Just a question

If You have been diagnosed as a late onset Type 1 diabetic, You are a type 1 diabetic. It does mean unfortunately that you will have to notify DVLA if you hold a driving licence provisional or a full licence and your car/ life insurance companies. Good news though if you are using insulin which I’m assuming you are being type 1 diabetic you can now have a exemption certificate so all your prescriptions are free once you have been issued with a exemption certificate.

Speedbird said:

My diabetic consultant has said I’m late onset Type 1. It’s been confirmed. I questioned this as my diabetic nurse encouraged me to go on the Desmond course, I would have thought Daphne would be more appropriate .
I am on Lantus and Novorapid.

I also have low ferritin levels which may skew the HbA1c result.

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you are type1 if you need insulin to control your glucose levels. Is your diabetic nurse at your surgery or diabetic/endocrinology department at your regional hospital? if the former, approach the experts at the hospital who actually know what they are talking about. Your are right, Daphne course is for type 1.
I've had type 1 since the age of 24 ( now 60). You can be diagnosed with type1 at any age.
Best Jane x

Speedbird said:

Hi, would someone be able to shed any light on my last test result?
I have been diagnosed as a late onset type 1. Do my results gauge me as a Type 2?

Thank you

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Speedbird said:

Hi, would someone be able to shed any light on my last test result?
I have been diagnosed as a late onset type 1. Do my results gauge me as a Type 2?

Thank you

View attachment 61614



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Hi,
The HBA1c doesn’t necessarily give you the answer, unfortunately the majority of Doctors and Nurses don’t understand diabetes, and only treat the symptoms and not the underlying causes..
In 2017, I had Autoimmune pancreatic disease that after 6 months lead to me having pancreatitis, despite numerous attempts to get medical help and even on the day I nearly lost my life Ambulance crew was completely unable to help me and left me going into a coma….

I won’t bore you with the detail so, I had organ failure with my pancreas which resulted in being insulin dependent (T1).
I have a Libre style sensor to measure blood glucose, and I use NovoRapid insulin which I calculate after the sensors reading, I use Toujeo insulin every night to help regulate insulin levels throughout the night and OMEPRAZOLE twice daily for digestion, as my pancreas has lost the ability to produce one of the enzymes which aid food digestion (I think it’s Cretanin) but can’t find out..

Unfortunately to this day I still can’t get the correct help or any medical professional that understands my issue, I see a consultant once a year who doesn’t understand the condition and only last week has cancelled my annual appointment for the second year running, I have been trying for 7 years to get a C-Peptide test and they always either don’t have the gold top blood vial or lose my bloods, so I have given up on the so called medical professionals!!!!

The moral of the story is don’t leave anything to chance, try to find the right people to help you, ask the hospital to test you pancreas enzymes function and maybe ask for a blood glucose test kit and what your levels should be before and after eating etc.
This is only my story, and I wish with hindsight that I could’ve have got advice from the right people who know, and had access to this forum with all the amazing people on here to give Advice from real experience then maybe I have would be normal now….Good luck and don’t give up

Speedbird said:

Hi, would someone be able to shed any light on my last test result?
I have been diagnosed as a late onset type 1. Do my results gauge me as a Type 2?

Thank you

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I was diagnosed as type 2 when I was 30, 10 years later I got a new nurse who felt I had been missed diagnosed. I was sent for genetic testing and was told I have MODY12, I am now with a specialist at the hospital clinic, my bloods was 109 when I was referred and now at my last test I was 58. Having the right doctor can make all the difference.

Speedbird said:

Hi, would someone be able to shed any light on my last test result?
I have been diagnosed as a late onset type 1. Do my results gauge me as a Type 2?

Thank you

View attachment 61614



(Mod edit to conceal ID.)

Click to expand...

I'm a late onset diabetic myself. My own diagnosis was originally type two and was primarily caused by a damaged pancreas. As tablets didn't work I was referred to the type 1 clinic and put on insulin, eventually diagnosed as type 3c.

Speedbird said:

Thank you.
Yes I have had all the tests done with my diabetic consultant and it has been confirmed I am a late onset T1.
I had an appointment with my DN and she has now confirmed this with my medical records.

She also contacted the GP and I was able to have an appointment just minutes after seeing her so all progressing.
More blood tests in a month, prescribed iron tablets and will have a fructosamine test for the HbA1c.
The GP also said that they don't have the option of doing the Free T3 test so will go the general TSH.

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Your GO can write on the blood test request form that T3 is done, but even when my GP capitalised the request the lab ignored it. It is only since I have been taking T3 that it has been tested, and even then the form has to state I take T3.

It all seems like a game sometimes.

That said, with your numbers, unless you have a real inability to convert the natural T4 you are making to T3, you should be fine, unless your T3 is in the pits and well off range.

I am a dire converter, and even on 175mcgr T4, I couldn't get into range, hence the additional T3, prescribed by the Endo. Only they can prescribe it.

jonathan183 said:

Suggest you press for them to refer you to a diabetic consultant under the NHS, when you get to see the consultant make sure they are aware of all your tests and potential additional issues.

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I was about to suggest this, as I was unsure whether I was Type 1 or 2, but there is a blood test that can unequivocally determine, which they did for me and they said no question about it I was type 1!

If you cannot get to a diabetic consultant, get your doctor to refer you to one, if they refuse go to your diabetic clinic at your hospital and explain this to them! My diabetic nurse are fantastic, if my doctor says no to something and they just over-ride my doctor, I am in a dispute with the NHS, NICE and my local MP has even written letters to them, so hoping for a good result!

Late Onset Type 1 doesn't exist - it's a diagnosis terminology for Latent Autoimmune Diabetes in Adults (LADA), and sometimes called Type 1.5 because the symptoms sit between types 1 and 2.
The easiest way to confirm this diagnosis to get your GP to take a blood test for GADA antibodies - that's the test for Type 1 and LADA.
Another indicator (but not essential) is the presence of other autoimmune conditions - I have alopicia and Pernicious anemia. It was when researching alopicia that I discovered LADA and chased up my GP because I had uncontrollable Type 2 for 4 years prior.