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Increasing BG- misdiagnosis of type and treatment?
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<blockquote data-quote="LauraPalmer" data-source="post: 1566944" data-attributes="member: 421296"><p>A very belated reply - to thank you for all the kind and helpful replies, and in the hope this thread might help someone else.</p><p></p><p>I had a really bad time - when I finally saw my GP again he just doubled the gliclazide dose and told me to wait it out. I continued to get sicker and sicker - BMI dropped to under 16, hair falling out in handfuls, BG regularly in the 30s - and could barely get out of bed or function at all.</p><p></p><p>I probably should have gone to A&E, but as the first time I was just given a saline drip and sent home I didn't have much faith in it. I ended up paying to see a consultant privately, which was a lifesaver (and I know I'm very lucky to have been able to do) - she immediately said it was definitely T1 and that I was at real risk of severe DKA, and gave me enough insulin to see me through to my NHS hospital appointment.</p><p></p><p>Since I saw the NHS endocrinologist in August, things are so much better! The T1 diagnosis was confirmed, I have a proper basal/bolus insulin routine, I'm regularly seeing the doctor and a dietician, I have a specialist nurse I can call any time... I feel like I've gone from being left to get more and more ill with no support to having proper medication and a whole team around me. I'm so grateful for this - although I've also had to deal with a lot of bitterness at how I was treated by the GP.</p><p></p><p>So, to anyone reading this diagnosed in adulthood - GPs are not good at recognising adult onset T1. I wish I'd pushed harder to be taken seriously and saved myself three months of very bad health. But on the plus side, when under specialist care NHS treatment is great. I'm still coming to terms with everything, but I feel better than I have done in months and finally feel myself again <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /></p><p></p><p>Thanks again for all the help here xx</p></blockquote><p></p>
[QUOTE="LauraPalmer, post: 1566944, member: 421296"] A very belated reply - to thank you for all the kind and helpful replies, and in the hope this thread might help someone else. I had a really bad time - when I finally saw my GP again he just doubled the gliclazide dose and told me to wait it out. I continued to get sicker and sicker - BMI dropped to under 16, hair falling out in handfuls, BG regularly in the 30s - and could barely get out of bed or function at all. I probably should have gone to A&E, but as the first time I was just given a saline drip and sent home I didn't have much faith in it. I ended up paying to see a consultant privately, which was a lifesaver (and I know I'm very lucky to have been able to do) - she immediately said it was definitely T1 and that I was at real risk of severe DKA, and gave me enough insulin to see me through to my NHS hospital appointment. Since I saw the NHS endocrinologist in August, things are so much better! The T1 diagnosis was confirmed, I have a proper basal/bolus insulin routine, I'm regularly seeing the doctor and a dietician, I have a specialist nurse I can call any time... I feel like I've gone from being left to get more and more ill with no support to having proper medication and a whole team around me. I'm so grateful for this - although I've also had to deal with a lot of bitterness at how I was treated by the GP. So, to anyone reading this diagnosed in adulthood - GPs are not good at recognising adult onset T1. I wish I'd pushed harder to be taken seriously and saved myself three months of very bad health. But on the plus side, when under specialist care NHS treatment is great. I'm still coming to terms with everything, but I feel better than I have done in months and finally feel myself again :) Thanks again for all the help here xx [/QUOTE]
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