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Diabetes Discussion
Type 1.5/LADA Diabetes
I have an unusual case so far...where do I belong?
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<blockquote data-quote="Amiblue" data-source="post: 1754940" data-attributes="member: 363182"><p>Hi,</p><p></p><p>I hope your appointment will go well.</p><p>There is another rare type of diabetes called MODY. It is apparently due to a change in our genes. Some of them can be tested by a DNA test. I am thinking about it because you don't seem to have antibodies and mention being slim ( it definitely doesn't rule out type 2 but may mean you are not very insulin resistant). If you do the c- peptide test, the range for MODY is in between type 1 and 2. The DNA test is quite expensive and the NHS may not do it straight away. Another caracteristic of MODY, if you struggle over time to keep your good numbers with diet alone, is that they are extremely sensitive to gliclazide ( and possibly other sulfonylureas). Some people can stay decades on a very low dose. </p><p>All very complex as you know! I am happy to give you more information if you want, as our cases are quite similar, except that I didn't get the chance to be diagnosed as early as you.</p><p>As far as numbers are concerned, I try to stay below 7.8 one hour after meal and to be around 6 two hours after. I found out that 70 g of carb is what I need on a long term and adjust the medication accordingly. What I mean is that a very low carb diet doesn't fit everyone, long term....</p><p>Good luck!</p></blockquote><p></p>
[QUOTE="Amiblue, post: 1754940, member: 363182"] Hi, I hope your appointment will go well. There is another rare type of diabetes called MODY. It is apparently due to a change in our genes. Some of them can be tested by a DNA test. I am thinking about it because you don't seem to have antibodies and mention being slim ( it definitely doesn't rule out type 2 but may mean you are not very insulin resistant). If you do the c- peptide test, the range for MODY is in between type 1 and 2. The DNA test is quite expensive and the NHS may not do it straight away. Another caracteristic of MODY, if you struggle over time to keep your good numbers with diet alone, is that they are extremely sensitive to gliclazide ( and possibly other sulfonylureas). Some people can stay decades on a very low dose. All very complex as you know! I am happy to give you more information if you want, as our cases are quite similar, except that I didn't get the chance to be diagnosed as early as you. As far as numbers are concerned, I try to stay below 7.8 one hour after meal and to be around 6 two hours after. I found out that 70 g of carb is what I need on a long term and adjust the medication accordingly. What I mean is that a very low carb diet doesn't fit everyone, long term.... Good luck! [/QUOTE]
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I have an unusual case so far...where do I belong?
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