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I thought it was just me

T2#Me

Well-Known Member
Messages
136
... but I see many people here are let down by their doctors.

My own experience was first of all to be abruptly informed by my usual doctor that I was now a "pre-diabetic" and given a leaflet. Advised to lose weight and take more exercise. This from a doctor who has been treating me for years for heart disease (two heart attacks and a mini stroke, age 73). When I asked if this meant I would later become fully diabetic, her reply was "Yes, but not like having to take insulin or any thing". This said over her shoulder, eyes glued to her computer screen. So reassuring ...
Then she referred me to a "prediabetic information seminar" (two months later) and that was that. I was stunned.
I duly attended said 2 day seminar, only to find them handing out outdated and proven-to-be-wrong ancient NHS advice about eating fibre (regardless of sugar) and taking long walks. etc etc. , fill up on bread, eat low fat food (regardless of sugar), fruit (regardless of fructose) etc etc etc. - the same glorious low fat advice that caused the world wide obesity crisis in the first place.
Came away thoroughly confused and upset, and did nothing.

Next, I was called in to tell me I had now been promoted to Diabetes 2, due to Hba1c result of 84, twice in a row. This time I was told to attend a "Diabetes Clinic" where I would receive information and treatment instructions. And that was that. Took that doctor off my Christmas Card list ...

Two weeks later, I attended the "Diabetes Clinic" where I met a terrific friendly helpful non-patronising doctor who sat me down, explained what T2 actually is, answered my questions fully, advised me about the protocol to keep checks on my blood sugar, cholesterol, liver functions, weight, blood pressure - also special tests on my eyes and feet - advised me to take my flu jab this year, as flu can be nasty for those with diabetes. She even managed to advise me without embarrassment nor discomfort that in the event of the diabetes giving me erectile dysfunction, there was assistance available ... what a doctor!
(Incidentally, she fell firmly into the camp of "diabetes, once diagnosed by being over 84 twice, can not be reversed, but can be described as in remission if blood sugar goes below 84). At least she was crystal clear in her definition.
She advised they would set up an eye test and foot examination, and test my hba1c in 3 months, to keep an eye on the situation.
(I had already told her I was already on a low carb diet for years, after reading a book by Gary Taubes, but admittedly had relaxed in recent months ... and I agreed that more gentle exercise was in order. Big news for my dog!) Presumably the insulin resistance expected in old age has now clicked in and is throwing its weight about?

She did not mention blood monitoring, presumably she is following the Try Diet And Exercise First method ... fair enough.

I am so pleased to find this forum, and intend to scour the posts for information and advice, which (despite the last delightful doctor) I felt was sadly lacking, and frightening, in the NHS treatment so far.

Apologies for the wall of text, which is partly just venting and partly to show others that it is unfortunately not so unusual when the initial shock of a diabetes diagnosis is not always treated in a sensitive and helpful manner by busy GPs., even those who have known and treated you for years. Maybe they don't know how to handle it?

Looking forward to the forum ...
 
Hello and welcome @T2#Me
I'm afraid that most GP's seem to not have a clue. Which is a real shame because such a huge amount could be done when early on in diagnosis if correct dietary advice was given. However here we all are.
I'll tag @daisy1 for the great into to Low Carb and ow a whole load of us keep our errant blood sugars under firm control.
Please have a read around and feel free to ask any questions we're all here to help and the great thing is we've all been where you are now!
 
Hi @T2#Me and welcome to the best place on earth for diabetes! I'll tag in @daisy1 who will be along with her useful information. I personally would recommend getting a BS meter - how else will you know what impact the changes you are making are having?
 
@T2#Me

Hello T2#Me and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask as many questions as you need to and someone will help.

BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
Welcome to the forum,
and sorry for your not so professional welcome by several medically oriented instances.

The problems you have met on your way recently are, it seems, more or less very common. I state this, as a forum member from Finland, and the same sort of problems can definitely be found over here also.
From your own introduction, I draw the conclusions, that you already know a lot about Type 2 and what you are dealing with.
Hope you will be able to find answers here,to questions you may still have remaining. You will at least be able to find people here, that are really willing to try to help, and this hopefully can make some important difference!
 
As first posts go, yours is up there with the best! Welcome.
 
UPDATE
Called my surgery today to see if I was booked for another Diabetes Clinic appointment ... was told I was down to be recalled in December, near Christmas.
Nice that they are so relaxed about it all ... why does this not fill me with confidence?
 
Could you tell us what you usually eat?
Sorry for the delay in replying, appreciate your interest.
I'm just classic LCHF, based on Atkins and Gary Taubes ... cut out potatoes, bread, pasta, rice, sweets, yada yada ... my problem is I grew complacent and gave myself much too much leeway and treats, because I felt well and comfortable with my weight. No excuse, I was just much more concerned with my heart disease, and didn't really worry about weight and bloods for a long time (looking back). Silly really.
Still, I am pretty hopeful I can get back on the straight and narrow and get my blood sugar in order with diet and exercise, and now I know I have to keep it up and not slack off :smile:
What is appalling me is the NHS attitude to Diabetes - I received much better attitude and treatment with my heart attacks and heart disease treatment ... I guess Diabetes is not sexy :) Perhaps it is just me - I am old, and grumpy.
 
... but I see many people here are let down by their doctors.

My own experience was first of all to be abruptly informed by my usual doctor that I was now a "pre-diabetic" and given a leaflet. Advised to lose weight and take more exercise. This from a doctor who has been treating me for years for heart disease (two heart attacks and a mini stroke, age 73). When I asked if this meant I would later become fully diabetic, her reply was "Yes, but not like having to take insulin or any thing". This said over her shoulder, eyes glued to her computer screen. So reassuring ...
Then she referred me to a "prediabetic information seminar" (two months later) and that was that. I was stunned.
I duly attended said 2 day seminar, only to find them handing out outdated and proven-to-be-wrong ancient NHS advice about eating fibre (regardless of sugar) and taking long walks. etc etc. , fill up on bread, eat low fat food (regardless of sugar), fruit (regardless of fructose) etc etc etc. - the same glorious low fat advice that caused the world wide obesity crisis in the first place.
Came away thoroughly confused and upset, and did nothing.

Next, I was called in to tell me I had now been promoted to Diabetes 2, due to Hba1c result of 84, twice in a row. This time I was told to attend a "Diabetes Clinic" where I would receive information and treatment instructions. And that was that. Took that doctor off my Christmas Card list ...

Two weeks later, I attended the "Diabetes Clinic" where I met a terrific friendly helpful non-patronising doctor who sat me down, explained what T2 actually is, answered my questions fully, advised me about the protocol to keep checks on my blood sugar, cholesterol, liver functions, weight, blood pressure - also special tests on my eyes and feet - advised me to take my flu jab this year, as flu can be nasty for those with diabetes. She even managed to advise me without embarrassment nor discomfort that in the event of the diabetes giving me erectile dysfunction, there was assistance available ... what a doctor!
(Incidentally, she fell firmly into the camp of "diabetes, once diagnosed by being over 84 twice, can not be reversed, but can be described as in remission if blood sugar goes below 84). At least she was crystal clear in her definition.
She advised they would set up an eye test and foot examination, and test my hba1c in 3 months, to keep an eye on the situation.
(I had already told her I was already on a low carb diet for years, after reading a book by Gary Taubes, but admittedly had relaxed in recent months ... and I agreed that more gentle exercise was in order. Big news for my dog!) Presumably the insulin resistance expected in old age has now clicked in and is throwing its weight about?

She did not mention blood monitoring, presumably she is following the Try Diet And Exercise First method ... fair enough.

I am so pleased to find this forum, and intend to scour the posts for information and advice, which (despite the last delightful doctor) I felt was sadly lacking, and frightening, in the NHS treatment so far.

Apologies for the wall of text, which is partly just venting and partly to show others that it is unfortunately not so unusual when the initial shock of a diabetes diagnosis is not always treated in a sensitive and helpful manner by busy GPs., even those who have known and treated you for years. Maybe they don't know how to handle it?

Looking forward to the forum ...
Insulin resistance isn't common in old age. A failing pancreas is.
IR is happening in 6yr olds due to high carb diet and lack of exercise. On top of their hereditary factors.
Keep an open mind and try and get your ketones tested, please.
 
Oh yeah, diabetes is scorned apon by those less intelligent.
We are trying to educate deaf ears.
Its hard work.

Diabetes can be managed very very well. I see you've received daisy1's literature which you may or may not already know.

If I was you I'd keep an open mind and familiarise myself with late onset type1. Just in case.
Teresa May is a prime example of being diagnosed as type2 initially.
 
Oh yeah, diabetes is scorned apon by those less intelligent.
We are trying to educate deaf ears.
Its hard work.

Diabetes can be managed very very well. I see you've received daisy1's literature which you may or may not already know.

If I was you I'd keep an open mind and familiarise myself with late onset type1. Just in case.
Teresa May is a prime example of being diagnosed as type2 initially.
Thank you
 
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