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Information on Pumps for my Son
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<blockquote data-quote="SpencerT" data-source="post: 2747988" data-attributes="member: 595933"><p>Hi all,</p><p></p><p>My first post here. My 20 year old son was diagnosed in 2023 with Type1. My wife (his mum) is celiac and his uncle had Type 1 too.</p><p></p><p>Anyway, after 18 months we had a meeting last week with his diabetic nurse regarding pumps, seems on the NHS there's a 6-9 month wait to even to have his case reviewed by the consultants board at which time there's a medium possibility he would not be granted one on NHS. He's completed DAFNE. He's been in hospital once now with DKA.</p><p></p><p>He's getting really down with his type 1, so we're going to step in a provide a pump privately if we can, until NHS can assign him one.</p><p></p><p>A friend of ours has recently received Medtronic 780 (I think) on NHS and she was telling us how much better her levels have been since starting, literally a game changer as far as she's concerned.</p><p></p><p>So thinking about going through London Diabetic Clinic to get one, but have some fairly basic questions and hoping some of you with more knowledge and experience might be able to advise on?</p><p></p><p>Firstly, the Medtronic 780g is substantially more than for example MyLife Loop - does anyone have experience of both? Is the Medtronic worth the extra? Or is the Omnipod 5 better than both? Seeing so many reviews of all 3 no idea which to look at.</p><p></p><p>Also, when sleeping, what if you lay on the pump, is it possible to damage it, assuming you lay it on bed next to you? Assume when swimming they are removed?</p><p></p><p>If we start down this private route, will this lower the chances of the NHS offering him one as he would be seen as lower priority?</p><p></p><p>Has anyone successfully managed to get NHS to provide consumables after buying the pump? I assume not.</p><p></p><p>Finally are there any better alternatives to London Diabetic Clinic (we're in the midlands)? </p><p></p><p>Sorry for all the questions, as I say above hoping someone with experience might be able to give us some guidance.</p><p></p><p>thanks in advance!</p><p></p><p>ST</p></blockquote><p></p>
[QUOTE="SpencerT, post: 2747988, member: 595933"] Hi all, My first post here. My 20 year old son was diagnosed in 2023 with Type1. My wife (his mum) is celiac and his uncle had Type 1 too. Anyway, after 18 months we had a meeting last week with his diabetic nurse regarding pumps, seems on the NHS there's a 6-9 month wait to even to have his case reviewed by the consultants board at which time there's a medium possibility he would not be granted one on NHS. He's completed DAFNE. He's been in hospital once now with DKA. He's getting really down with his type 1, so we're going to step in a provide a pump privately if we can, until NHS can assign him one. A friend of ours has recently received Medtronic 780 (I think) on NHS and she was telling us how much better her levels have been since starting, literally a game changer as far as she's concerned. So thinking about going through London Diabetic Clinic to get one, but have some fairly basic questions and hoping some of you with more knowledge and experience might be able to advise on? Firstly, the Medtronic 780g is substantially more than for example MyLife Loop - does anyone have experience of both? Is the Medtronic worth the extra? Or is the Omnipod 5 better than both? Seeing so many reviews of all 3 no idea which to look at. Also, when sleeping, what if you lay on the pump, is it possible to damage it, assuming you lay it on bed next to you? Assume when swimming they are removed? If we start down this private route, will this lower the chances of the NHS offering him one as he would be seen as lower priority? Has anyone successfully managed to get NHS to provide consumables after buying the pump? I assume not. Finally are there any better alternatives to London Diabetic Clinic (we're in the midlands)? Sorry for all the questions, as I say above hoping someone with experience might be able to give us some guidance. thanks in advance! ST [/QUOTE]
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