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Interesting.......Type 1 Or Not ?? (Newbie)

Lee 2771

Newbie
Messages
2
Type of diabetes
Type 1
Hi All,

First of all I would like to say what an excellent forum this is, it has helped me immensely over the last couple of months since being diagnosed type 1.

I will first give you a little history as to how I was diagnosed ( I won't bore you to death, honest ), I was constantly drinking (water) for a week, noticed a loss of weight to the point where my work trousers were beginning to fall off me by the end of the week, then, unfortunately got to the point where I thought I am going to have to go the docs. After going the docs for blood tests etc, I had a phone call the same night, all blood tests normal apart from that blood sugar which was 26.4 (ouch), ketones present etc and the doc said the next day, yes, type 1, oh my ##€$#$, 4 injections a day... luckily i managed to stay out of hospital and then it was a case of spending an afternoon with the diabetic nurse and a lot of education to follow. I am 39 and before diagnoses was 13.5 stone(5"11) so not overweight etc.. I am now 11.9 stone so have lost a little weight as you can see.

Luckily for me after the first couple of weeks I was quite lucky and gained relatively good control, however, now at this point I am a bit confused, having spoken to my diabetic nurse just last week she now says I may not have type 1 and she just doesn't know because, I have such good control (bearing in mind I think only through hard work on my behalf), info to follow....

I was on novorapid (4 units) and lanctus (6 units) to start, as the weeks have progressed the insulin has been steadily decreased, to the point now where I am, some days, just on lanctus (3 units) and the odd novorapid thrown in depending on my sugar levels before meals. I understand I am possibly in the honeymoon period but my diabetic nurse seems to think this is not the case. To prove it to myself the last few days I have gone off the wagon a little to maybe prove to me have it or not?? To cut the story short, 3 takeaways and readings of between 11-16 (going to bed) and before breakfast sometimes 10-12 as a result of me "not being good".. Also 2 pieces of dairy milk and a reading of 12.6 an hour after...

Bearing in mind I am still awaiting an appointment with the diabetes specialist for a definitive answer....

Would be grateful for any suggestions/answers.

Cheers,

Lee
 
Hi i was diagnosed as diabetic 30 years ago and was 14.5 stone my gp at that time did not know much about about the subject and was put on tablets (cannot remember which) but lost a lot of wieght down to 8 stone in 2 months. Then a phone call from my gp to say she was concerned (suprise)and refered my to hospital diabetic clinic where they told me i must be addmitted and put on insulin,well like yourself after a month or two i gained wieght and my sugar levels were consitantly 4 to 5.
Anyway i to started to miss injections and eating anything and my levels went haywire but my monthly blood test averaged 10 and the clinic said they were not to concerned but it would be better betweed 5 and 7. I was stupid and thought if they were happy with 10 a little higher now and then would be ok but i do not mean to scare you but 10 years ago i started to go blind had total kidney failure and had both legs amputated below the knee,i spent the best part of 6 years in hospital on dialysis and all the other surgery i had a kidney transplant 2 years ago and am getting some of my life back.
What i hope you gain from this post is that you should not assume you may be ok because
diabeties TAKES NO PRISONERS. PLEASE LOOK AFTER YOURSELF
Best of luck Alan.
 
As aboz says those are high readings, does your nurse really think they are normal? I'd ask to see another diabetes nurse asap!
 
Two blood tests will make the picture clearer C-peptide and the GAD test generally the C-peptide is used..

But it may well be that you are just having what is know as the Honeymoon period, where once dignoised and insulin implemented the pacreas is given a rest and some of it's insulin porduction returns, it been know for some newly dignoised diabetics to almost stop and to stop using insulin through this period...

It's very hard to tell how long the honeymoon period will last as it's very individual but most find it lasts between 6 to 12 months, during this time most diabetics will maintain pretty good control and the general indicator that you are coming out of the honeymoon period is increased insulin needs, and control gets more difficult to maintain stablility etc...

But it sounds that they going the right way forwar with getting you into see a consultant rather than hazards guesses at your surgery..
 
Hi All,

Thanks for all the comments, suppose it's just a case of plodding on, being good, waiting for my appointment and controlling it the best I can....


Cheers.

Lee
 
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