping precipitously (test extended) in the third hour the (expert?) doctor said I was prediabetic and didn't listen to me or my wife describing all my low sugar episodes. Does anyone have similar history ?
 
Tipetoo said:
I would think you are, as you have very strange ideas that make no sense.

You seem to think you are better than the medical profession.
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Hi
I have reactive hypoglycemia. If I eat a lot of sugar/starch/alchol I get very low sugar about 3 1/2 hours later. Recently doctors have identified my type of problem. I also get chronic fatigue if I eat too much sugar/starch/alchol doctors are mostly unaware of that problem for people with my type of reactive hypoglycemia. Please explain what does not make sense. Where is it written that you can not figure out what your medical problem is?
 
A friend of my family self diagnosed pituitary cancer. It took him awhile to find a doctor to believe him. I self diagnosed vit d deficiency. Doctor didnt believe me because I get a fair bit of sun. Told me to go off the vit d and then get a blood test. Symptoms came back, blood test said low levels. Dr said your deficient need to take a supplement. Nothing wrong with self diagnosing, just need a second opinion to make sure. Doctors are a bit careful with self diagnosis nowadays due to Dr Google.
 
I had a worse problem. My form of sugar processing is not found in the medical literature. I had to figure everything out for myself. I said to my wife's doctor you know more than me. He had read my web site and he said you know more than me. He than said after listening to my wife's heart that she had a heart murmur. I happen to have talked to a doctor who followed up on my wife's heart valve replacement that she would have a murmur because of the difference between her original heart valve and the replacement. No I do not know more than her doctor. I have more knowledge than most lay people but I have not studied the details. I know that HPL exists but only by going to google after a doctor who studies the adrenal gland pointed it out after I asked. It is obvious that people with my genetics produce insulin resistance but how?
 
I had a worse problem

Why past tense? You still have it
 
Mike D said:
I had a worse problem

Why past tense? You still have it
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You sound like you would find the following interesting. I have overwhelming anecdotal evidence that both forms of reactive hypoglycemia are due to an auto immune reaction which has destroyed one type of cell in the adrenal glands. This reaction leads to stopping the release of hormones that everyone uses to prevent very low blood sugar after we release insulin. We also use these hormones before we have an emergency release of sugar from the liver. If this wasn't true, I would be dead. I still have the emergency release and recover. I purpose that type 2 diabetes is these hormones running amok.
 
I doubt your’re alone. Doctors aren’t infallible, particularly general practitioners. Really their role is front line defence and recognising when to refer patients to specialists?
 
Jim Lahey said:
I doubt your’re alone. Doctors aren’t infallible, particularly general practitioners. Really their role is front line defence and recognising when to refer patients to specialists?
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You have it backwards. My general practitioner (my wife says he was famous for studying all the time) guessed that I had low sugar episodes. The specialist was stuck in the mistake doctors have made for a long time that all humans process sugar the same way. He assumed my glucose tolerance test which rises for the 2 hours of the test signified a very bad case of prediabetes. Actually I have figured out that there are humans who save energy by never changing sugar into fat and then later fat into sugar except when it is necessary. This is great when there are famines. A weakness is that all women who process sugar this way get gestational diabetes. In fact except for some outliers these are the women who get gestational diabetes.
 
yetta2mymom said:
He assumed my glucose tolerance test which rises for the 2 hours of the test signified a very bad case of prediabetes.
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I think these symptoms are fairly common for reactive hypoglycemics? (Tagging @Lamont D who is an RH expert).
 
Newer members of the forum not familiar with yetta2mymom's posts might want to read his blog for some background information.
 
Jim Lahey said:
I doubt your’re alone. Doctors aren’t infallible, particularly general practitioners. Really their role is front line defence and recognising when to refer patients to specialists?
Click to expand...
You didn't read what I posted. In 1963 the general practitioner used by my wife was very well read and recognized symptoms of low blood sugar. The specialist thought all patients refereed to him were diabetics and treated them that way. In fact I have been locked out of the bulletin board of his facility because I complained that I was misdiagnosed as having predibetes when there was something wrong with my adrenal glands and asked if anyone else was misdiagnosed.
 

Hi, In 1957 you started having symptoms, so that's 62 years ago. Things have changed dramatically since those times and did the latter happen in 1963 ? Just curious
 
Hi @yetta2mymom ,

Nobody can diagnose you on this forum. Non ethical & agaist DCUK forum ethos rules...
You have a hypothesis on a certain "gene." (Read your threads.)

Self diagnosis needs a formal back up from a Heath care proffessional. "Dr Google" can can tell you what you want to hear or not.. However, totally inconclusive without the relevant lab tests.

You mention in a later post on this thread, regarding your specialist.
yetta2mymom said:
He assumed my glucose tolerance test which rises for the 2 hours of the test signified a very bad case of prediabetes. .
Click to expand...

So, what is your current HbA1c?
 
Robinredbreast said:
Hi, In 1957 you started having symptoms, so that's 62 years ago. Things have changed dramatically since those times and did the latter happen in 1963 ? Just curious
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I got married and my wife's doctor listened to my symptoms and sent me for a glucose tolerance test. I did not realize that what I ate would have effects 3 1/2 hours later. It took about another 45 years to realize that my chronic fatigue was due to less sugar than my very low sugar episodes but I did.
 
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