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Type 1 Diabetes
Inconsistent blood sugars
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<blockquote data-quote="EllieM" data-source="post: 2383487" data-attributes="member: 372717"><p>Welcome to the forums. </p><p></p><p>I would definitely push for a referral to a specialist. I've been T1 for 51 years (first 30 in UK) and I've never had a GP manage my T1. They are all pretty useless, in my experience, and most have been happy for me to get my blood glucose management treatment from a hospital specialist.</p><p></p><p>And I am boggling at the advice that your hba1c should not be below 58, given that the NHS recommendation is that T1s should aim for 48.... Having said that, I personally have lost hypo awareness with an hba1c of 47, so in the past I've needed to keep it around 50. I now self fund a dexcom, which gives me the confidence to aim for the 48, because it has a warning signal once I go down to 4.4. (That's the default level, but it is a great help with hypos, and allows me to get through the night without having to worry about them.) It also helps me to manage my blood sugars during the day and avoid some high readings.</p><p></p><p>I've had a couple of lantus lows, and also find that sometimes I just need a lot more insulin, which is sometimes but not always helped by changing my lantus cartridge. (Sometimes it just doesn't seem to work that well after 2 weeks of use.) I would love to try a different basal, but unfortunately although New Zealand would give me a pump, they only have lantus available as a 24 hour insulin. (Winge, winge. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" />). Personally I'd want to try out levemir/detemir if I had the option. In short, I share your lantus frustration.</p><p></p><p>Do you have access to a continuous glucose monitor? If you get a specialist referral you may find that you qualify for a NHS one and I find that it makes a big difference to my diabetic control, and in particular to my time in range, and also to my ability to both avoid and not be stressed out about hypos.</p><p></p><p>I'll stop before this turns into too much of a wall of text. Good luck.</p></blockquote><p></p>
[QUOTE="EllieM, post: 2383487, member: 372717"] Welcome to the forums. I would definitely push for a referral to a specialist. I've been T1 for 51 years (first 30 in UK) and I've never had a GP manage my T1. They are all pretty useless, in my experience, and most have been happy for me to get my blood glucose management treatment from a hospital specialist. And I am boggling at the advice that your hba1c should not be below 58, given that the NHS recommendation is that T1s should aim for 48.... Having said that, I personally have lost hypo awareness with an hba1c of 47, so in the past I've needed to keep it around 50. I now self fund a dexcom, which gives me the confidence to aim for the 48, because it has a warning signal once I go down to 4.4. (That's the default level, but it is a great help with hypos, and allows me to get through the night without having to worry about them.) It also helps me to manage my blood sugars during the day and avoid some high readings. I've had a couple of lantus lows, and also find that sometimes I just need a lot more insulin, which is sometimes but not always helped by changing my lantus cartridge. (Sometimes it just doesn't seem to work that well after 2 weeks of use.) I would love to try a different basal, but unfortunately although New Zealand would give me a pump, they only have lantus available as a 24 hour insulin. (Winge, winge. :)). Personally I'd want to try out levemir/detemir if I had the option. In short, I share your lantus frustration. Do you have access to a continuous glucose monitor? If you get a specialist referral you may find that you qualify for a NHS one and I find that it makes a big difference to my diabetic control, and in particular to my time in range, and also to my ability to both avoid and not be stressed out about hypos. I'll stop before this turns into too much of a wall of text. Good luck. [/QUOTE]
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