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Type 1 Diabetes
Islet transplant - anyone had one?
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<blockquote data-quote="Grant_Vicat" data-source="post: 2630499" data-attributes="member: 388932"><p>Thanks for the tag [USER=400972]@Rachox[/USER] - hope you're keeping well! </p><p>Hi [USER=77409]@LizLola[/USER] It is true that I had a kidney/pancreas transplant @ Addenbrooke's Hospital, Cambridge 10 years ago next Sunday. So far I have not met or heard about anybody having an islet transplant. I would guess the medication would be similar. Several things occur to me:</p><p>How long have you been type 1 ?</p><p>How is your kidney function?</p><p>Have you had complications such as retinopathy , gangrene or extensive neuropathy?</p><p>Obviously if you don't wish to publish personal information, I quite understand, but feel free to PM me if you wish.</p><p>From my point of view:</p><p>Type 1 from the age of 11 months (July 1959) to 4 days before my 55th birthday.</p><p>1st noted signs of kidney disease in 1973. By 2000 very poor and given 5 years maximum before dialysis would be needed.. Avoided dialysis by 8 days by having transplant in 2013. This was due to following medical advice to the letter!</p><p>I had laser treatment to both eyes between 1979 and 1983. Nothing required since. Delerium Tremens noted by a GP in the early 1990s. Charcot Foot (in early stage) addressed in October 2013.</p><p>All this shows that in November 2011, my diabetes had become a serious problem. The team at Addenbrooke's initially were going to do a kidney transplant, but it was suggested that I would benefit from a pancreas transplant at the same time. A surreal dream! I was put on the list in March 2012. This was because I had to undergo all kinds of stringent tests before being put on the list. Even then I had to come off several times because of frequent attacks of gout and cellulitis caused by poor kidney function.</p><p>I have been an artist, organ builder and church organist for many years, and therefore rely heavily on my hands. Since being put on immuno-suppressants I have suffered from additional tremors in my hands as a result. Whilst this can cause problems (try eating jelly, threading a needle, doing up tight buttons, or using a soldering iron!) I still enjoy all these things. </p><p></p><p>It is impossible for me to advise you, but I would suggest talking to the diabetes team in Bristol if you think you are in a suitable position. I can only think that an islet transplant would be a much more straightforward job! Good luck!</p></blockquote><p></p>
[QUOTE="Grant_Vicat, post: 2630499, member: 388932"] Thanks for the tag [USER=400972]@Rachox[/USER] - hope you're keeping well! Hi [USER=77409]@LizLola[/USER] It is true that I had a kidney/pancreas transplant @ Addenbrooke's Hospital, Cambridge 10 years ago next Sunday. So far I have not met or heard about anybody having an islet transplant. I would guess the medication would be similar. Several things occur to me: How long have you been type 1 ? How is your kidney function? Have you had complications such as retinopathy , gangrene or extensive neuropathy? Obviously if you don't wish to publish personal information, I quite understand, but feel free to PM me if you wish. From my point of view: Type 1 from the age of 11 months (July 1959) to 4 days before my 55th birthday. 1st noted signs of kidney disease in 1973. By 2000 very poor and given 5 years maximum before dialysis would be needed.. Avoided dialysis by 8 days by having transplant in 2013. This was due to following medical advice to the letter! I had laser treatment to both eyes between 1979 and 1983. Nothing required since. Delerium Tremens noted by a GP in the early 1990s. Charcot Foot (in early stage) addressed in October 2013. All this shows that in November 2011, my diabetes had become a serious problem. The team at Addenbrooke's initially were going to do a kidney transplant, but it was suggested that I would benefit from a pancreas transplant at the same time. A surreal dream! I was put on the list in March 2012. This was because I had to undergo all kinds of stringent tests before being put on the list. Even then I had to come off several times because of frequent attacks of gout and cellulitis caused by poor kidney function. I have been an artist, organ builder and church organist for many years, and therefore rely heavily on my hands. Since being put on immuno-suppressants I have suffered from additional tremors in my hands as a result. Whilst this can cause problems (try eating jelly, threading a needle, doing up tight buttons, or using a soldering iron!) I still enjoy all these things. It is impossible for me to advise you, but I would suggest talking to the diabetes team in Bristol if you think you are in a suitable position. I can only think that an islet transplant would be a much more straightforward job! Good luck! [/QUOTE]
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