Morning all!
So had my six monthly review at the clinic yesterday and had an interesting/unexpected discussion with the Dr that ultimately resulted in leaving the clinic with a pump referral
When it came to discussing any issues, the only one I really had was my fairly recent battles with DP. I cite this as the only reason for my raised A1c (40 to 45 in four months). Although still within the "target range", it's a total nightmare and something which means I can't lie in. And when I do (accidentally): hello 12-15mmol/L...
Then came the discussion of my control, as pleased as the specialist was - she asked me how difficult it was to maintain. I replied with a modest response saying that "it wasn't so bad" once having worked out my split basal dosage, DP correction on waking, pre-bolus timings for poorer GI meals, correction factors for exercise/miscalculated mealtime carbs, I:C ratio/basal adjustments for less active days. All in all, between 6-10 injections per day...
Then came the surprise. The specialist asked me if I'd ever thought about pump therapy. I said I had given it good thought due to the flexibility, possible BG control improvements, etc. However, I had never seriously considered it due to not "ticking enough of the boxes". To this she basically said that just because my A1c is not high does not disqualify me from pump eligibility. I did not expect to hear that one bit! She then continued to outline that although my control is perceived as "good", it's coming at a price: multiple daily injections and DP issues. It was reassuring to hear from a Dr that trying hard and succeeding does not make you less eligible than trying and failing, or not trying and failing. It's a relief to hear that you don't have to relax on BG management to let your A1c rise enough to "meet criteria" outlined by a governing body.
To cut a long story short, my visit to the clinic was a good one. What I thought was going to be a 10 minute routine chat turned into an interesting, in-depth talk covering topics from islet cell transplant research to closed-loop artificial pancreas possibilities and pump therapy options! I think the specialist was most pleased with the interest I have in my condition and the firm grounding I have with regards to diabetes and its effects on my body. For the short period of time spent in the Dr's office, the engaging conversation and exchange of information almost made diabetes seem like fun...
Regarding pump funding, hopefully some of the aforementioned will work in my favour. Whether it does or not, I don't know. I'm just pleased that the possibility has been discussed without the need for a battle with those who are there to help. I guess I'm lucky and have a very friendly, kind and understanding care team. Although early days, I'm pretty happy and look forward to seeing how this all turns out.
The concept of a pump does appeal to me very much. I like the idea of having even greater control than MDI, without the need for excessive injections. Adjustable basal rates (or TBR's?) to help my DP would really help me greatly! However, I am concerned about having a "machine" attached to me 24/7. I've never experienced anything like that before so have no idea if it would suit me or not. Potential failures also concern me a bit, I guess without a true basal insulin on-board you're always that bit closer to soaring blood sugars, in the event that there is a delivery problem with the pump's QA insulin.
Even the option to trial a saline pump would be a great opportunity for me. I'd then get a great picture of what life with one would be like. Specifically whether it would be practical for me as a marine electrician. Anyway, we'll just see what happens at my next review in the Spring time
Cheers,
Grant
My clinic (apparently) allows patients to wear pumps administering saline if they feel that a pump may hinder their job or conflict with their way of life. It makes sense really. That's what I meant by "trial a saline pump".You wont have an opertunity to tril a pump Grant and to be honest ill be surprized if you havent got one full time within 6-9 months. Any chance of telling us where this lovely dr might be?
I believe all new pump users are initiated on saline to get used to wearing/adjusting and becoming familiar with the pump before insulin is used, I was, so believe it's standard procedure.
Great news, having a good appointment is what we all strive towards, I think if you show a keen interest and are already doing as much as you can in managing your condition then you are in a better position when it comes to accessing a pump as your team know you will try your best in making it work for you, there's little point handing out a pump to someone who only shows limited interest as chances as it won't work for them. I got mine at the same time as a roofer who wasn't managing to keep his BG levels down during the day (due to being on the roof and not injecting) so was high all day and only in range later in the day, he tried the saline pump option and handed it back after a few days but he wasn't keen to start with as only felt comfortable being on a roof if his levels were elevated. If you really want it then it's going to work for you
Many thanks, was looking for an ebook for the 6th edition last night but only paperback? May have to purchase the paperback and wait till I'm back home to read through.Nice one Grant hope your dreams come true, do purchase Pumping insulin as this will help you no end before and after you start on a pump.
Thanks very much!I believe all new pump users are initiated on saline to get used to wearing/adjusting and becoming familiar with the pump before insulin is used, I was, so believe it's standard procedure.
Great news, having a good appointment is what we all strive towards, I think if you show a keen interest and are already doing as much as you can in managing your condition then you are in a better position when it comes to accessing a pump as your team know you will try your best in making it work for you, there's little point handing out a pump to someone who only shows limited interest as chances as it won't work for them. I got mine at the same time as a roofer who wasn't managing to keep his BG levels down during the day (due to being on the roof and not injecting) so was high all day and only in range later in the day, he tried the saline pump option and handed it back after a few days but he wasn't keen to start with as only felt comfortable being on a roof if his levels were elevated. If you really want it then it's going to work for you
If you're ever in the Forres area you're more than welcome round for a coffee, sweetener only mind@GrantGam1337 Perth Originally, Lossie now
So had my six monthly review at the clinic yesterday and had an interesting/unexpected discussion with the Dr that ultimately resulted in leaving the clinic with a pump referral
I hope so too @noblehead, we'll just wait and see I supposeThat is excellent news, hopefully the referral will be approved and you'll soon be joining us
A pump will undoubtedly help with your DP problem and make managing your bg levels much easier, injecting multiple times over and above the norm could eventually lead to lipohypertrophy issues so now is a good time to change over to a pump. Good luck Grant.
A quick question for you, the "Pumping Insulin" book - is it worth forking out the extra £10 for the sixth edition?
Many thanks for getting back. I'll order up the sixth edition in that case and have it sent to my work. Wouldn't hurt to have the most up to date version of the book considering the way CGM has come on in the last couple of years.Without a doubt Yes.
Long before I started pumping insulin I'd seen the book mentioned many times on the forum by members such as Azure and Carbsrok, I decided to buy it not long after I got approval and read it even though my actual start date was weeks away, tbh some of the book didn't make sense but it give me a good foundation which carried over when I did start on the pump.
It's a book you can keep referring back to time and time again, I often pick it up and have quick read if I'm experiencing some difficulties, that said mind Think like a Pancreas has some good information and advice too.
Many thanks for getting back. I'll order up the sixth edition in that case and have it sent to my work. Wouldn't hurt to have the most up to date version of the book considering the way CGM has come on in the last couple of years.
Many thanks!
Grant
No problemSorry Grant I may have misunderstood your previous post, do you already have a copy of Pumping Insulin but want the latest edition?
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