porl69
Well-Known Member
- Messages
- 3,639
- Location
- Pontypool, South Wales
- Type of diabetes
- Type 1
- Treatment type
- Insulin
- Dislikes
- Stupid people
Thanks, Jaylee, for your informative mail. I just watched 'The devil we know' on youtube, on the plaintiffs agains DuPont on the former use of PFOA's and the effects of that on health, especially cancer. PFOA's are forbidden since 2015 in the US and Europe but still produced elsewhere in the world. Where it is forbidden it is replaced by Gen X, which also seems to be a carcinogen.
Ideed, with internet, it is difficult to find really thrustworthy information. There is a lot of fake news, manipulation and emotionally coloured information.
On your question about cosulting a doctor: yes, I have seen various doctors so far and had various tests. They first told me that with diabetes (for 40 years now) and - indeed - hypothyroidism for 27 years now), my joint problems were more prevalent/normal.... But even of these illnesses we still do not know what causes it really.
If teflon/PFOA/C8/GenX are in our drinking water and affects people, what if I place it in my body every day with a canula.
They've sent me home for two years that it is osteoarthritis, but it worsens too quickly and I insisted to take me serious and look at the röntgen and MRI's real good. And now they confirm that these imaging materials really do not give a conclusion of osteoarthritis. Therefore I now have a PET-scan. But, as said, I have no idea what can be seen on those. Parallel I am thus checking with you all. Without wanting to harrass you with worries. But still maybe help you all to stay alert of what we are having prescribed/used for our 'health'.
I'm Dutch as well, and I found it works very well to just ask on the thread when something isn't completely clear because of the language. Luckily, this is not Facebook and people won't make fun about it (unless you inadvertently said something particularly funny, but they'll explain that too so you can laugh with them). Instead, people will fall over themselves (that is an English expression, isn't it?) to help you out and explain the finer points of the langaugeIt's hard to figure out one's intentions sometimes, especially because English is not my mother tongue.
I'm Dutch as well, and I found it works very well to just ask on the thread when something isn't completely clear because of the language. Luckily, this is not Facebook and people won't make fun about it (unless you inadvertently said something particularly funny, but they'll explain that too so you can laugh with them). Instead, people will fall over themselves (that is an English expression, isn't it?) to help you out and explain the finer points of the langauge
Thanks for that, folks!
I found it works very well to just ask on the thread when something isn't completely clear because of the language.
See? It works almost instantly!"Fall over themselves." "Go out of the way." "Offer a helping hand." "Comunity spirited." Just being, kind.
Hi again,
I empathise with your health issue. As a non pumper I can only hope experience help and advice can come from those who do pump, & supprt your query by tagging in fellow pump users.
Hopefully "bump" your thread too?
I've had a look around regarding canula site allergies on the forum, but have only found skin issues regarding the adhesive causing localised skin rashes..
My guess, any possible "toxins" from a Teflon canula would cause an immediate reaction at the point of entry, if it was the Teflon being an issue?
But this is only supposition..
I've been diabetic for 43 years I've had the occaisional "frozen shoulder" & pulled the odd muscle. But that's to be expected for a half century guy.
Best wishes finding an answer, but please don't discount other possible causation too...
Maybe talk with your team regarding changing the type of canula used?
Een verrekte spierBy 'pulled' do you mean that a muscle has been removed??
I have been pumping for 19 years and 2years with abbott sensers, no problems with Teflon, lots of aches and pains but that is all to do with my auto immune problems which I have plenty
Many sympathies.
I know if PTFE is heated to extremely high temperatures and the fume inhaled it can give 'flu-like symptoms, but I have not heard of any issues at body temperature.
If your joints are not showing signs of damage have the medics thought about fibromyalgia? Just a thought, not a diagnosis of course.
I hope the issue is resolved soon.
Hi Rianne, No I don't have fibromyalgia - I heard about it from the news when Kirsty Young left the radio programme she was host for, some of the symptoms sounded a bit like what you described. Hope the immunologist helps!Thanks, agwagw, for sharing your thoughts on PTFE and fibromyalgia. No damage visible on radiological imagery, but on the outside my hands look like progressed (osteo)arthritis and causes the same limitations in using my hands. The thickening of the joints feels very bony. According to the reumatologist and what I've found on the internet fibromyalgia affects the weak tissues. But maybe I have some strange mixed tissue disorder.
Do you have fibromyalgia yourself? And if yes, have you found something to improve your condition?
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