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Type 1.5/LADA Diabetes
Introduction and queries on LADA testing
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<blockquote data-quote="Swillbos" data-source="post: 2484206" data-attributes="member: 395397"><p>Poor you Songster, I was re-diagnosed from T2 to T1.5 in 2019, it was tricky enough then without a pandemic, so I really feel for you! </p><p></p><p>I am re-posting something I wrote when I was first re-diagnosed from T2 to LADA. </p><p></p><p>My journey was a bit slower than most, but arrival at the need for insulin was ultimately inevitable, and the final 'step change' was pretty abrupt and alarming: unintended weight loss (this after six plus years of really really slow progress!), endless trips to the loo, fasting blood sugars in the 14/15 range, added to the UK NHS dilemma of the limitations of GP vs hospital treatment. While this final stage might look a bit like your recent experience, much of the rest of it looks different, particularly in terms of family history:</p><p></p><p>* Limited family history of diabetes: father had T2 diagnosed in his 70's, but nothing else</p><p>* Very strong personal and family history of autoimmune disease, in my case thyroid disease (hyper-thyroid in my teens, hypo-thyroid since the age of 40) reflected in GAD score</p><p></p><p>It seems to me that autoimmune disease rather than family disease of diabetes was the stronger determinant of LADA in my case. As [USER=504712]@ert[/USER] suggests MODY might be a consideration, even though your sibling tested negative</p><p></p><p>The thing that grabbed everyone's attention and moved me immediately from the GP to the hospital service and on to insulin was my high ketone levels. I am not sure if this has been tested for you, nor what impact your current meds and pancreatic function levels would have on this test, but just a thought.</p><p></p><p>Please disregard anything I have written that doesn't seem relevant, re-reading it I was still trying to get my head round my re-diagnosis. This disease really does mess with your head! For the previous couple of years I thought I was a 'failed type 2', only had myself to blame, if only I'd tried harder with diet and exercise......if I'm truthful I still feel conflicted, but that is what is is to be human<img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /></p><p></p><p>Wishing you all the best!</p><p></p><p>xx</p><p></p><p>"Between the ages of 30-50, I was overweight, gradually moving up the ranks to full-blown obesity. When I turned 50 I set myself a goal of losing 4 stone over two years. I never really understood how carbs and calories were different but through trial and error I came up with my own DIY weight loss protocol: lots of walking and c1800 cals a day of which no more than a third from carbs, which I estimated at 150g a day. This worked very well for me and I found I was comfortably losing 2-3 pounds every month. When I was diagnosed with type 2 nine months into my regime, I had already lost 1.5 stone (c.10kg) and a tenth of my body weight. The Dr explained the parameters for diagnosis had recently changed, but that at HbA1c of 49, I was officially diabetic. Must admit my initial reaction was disbelief and extreme annoyance that things had changed, but it did spur me on to carry on with my diet and exercise routines.....now I know a lot more I suspect I had probably been diabetic for some time. Three months later my HbA1c had come down to 46 and I was congratulated on "reversing" my diabetes(!)</p><p></p><p>I lost three stone in a little over a year, and basked in the praise of the local practice nurse......I kept the weight off for a year, and then stressful work and family illness threw me off course, and weight started creeping back on. Nonetheless it was still an unpleasant shock to me when my GP suggested the time had come to start Metformin. It was then that I found this forum and started reading up, and realised that of course I hadn't reversed anything. I responded very well to Metformin (2 x standard 500mg - never had any problems with digestion after the first week or so) and discovered the joys of intermittent fasting, low carb baking and so much else! Over the course of seven years I have lost over five stone (34kg) and a third of my body weight but very, very slowly. (Added 3/02/22: final weight loss was rapid)</p><p></p><p>Things started to unravel a bit last summer and Metformin was increased to 1500mg. Then I had a step change in April, no matter what I tried I suddenly couldn't get my blood glucose lower than 15. Started on full whack Metformin (2000mg slow release) and 2mg Glimepiride, fully expecting great results....absolutely zero response, moved up to 4mg Glimeperide and still no improvement. Started panicking, GP told me to hang on in there and give it a chance, but ended up getting referred to the local hospital service and started insulin ten days ago.</p><p></p><p>I can't tell you how much better I feel now, I don't think I realised how poorly I was until I started insulin. I had high ketones and probably did very well to avoid DKA. Turns out I am LADA after seven years thinking I was type 2: islet cells positive for antibodies, GAD>2,000, HBA1c of 107......"</p></blockquote><p></p>
[QUOTE="Swillbos, post: 2484206, member: 395397"] Poor you Songster, I was re-diagnosed from T2 to T1.5 in 2019, it was tricky enough then without a pandemic, so I really feel for you! I am re-posting something I wrote when I was first re-diagnosed from T2 to LADA. My journey was a bit slower than most, but arrival at the need for insulin was ultimately inevitable, and the final 'step change' was pretty abrupt and alarming: unintended weight loss (this after six plus years of really really slow progress!), endless trips to the loo, fasting blood sugars in the 14/15 range, added to the UK NHS dilemma of the limitations of GP vs hospital treatment. While this final stage might look a bit like your recent experience, much of the rest of it looks different, particularly in terms of family history: * Limited family history of diabetes: father had T2 diagnosed in his 70's, but nothing else * Very strong personal and family history of autoimmune disease, in my case thyroid disease (hyper-thyroid in my teens, hypo-thyroid since the age of 40) reflected in GAD score It seems to me that autoimmune disease rather than family disease of diabetes was the stronger determinant of LADA in my case. As [USER=504712]@ert[/USER] suggests MODY might be a consideration, even though your sibling tested negative The thing that grabbed everyone's attention and moved me immediately from the GP to the hospital service and on to insulin was my high ketone levels. I am not sure if this has been tested for you, nor what impact your current meds and pancreatic function levels would have on this test, but just a thought. Please disregard anything I have written that doesn't seem relevant, re-reading it I was still trying to get my head round my re-diagnosis. This disease really does mess with your head! For the previous couple of years I thought I was a 'failed type 2', only had myself to blame, if only I'd tried harder with diet and exercise......if I'm truthful I still feel conflicted, but that is what is is to be human:) Wishing you all the best! xx "Between the ages of 30-50, I was overweight, gradually moving up the ranks to full-blown obesity. When I turned 50 I set myself a goal of losing 4 stone over two years. I never really understood how carbs and calories were different but through trial and error I came up with my own DIY weight loss protocol: lots of walking and c1800 cals a day of which no more than a third from carbs, which I estimated at 150g a day. This worked very well for me and I found I was comfortably losing 2-3 pounds every month. When I was diagnosed with type 2 nine months into my regime, I had already lost 1.5 stone (c.10kg) and a tenth of my body weight. The Dr explained the parameters for diagnosis had recently changed, but that at HbA1c of 49, I was officially diabetic. Must admit my initial reaction was disbelief and extreme annoyance that things had changed, but it did spur me on to carry on with my diet and exercise routines.....now I know a lot more I suspect I had probably been diabetic for some time. Three months later my HbA1c had come down to 46 and I was congratulated on "reversing" my diabetes(!) I lost three stone in a little over a year, and basked in the praise of the local practice nurse......I kept the weight off for a year, and then stressful work and family illness threw me off course, and weight started creeping back on. Nonetheless it was still an unpleasant shock to me when my GP suggested the time had come to start Metformin. It was then that I found this forum and started reading up, and realised that of course I hadn't reversed anything. I responded very well to Metformin (2 x standard 500mg - never had any problems with digestion after the first week or so) and discovered the joys of intermittent fasting, low carb baking and so much else! Over the course of seven years I have lost over five stone (34kg) and a third of my body weight but very, very slowly. (Added 3/02/22: final weight loss was rapid) Things started to unravel a bit last summer and Metformin was increased to 1500mg. Then I had a step change in April, no matter what I tried I suddenly couldn't get my blood glucose lower than 15. Started on full whack Metformin (2000mg slow release) and 2mg Glimepiride, fully expecting great results....absolutely zero response, moved up to 4mg Glimeperide and still no improvement. Started panicking, GP told me to hang on in there and give it a chance, but ended up getting referred to the local hospital service and started insulin ten days ago. I can't tell you how much better I feel now, I don't think I realised how poorly I was until I started insulin. I had high ketones and probably did very well to avoid DKA. Turns out I am LADA after seven years thinking I was type 2: islet cells positive for antibodies, GAD>2,000, HBA1c of 107......" [/QUOTE]
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