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I really need any advice or help

@Morgan78 You might find this video helpful: For anyone outside the US puzzled by Dr Bernstein's numbers, blood glucose in the US is expressed in mgd/dl. To translate these to the UKmmol/L, divide by 18. Thus 100mg/dl = 5.55mmol/L and 83 (which Dr B considers normal) = 4.6mmol/L
 
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Thinking of diabetes may not be stupid, but utilising illicit insulin, frankly, is.

If you have been tested for diabetes, there are two tests usually done, for initial views.. The first returns the rough average of your blood glucose of the last 2-3 months. The other tends to be a spot check, looking at your score at that point.

For those at risk of t1, the tests differ, but for most T1s, they are diagnosed in hospital in a crisis situation - sometimes near death. T1 can come on very quickly.

For some people, the hbA1c test may be unreliable. Those people are often those with blood disorders such as serious anaemias and for those of Afro-Caribbean heritage. If you fit either group, a fructosamine test might be helpful.

In the meantime, if you are changing your GP, it is critical you are truthful with him, else he is working from partial facts. That would certainly hinder his progression to any suitable diagnosis.

As I understand it, these days, people changing doctors have to have a bit of a well-man/woman appointment, before going fully onto the books. This helps the new surgery assess your health and help in form them of any relevant monitoring you might require moving forward. Please do be aware though that such an appointment is quite often undertaken by a Practise Nurse or Health Care Assistant, so whilst it is likely to be mandatory, I doubt it is an appointment where a lot of progress would be made.

Again, I will join the others suggesting in the strongest terms that you cease insulin abuse immediately. It is not in your own best interests, or that of your family to have you playing health Russian Roulette.
 
Sending you a massive hug, you have had a horrible time.

Weight can be hard to lose if you have thyroid issues.

I would certainly have a bash at low carb. I went keto when I was diagnosed, purely to get my numbers down. Weight loss was a byproduct.

I had problems with hips and knees. These disappeared with the weight.
 

The way I see it. The past few years have seen events for you that could cause depression.
Physical injury, bereavement & job loss. Then there is the family dynamics changing with your wife working.
I empathise, fortunes change & sometimes when they dip it can be a knock.

You play an important role too, bringing up your kid. This shows as a positive that you wish to retain energy to keep up with the running about.
Go check in with a new GP, don't mess with unnecessary drugs.
... Let us know how you get on with some lab results.

Best wishes.
 
I’ll focus on the future rather than the past but concur that if you haven’t already please stop the insulin immediately.

reading your symptoms and diet my immediate thoughts went to type 2. For which extra insulin is a very short term help but long term it makes it worse. Your diet is extremely carb and sugar heavy and blood glucose levels too high can give all the symptoms you list. So a blood glucose monitor testing first thing, before and 2 hours after meals will give an idea of how your body is reacting to food and if your hb1ac corresponds. It seems an eminently sensible next step and will give you evidence to put in front of the new dr if need be.

Regardless of diabetes status you’ll probably feel much much better without all that glucose if you modify your diet both weight and mood wise and quite likely it will reduce inflammation and pain. Be aware cutting carbs and unregulated/unmanaged insulin use simultaneously is definitely a hypo risk, even prescribed and under a dr it needs very careful monitoring and management.

I’d also agree thyroid would be a good thing to get checked.
 
Thanks everybody for your input. Been having a rough couple of days with no energy.
Didn’t really eat on Friday and Saturday as felt too rough. Had some bread and apples yesterday which for someone 112kg isn’t a lot but I got up after my usual 3-4 hours of broken sleep and got my first 8hr fasting reading with a glucose meter. That was 5.4 mmol/l. I made breakfast (cup of tea (2 sugars) and just a few slices of bacon. Didn’t want toast or eggs or anything. So I did the blood test and it was 4.7 mmol/l. Waited 2 hours and it was 11.9 mmol/l.

I don’t know whether that’s normal (I checked again 15 mins later as I wanted to make sure I hadn’t screwed up the test somehow and it was 11.7 mmol/l.

Is this anything I need to show the docs or is that normal? I don’t even think the GP are taking appointments for general things at the moment.
 
Drs are screening appointments with phone calls first in many instances rather that not dealing with issues. That call allows them to decide the best way forward. Many issues can be dealt with by conversation, others then need an in person appointment.

The fasting readings look normal enough but 11.7 two hours after two sugars in a cup of tea seems high to me. I think you need to continue checking before and after eating whilst also noting what that food is to see if this continues. Keep a log of it in case you do need to take to the dr.

What did you decide to do about the style of eating you have? The bread, apples even and definitely the sugar are all higher carb options.

How long ago was the hb1ac of 39?
 
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